Long COVID
Moderate → near normalIll 6 months before improving or writing
Long COVID with dizziness and chest pain, close to normal with time and low-histamine diet
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 6 months
- Last post
- Jan 2023
In their words
- Condition: Long COVID
I’ve been long hauling for 13 months.
In context ↗ - At worst: Moderate
Mine was moderate to severe the first couple months. Now I’ve been mild for about a year with some moderate flare ups.
In context ↗ - Now: Near normal
Lingering around 90% recovered with some flare ups ... Better minus some random anxiety.
- Began after: COVID
I got covid in December, same as you.
In context ↗
Read from 82 of their posts and comments; links to the 33 this page draws on
Summary
Tide 96871 caught COVID in December 2020; months 2-6 were worst, and at month 3 he had constant dizziness, breathlessness and chest pain. He credited time, a low-histamine diet, ivermectin and antihistamines with reaching about 90% by six months, and later found black seed oil helped. Exercise, colds and reinfections repeatedly set him back. By January 2023 he felt better but had lingering anxiety.
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What they tried
What they credit
Also tried
beta blockers (metoprolol)· Helpedvitamin D· HelpedPepcid· Helpedacupuncture· HelpedZyrtec· Helpedprobiotic· Helpedbreath work and meditation· HelpedClaritin· No changehydroxyzine· No changebuspirone· No changejogging· Worsequercetin· Not saidzinc· Not saidvitamin C· Not saidomega 3· Not saidback pod· Not said
Their words about each treatment
- beta blockers (metoprolol) · Helped
I was on beta blockers for a couple months which helped resolve it, and am no longer on them.
In context ↗ - ivermectin · Helped
I did 3 days straight of ivermectin at 15mg. Then once a week. I’m no longer on any of them and am about 90% better.
In context ↗ - fluvoxamine · Helped
the fluvoxamine (I actually took fluoxetine which is a similar ssri) helped with the serotonin imbalance
In context ↗ - prednisolone · Helped
I’ve done ivermectin, fluvoxamine, and prednisolone.
In context ↗ - quercetin · Not said
Daily I take quercetin, Claritin, zinc, vitamin d.
In context ↗ - vitamin D · Helped
I was on the low side of vitamin D as well and took a large supplement per doctor instructions for 8 weeks and it drastically improved my mood and anxiety but not the physical symptoms.
In context ↗ - Pepcid · Helped
When I would get chest tightness real bad I would to Pepcid also and it was a life saver some days.
In context ↗ - low histamine diet · Helped a lot
Low histamine diet has helped me tremendously as well.
In context ↗ - acupuncture · Helped
I've done acupuncture 3 times now and only had minimal relief.
In context ↗ - Zyrtec · Helped
Zyrtec and Pepcid have been great for me. Zyrtec in the morning and Pepcid at night.
In context ↗ - Claritin · No change
Claritin didn’t do anything for me but it helps others.
In context ↗ - hydroxyzine · No change
I tried hydroxyzine, buspirone, and fluvoxamine when I initially had the bad anxiety. None of it really helped
In context ↗ - jogging · Worse
Exercise definitely makes pem worse. I jumped for literally 5 minutes.
In context ↗ - black seed oil · Helped a lot
I’ve been on it for almost a week now and it’s helped me immensely.
In context ↗ - magnesium · Helped
Magnesium supplementation helped me the most with this. Specifically magnesium Taurate or Glycinate.
In context ↗ - probiotic · Helped
ive been taking that for about 2 weeks and have noticed some improvements in my long haul.
In context ↗ - vitamin C · Not said
I only take a probiotic, 5000iu vitamin d, zinc, vitamin c, and quercetin as needed.
In context ↗ - omega 3 · Not said
Still doing a low histamine diet and taking Claritin, quercetin, and omega 3’s.
In context ↗ - breath work and meditation · Helped
Breath work and a good magnesium supplement has helped me tremendously with similar symptoms.
