Nearly bedbound with ME/CFS, now much better on kratom
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Dec 2023
In their words
- Condition: ME/CFS
Eliminating nicotine helped my CFS.
In context ↗ - At worst: Severe
Im not bed bound severe but it’s pretty close. I can barely walk, even relaxing on the couch hurts and takes effort, can’t even send an email
In context ↗ - Now: Much better
Completely cures me while on it. Pretty severe without it.
In context ↗
Read from 34 of their posts and comments; links to the 6 this page draws on
Summary
Mesa 82783 described being nearly bed bound with ME/CFS, barely able to walk, with head-to-toe aches, inflammation and suicidal thoughts. Kratom cleared their symptoms within about 20 minutes; on it they ran two tech startups, worked out and took long walks, and a missed dose left them unable to get off the couch. They called it addictive, said it still worked nearly three years in and reported normal quarterly blood tests.
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What they tried
What they credit
Also tried
Their words about each treatment
- oral nicotine · Worse
Careful with oral nicotine. Flares up my fatigue, joint pain, inflammation without fail.
In context ↗ - NAD, NR · Helped
Also mitochondria boosting supplements like NAD, NR, PQQ and Ubiquinol and creatine seem to be helping
In context ↗ - kratom · Helped a lot
Kratom pretty much cures me while taking it
In context ↗ - Nicotine patches · Worse
Flares up my fatigue, joint pain, inflammation without fail. ... It was making it a lot worse.
Approaches: Other drugs and medicines · Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| — | became ill with ME/CFS, nearly bed boundIm not bed bound severe but it’s pretty close. I can barely walk, even relaxing on the couch hurts and takes effortIn context ↗ |
| 2023-12-07 | daily kratom; working, exercising, long walksOn it I run multiple tech startups, workout, go for long walks, feel more motivated, no pain, no fatigueIn context ↗ |
| 2023-12-28 | missed a kratom dose for a dayIf I don’t dose, like I tried yesterday, I’m absolutely useless. I couldn’t even get off my couch to sit at my desk yesterday.In context ↗ |
| 2023-12-28 | still doing well on daily kratom nearly three years inI’m roughly 3 years in and am the most productive and creative I’ve been in a while.In context ↗ |
Adverse events
- Nicotine patches“Flares up my fatigue, joint pain, inflammation without fail. ... It was making it a lot worse.” Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
Flares up my fatigue, joint pain, inflammation without fail
In context ↗ - Brain fog
Great for brain fog and focus though
In context ↗ - Muscle weakness
I can barely walk
In context ↗ - Anxiety & low mood
Without it I’m basically on my death bed and contemplating suicide regularly.
In context ↗
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