Bedbound with ME/CFS six months, now much better with magnesium glycinate and diet
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 20 years
- Last post
- Jan 2026
In their words
- Condition: ME/CFS
I've had CFS for more than 20 years
In context ↗ - At worst: Severe
I was bed bound and felt like I could go to bed and not wake up the next morning for the entire 6 months
In context ↗ - Now: Much better
Magnesium glycinate has been life changing for me. Took me from moderate to mild.
In context ↗
Read from 35 of their posts and comments; links to the 22 this page draws on
Summary
Sandpiper 18602 had mild ME/CFS for over 15 years before catching COVID in March 2020, which left them bedbound at home for six months. They improved over the next year, but a first Pfizer dose in May 2021 brought back their worst symptoms. Later COVID infections lasted a few weeks. Magnesium glycinate took them from moderate to mild, and fermented foods plus cutting out gluten and dairy helped, but they were sick again in late 2025 and still have ME/CFS.
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What they tried
What they credit
Also tried
Their words about each treatment
- honey · Helped
About 10 years ago, I ate a teaspoon of honey every morning for a year. I never got sick that year.
In context ↗ - vegetarian/vegan diet · Worse
I really wants to be, but everytime I try it I feel unwell.
In context ↗ - Banting diet · Helped
Even while I was on the Banting diet I had some health improvements, like better mood, improvements in sensitivity to sound and light
In context ↗ - Keto · Helped a lot
The two years that I was on Keto were the closest that I’ve felt to normal.
In context ↗ - magnesium glycinate · Helped a lot
Magnesium glycinate has been life changing for me. Took me from moderate to mild.
In context ↗ - quitting caffeine · Helped
I quit caffeine in 2021. I've had a significant improvement in pain, but no change in fatigue, or PEM.
In context ↗ - 30 body weight squats a day · Worse
I did 30 squats yesterday, which led to me sleeping the entire day today.
In context ↗ - chicken soup · Helped
I've been having chicken soup in the morning lately. It has helped a lot
In context ↗ - rice · Helped
I eat rice every day. There's something in rice that helps me feel better.
In context ↗ - Chicory · Worse
I've tried Chicory. I found that I'm also sensitive to it even though it doesn't have caffeine
In context ↗ - stock cubes/powder dissolved in hot water · Helped
Stock cubes/powder dissolved in hot water. It really gives me energy the same way that coffee does.
In context ↗ - fermented foods · Helped a lot
They've helped immensely, especially fermented dairy (homemade yogurt and amasai (similar to kefir)).
In context ↗ - coconut oil · Helped a lot
After reading your post, I recovered by taking coconut oil daily a couple of months ago.
In context ↗ - cutting out gluten · Helped
I used to feel like this until I cut out gluten. I used to binge eat. I find food more satiating nowadays, but I still have mecfs.
In context ↗ - COVID vaccination as treatment · Worse
The thing that reversed my recovery and made me feel awful for months was the covid vaccine.
In context ↗
Approaches: Diet · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | Mild ME/CFS, able to study and work full timeI had mild cfs for 15 years, and then I had long covid.In context ↗ | Mild | |
| March 2020 | COVID-19 infection, bedbound at home for six monthsI got covid in late March 2020, spent six months bed bound at home.In context ↗ | Severe | |
| 2021 | Slow recovery from long COVIDAbout a year into my long covid recoveryIn context ↗ | Moderate | |
| May 2021 | crashed after first Pfizer dose, worst COVID symptoms backThe vaccine brought back all my worst covid symptoms for about three months.In context ↗ | Moderate | |
| March 2024 | Better after the vaccine setback but still below pre-COVID levelSince then I'm a lot better (not back to where i was before covid)In context ↗ | Moderate | |
| February 2025 | Magnesium glycinate took her from moderate to mildMagnesium glycinate has been life changing for me. Took me from moderate to mild.In context ↗ | Mild | Magnesium |
| January 2026 | Still has ME/CFS; cutting gluten stopped binge eatingI find food more satiating nowadays, but I still have mecfs.In context ↗ | Mild |
Adverse events
- Keto and low-carb diets“I’ve made multiple attempts to go back to Keto, everytime I get severe flank pain” In context ↗ Liver or kidney problems
- COVID vaccination as treatment“The thing that reversed my recovery and made me feel awful for months was the covid vaccine.” In context ↗ Made symptoms worse
- Coconut oil“I've experienced a herx reaction (same as the last time), but I'm feeling better with each day.” In context ↗ Herx / die-off reaction
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I get PEM more easily now
In context ↗ - Brain fog
some challenges that may be related to organ damage (cognitive challenges etc.)
In context ↗ - Pain & fibromyalgia
I have daily upper back muscle pain, and back joint pain
In context ↗ - Light & noise sensitivity
improvements in sensitivity to sound and light
In context ↗ - Breathlessness
shortness of breath
In context ↗ - Heart symptoms & palpitations
heart palpitations
In context ↗ - Flu-like symptoms
a constant sore throat
In context ↗
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