In context ↗ - back pod · Not said
I bought a back pod for costochondritis to stretch it out.
In context ↗ - time · Helped
Time seems to have helped a lot of my symptoms and got me to around 90% or so.
In context ↗
Approaches: SSRIs · Diet · Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 3 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| December 2020 | COVID-19 infectionI got covid in December, same as you.In context ↗ | Not stated | |
| March 2021 | worst months 2-6: constant dizziness, breathlessness, chest painI remember at month 3 I was dizzy non stop, couldn’t ever get a deep breath despite my lungs being fine, constant chest painIn context ↗ | Moderate | |
| June 2021 | better mentally and physically, some odd ailments leftI’m 6 months post covid and while I have gotten better mentally and physically, I still have some strange ailmentsIn context ↗ | Mild | Time and spontaneous remission |
| August 2021 | crashed after five minutes on the trampolineJumped on the trampoline with my daughter earlier today and it wrecked meIn context ↗ | Mild | |
| November 2021 | about 90%, functioning daily with frightening flaresTime seems to have helped a lot of my symptoms and got me to around 90% or so. I can function dailyIn context ↗ | Near normal | Time and spontaneous remission |
| November 2021 | black seed oil made symptoms close to 100% betterit’s helped me immensely ... my symptoms now are mostly manageable but it definitely helps me feel close to 100% | Near normal | |
| December 2021 | crashed the day after 45 minutes ice skatingWent ice skating with some co workers last Friday for about 45 minutes. Next day chest pain, SOB, fatigue.In context ↗ | Mild | |
| December 2021 | bad cold brought long haul back to month-3 levelI had a bad cold about 3 weeks ago and my long haul has been worse the last week and a half. Like as bad as month 3 after first infection bad.In context ↗ | Moderate | |
| February 2022 | anxiety as bad as the first months after a suspected reinfectionThe anxiety is bad now like it was in the first few months. ... I think I may have been reinfected last month and am going through it again. | Mild | |
| April 2022 | feels mostly normal, occasional flaresStill flares sometimes but I feel mostly normal these days.In context ↗ | Near normal | |
| July 2022 | lingering around 90% recovered after two infectionsLingering around 90% recovered with some flare ups.In context ↗ | Near normal | Time and spontaneous remission |
| January 2023 | near-normal with lingering anxietyBetter minus some random anxiety. Pretty sure it’s ptsd from dealing with long covid for so long.In context ↗ | Near normal |
Adverse events
- Magnesium“I was taking magnesium taurate and it seemed to make it slightly worse for me” In context ↗ Made symptoms worse
- Probiotics and fermented foods“the probiotic I was taking started making my anxiety waaaayy worse” In context ↗ Mood or psychiatric effects
- Vitamin D and sun exposure“Vitamin D did the same thing for me.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessHeart symptoms & palpitationsLoss of smell or tasteMast cell (MCAS) & allergiesMuscle weaknessPOTS & dysautonomiaPain & fibromyalgia
Their words about their symptoms
- POTS & dysautonomia
Definitely have autonomic dysfunction but not as bad as some on here.
In context ↗ - Mast cell (MCAS) & allergies
I have gotten to about 90% in almost 9 months but I still flare and am sensitive to foods.
In context ↗ - Pain & fibromyalgia
The main symptom I have now is an ache/pain between my left arm and heart.
In context ↗ - Breathlessness
My main symptoms are SOB, palpitations, dizziness.
In context ↗ - Heart symptoms & palpitations
I get occasional palpitations (a few a day)
In context ↗ - Muscle weakness
Still dealing with fatigue and muscle weakness though.
In context ↗ - Anxiety & low mood
The anxiety is bad now like it was in the first few months.
In context ↗ - Brain fog
Left Chest pain and back pain/Sob/Brain fog/anxiety/fatigue.
In context ↗ - Loss of smell or taste
since then, taste and smell has returned.
In context ↗
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