Bedbound with long COVID at worst, now much better after triple therapy
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3 years
- Last post
- Mar 2026
In their words
- At worst: Severe
I went from being bedbound to literally running around the block, in like 3 weeks.
In context ↗ - Now: Much better
I started wearing nicotine patches plus the blood thinners and my baseline went up dramatically. ... The only issue I have is shortness of breath.
In context ↗ - Began after: COVID
I had long covid before the vax.
Read from 29 of their posts and comments; links to the 20 this page draws on
Summary
Owl 56200, 35, developed long COVID during the pandemic after a year of recurrent infections. Bedbound at worst, they improved dramatically within weeks of triple therapy, and nicotine patches later raised their baseline, though symptoms worsened after stopping the patches. Antihistamines and cromolyn stopped working and quercetin only sometimes helped; DAO, fluvoxamine, lactoferrin, MSM and glutathione each helped some symptoms. Shortness of breath was later fixed with iron bisglycinate, while panic attacks and tachycardia remained.
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What they tried
What they credit
Also tried
Their words about each treatment
- LDN · Helped
I'm taking LDN and Yeah it works for Long Covid symptoms. However there's a downside and it may give u a mild depression.
In context ↗ - nicotine patches · Helped a lot
I started wearing nicotine patches plus the blood thinners and my baseline went up dramatically.
In context ↗ - vitamin D · Helped
I accidentally took 50k for a week and noticed an improvement too.
In context ↗ - Triple therapy: Eliquis, plavix, baby aspirin · Helped a lot
I went from being bedbound to literally running around the block, in like 3 weeks.
In context ↗ - Atorvastatin · Helped
Atorvastatin takes care of the vasculitis.
In context ↗ - zertec · Helped
My doctor put me on zertec and famotidine and it helped me a lot but the benefits went away after 6 months.
In context ↗ - quercetin · Helped
I've been using quercetin, sometimes it works sometimes it doesn't.
In context ↗ - Cromolyn sodium · Helped
Cromolyn sodium worked but now it doesn't do anything.
In context ↗ - Ketotifen · Helped
Ketotifen doesn't do anything anymore.
In context ↗ - DAO supplement · Helped
Been using dao supplement, it seems to be the only thing that helps.
In context ↗ - fluvoxamine · Helped
My doctor put me on an ssri called fluvoxamine and I feel much better at least mentally.
In context ↗ - pace myself and rest · Helped
I learned how to pace myself and rest 30 to 60 minutes.
In context ↗ - speechify · Helped
I'm got this app called speechify, it reads the material for you.
In context ↗ - NAC · Helped
The only two things that helped was NAC, AND nicotine patches.
In context ↗ - elimination diet · Helped
I did an elimination diet and the only thing I could tolerate was meat, salt and water.
In context ↗ - DMSO · Helped
Cromolyn oral ... DMSO
In context ↗ - Lactoferrin peptides · Helped
Lactoferrin peptides helped a lot.
In context ↗ - maraviroc · Worse
I only did 2 week and had to stop bc my shortness of breath became intolerable
In context ↗ - butyrate · Worse
I heard butyrate helps seal the gut so I bought it and unfortunately it makes my mcas symptoms go crazy.
In context ↗ - msm supplement · Helped a lot
I got a lot better after taking msm supplement, and liposomal glutathione.
In context ↗ - iron bisglycinate · Helped a lot
Hey bro I fixed shortness of breath with iron bisglycinate.
In context ↗ - COVID vaccination as treatment · Worse
I had long covid before the vax. The vax made it worse.
In context ↗
Approaches: Anticoagulants · Diet · Statins · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2.5 years after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | long COVID after a year of recurrent infectionsThat lasted for about a year before I got long COVID.In context ↗ | Not stated | |
| 2.5 y | bedbound before blood thinnersI went from being bedbound to literally running around the blockIn context ↗ | Severe | |
| 2024 | able to run and lift again on triple therapy plus statinThe benefits started to kick in after a month or two, running, lifting, etc.In context ↗ | Mild | Triple anticoagulant therapy |
| 2025 | baseline up dramatically after adding nicotine patchesI started wearing nicotine patches plus the blood thinners and my baseline went up dramatically.In context ↗ | Mild | Nicotine patches |
| 2025 | crashed after pushing exerciseI was able to run again but I did crashed after pushing myself.In context ↗ | Mild | |
| 2026-03-22 | shortness of breath and panic attacks remain; breath fixed with ironI fixed shortness of breath with iron bisglycinate.In context ↗ | Mild |
Adverse events
- Low-dose naltrexone“The only side effect I experienced was depression” In context ↗ Mood or psychiatric effects
- COVID vaccination as treatment“I had long covid before the vax. The vax made it worse.” In context ↗ Made symptoms worse
- Nicotine patches“Most Ive ever did was 10.5mg everyday for a week, but it was too strong for me. It gave me anxiety.” In context ↗ Mood or psychiatric effects
- Maraviroc (Selzentry)“I only did 2 week and had to stop bc my shortness of breath became intolerable” In context ↗ Made symptoms worse
- Butyrate (sodium butyrate, tributyrin)“it makes my mcas symptoms go crazy ... I do feel feel better after taking it but it was hell.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Breathlessness
The only issue I have is shortness of breath.
In context ↗ - Brain fog
I get lost mid sentence like Biden, can't read for more than 5 minutes.
In context ↗ - POTS & dysautonomia
Nicotine helped a ton with pots, fatigue, brainfog.
In context ↗ - Mast cell (MCAS) & allergies
unfortunately it makes my mcas symptoms go crazy
In context ↗ - Anxiety & low mood
Panic attacks went down a lot but unfortunately I still have it everyday.
In context ↗ - Post-exertional malaise
Don't get me wrong u can still crash but threshold is a lot higher
In context ↗ - Gut problems
Also, REFLUX, POOR MOTILITY TOO.
In context ↗ - Light & noise sensitivity
Although sometimes sound gets overwhelming.
In context ↗ - Heart symptoms & palpitations
I still have a bit tachycardia sometimes bc of vasculitis.
In context ↗ - Flu-like symptoms
I was sick for 3 months, recover for 2 weeks and then I'd catch a new all varients of viruses, bacteria, and fungi again.
In context ↗
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