Long COVID
Mild → near normalIll 4 years before improving or writingNeeds ongoing treatment
Long COVID with POTS and brain fog, now about 90% of old self after rest and diet
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 4 years
- Last post
- Oct 2026
In their words
- Condition: Long COVID
I got covid (omicron) and developed long covid
In context ↗ - At worst: Mild
I did no more exercise, just went to bed straight after work every day.
In context ↗ - Now: Near normal
It took 4 years but I got so much better, like 90% of my previous self.
In context ↗ - Began after: COVID
3 months later I got covid (omicron) and developed long covid
In context ↗ - Says they never had: Gut problems
I never had gut issues
- Says they never had: Mast cell (MCAS) & allergies
I don’t have histamine issues
Read from 81 of their posts and comments; links to the 32 this page draws on
Summary
Fjord 97083 got long COVID in April 2022 after an omicron infection, with POTS, PEM, breathlessness and brain fog, working but needing to lie down after stairs. Novavax shots in January and June 2023 each gave roughly three months of relief; a later one did nothing. They credited rest, diet, sauna, breathing exercises and supplements. Four years on they were about 90% of their old self, working 40-50 hours a week.
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What they tried
What they credit
Also tried
Novavax· Helped · wore offinhalers (steroid inhaler)· Helpedanti inflammatory / Mediterranean diet· Helpedcalorie counting and weight loss diet (Cronometer)· Helpedcutting out alcohol· Helpedearly bedtime / sleep hygiene· HelpedModerna booster (post-covid)· No changereformer Pilates· Worsebike trainer (Zone 1/Zone 2 training)· Worseskipping breakfast / intermittent fasting· Not saidweights (10 minutes)· Not saidcurcumin / turmeric· Not saidmagnesium l-threonate· Not saidantihistamine (Reactin)· Not saidEnovid nasal spray· Not saidCPC mouthwash· Not saidAlpha Lipoic Acid· Not saidvitamin D· Not saidvitamin C· Not saidRingConn smart ring· Not saidnootropics· Not said
Their words about each treatment
- Moderna booster (post-covid) · No change
I also didn’t see any change in my LC after my post-covid Moderna shot.
In context ↗ - Novavax · Helped
I got Novavax in Jan 2023 and my symptoms got a lot better, started getting worse around the 3 month mark.
In context ↗ - inhalers (steroid inhaler) · Helped
The steroid inhaler definitely helps but I don’t want to be on it for the rest of my life.
In context ↗ - NAC · Helped
I take Nac every day with no issues. When I went off Nac I had zero energy.
In context ↗ - nicotinimide riboside (Tru Niagen) · Helped
I decided to go back on it and immediately felt more energetic
In context ↗ - anti inflammatory / Mediterranean diet · Helped
I definitely credit Lily Spechler’s advice for a lot of my recovery. More calories, higher protein, meals spread out over the day, higher potassium, and fibre have helped immensely!
In context ↗ - high protein intake · Helped
I read that protein is good for brain blood volume, and when I upped my protein intake I did feel better
In context ↗ - calorie counting and weight loss diet (Cronometer) · Helped
For the last 3 months or so I’ve been tracking calories on Cronometer and eating a lacto pescatarian diet. ... My resting HR has gone down too!
In context ↗ - skipping breakfast / intermittent fasting · Not said
Usually I’ll skip breakfast and hope I get some intermittent fasting benefits.
In context ↗ - reformer Pilates · Worse
I’ve started reformer Pilates to improve my exercise baseline. ... I get pem a day after so I think I’ll have to scale back.
In context ↗ - weights (10 minutes) · Not said
I can do about ten mins of weight and body weights so going to stick to that for a while.
In context ↗ - bike trainer (Zone 1/Zone 2 training) · Worse
I did 5 mins on it and crashed the next day :(
In context ↗ - sauna · Helped
Sauna, I got into sauna in year 2. Started slow and built up my tolerance but I really think it was helpful
In context ↗ - breathing exercises · Helped
Other treatments: breathing! Free and really helpful for me, just breath deep once an hour
In context ↗ - curcumin / turmeric · Not said
I took nicotinimide riboside, NAC, curcumin, and magnesium k-threonate
In context ↗ - magnesium l-threonate · Not said
now I really just try get vitamin c and d and take magnesium for sleep
In context ↗ - antihistamine (Reactin) · Not said
I also took an antihistamine a day, but I’m not sure if that’s effective once you are infected.
In context ↗ - Enovid nasal spray · Not said
I also use enovid nasal spray
In context ↗ - CPC mouthwash · Not said
I rested and reduced viral load with Cpc mouthwash and nasal spray.
In context ↗ - iron · Helped a lot
Then in year 3 I started taking iron (despite my doc saying not to bother as my levels were normal) I thought why not, it helped my fatigue immensely.
