ME/CFS fatigue so bad they could barely get out of bed, somewhat better after antibiotics
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Aug 2019
In their words
- Condition: ME/CFS
Chronic Fatigue After Lyme
In context ↗ - At worst: Severe
Three years ago I was so fatigued I could barely get out of bed to use the bathroom.
In context ↗ - Now: Somewhat better
Through those years I improved about 50-60%. ... The symptoms I still struggle with on a daily bases are fatigue, weakness, dizziness
In context ↗ - Began after: a bacterial or tick-borne infection
finally tested positive for lyme
Read from 1 of their posts and comments; links to the one this page draws on
Summary
They fell ill three years before writing, so fatigued they could barely get out of bed to reach the bathroom, and finally tested positive for Lyme. Two years of antibiotics improved them by about 50-60% and eased night sweats, but fatigue, weakness, dizziness on getting up, breathlessness, headaches and brain fog remained daily. A clinic diagnosed POTS and autonomic nervous system dysfunction; they were unsure where to go next.
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What they tried
What they credit
Their words about each treatment
- antibiotics · Helped
I took it and ran with it for 2 years of antibiotics. Through those years I improved about 50-60%.
In context ↗
Approaches: Antibiotics
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| three years ago | fell ill; bedbound fatigue, later tested positive for LymeThree years ago I was so fatigued I could barely get out of bed to use the bathroom.In context ↗ | Severe | |
| 2019-08-12 | 50-60% better after two years of antibiotics, still daily symptomsThrough those years I improved about 50-60%.In context ↗ | Moderate | Antibiotics (unspecified) |
Symptoms mentioned
Their words about their symptoms
- Brain fog
blurry vision/brain fog
In context ↗ - POTS & dysautonomia
dizziness, especially when getting up in the middle of the night and morning
In context ↗ - Breathlessness
shortness of breath at times
In context ↗ - Temperature regulation
Fatigue slightly improved after treatment and so did night sweats.
In context ↗
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