In context ↗ - CoQ10 · Helped
Supplements that made a difference: Nicotinimide riboside, NAC, CoQ10.
In context ↗ - Alpha Lipoic Acid · Not said
magnesium l-thronate, NAC, CoQ10, Alpha Lipoic Acid
In context ↗ - vitamin D · Not said
make sure I’ve taken vit c, vit d and eat well for immune health
In context ↗ - cutting out alcohol · Helped
basically cut out alcohol which helps with better sleep
In context ↗ - early bedtime / sleep hygiene · Helped
I went to bed at 10 every night
In context ↗ - RingConn smart ring · Not said
I just got a RingConn, I used to have a garmin watch but I kept getting a rash on my wrist.
In context ↗ - nootropics · Not said
Now that I’m working full time I’m trying out some nootropics to help sustain focus
In context ↗
Approaches: Alternative therapies · Diet · Mind-body practices · Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| 2022-04 | got COVID, developed long COVID3 months later I got covid (omicron) and developed long covidIn context ↗ | |
| 2022 | POTS, could not walk a block without heart rate spiking, had to lie down after stairsI’d walk a block and it would jump to 160, I’d have to lie down after taking the stairsIn context ↗ | |
| 2023-05-01 | first Novavax shot; able to do short bursts of high-intensity exerciseI was consistently doing higher intensity exercises for 5-10 mins every day without feeling terrible the next dayIn context ↗ | COVID vaccination as treatment |
| 2023-06-26 | crashed about three months after the Novavax shot, bed straight after workThen about 3 months later my symptoms got worse and I did no more exercise, just went to bed straight after work every day.In context ↗ | |
| 2023-06-26 | second Novavax shot; 20,000 steps in a weekend on a trip2 weeks after being vaccinated, I started feeling better again. One day on my trip I did 20,000 steps!In context ↗ | COVID vaccination as treatment |
| 2023-10-25 | long walks again, no brain fog, ready to try exerciseI’ve been able to go on long walks again and feel ready to try incorporating exercise. No brain fog anymoreIn context ↗ | COVID vaccination as treatment |
| 2023-11-23 | updated Novavax had little effect; PEM and fatigue returnedI’m disappointed to say it hasn’t had such a strong effect, and I’ve been experiencing PEM and fatigue.In context ↗ | |
| 2024-01-06 | reported 80% recovered after diet changesI’m at 80% recoveredIn context ↗ | |
| 2024-10-21 | crashed after three days of walking a lotI spent 3 days in a day walking a lot and I’ve crashedIn context ↗ | |
| 2025-03-23 | PEM subsided but still cannot exerciseIn the last 5/6 months my PEM has subsided, I think I can now say I don’t have it anymoreIn context ↗ | |
| 2025-12-18 | back at work, walking up to 6k steps a day, PEM and POTS goneI work, I walk up to 6k steps a day and have fewer and fewer brain fog days. My PEM and pots are completely gone.In context ↗ | |
| 2026-02-22 | walking an hour a day and working 40-50 hours a weekI walk an hour a day, I work 40-50 hours a weekIn context ↗ | |
| 2026-10-03 | about 90% of previous self after four yearsIt took 4 years but I got so much better, like 90% of my previous self.In context ↗ |
Adverse events
- COVID vaccination as treatment“I’m disappointed to say it hasn’t had such a strong effect, and I’ve been experiencing PEM and fatigue.” In context ↗ Made symptoms worse
- Pilates“So far I’ve done it once a week for the last 3 weeks but I get pem a day after so I think I’ll have to scale back.” In context ↗ Made symptoms worse
- Hyperthermia and sauna“Sometimes I get mild pem after but I think it’s helping ... I do sauna but have also crashed from it in the past.” Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessHeadaches & migraineHeart symptoms & palpitationsNeuropathy & tinglingPOTS & dysautonomiaPost-exertional malaiseTemperature regulation
Their words about their symptoms
- Post-exertional malaise
My PEM and pots are completely gone.
In context ↗ - POTS & dysautonomia
I’ve never been officially diagnosed with POTS but for a year after my covid infection, I would stand up and my heart would jump to 130
In context ↗ - Brain fog
I still have lung issues, fatigue, occasional brain fog
In context ↗ - Breathlessness
I also get shortness of breath and lung inflammation
In context ↗ - Heart symptoms & palpitations
the last two days my heart rate is hovering around 100, 130 when walking
In context ↗ - Neuropathy & tingling
still have some tingling/numbing sensation in my limbs sometimes
In context ↗ - Headaches & migraine
2 years in I got terrible headaches for a period of time
In context ↗ - Temperature regulation
Shortness of breath, air hunger, night sweats, body temperature dysregulation
In context ↗ - Anxiety & low mood
I feel down tonight, just wanted to vent a little.
In context ↗
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