Long COVID
Mild → near normal
Long COVID hair loss and joint pain, now nearly back to normal after thyroid and iron
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- Not stated
- Last post
- May 2024
In their words
- At worst: Mild
I don't have any weakness besides for not being able to do push ups like I used to.
In context ↗ - Now: Near normal
Hands doing so much better! Hardly any issues. Only thing now that really gets in the way sometimes is insomnia and random dehydration and dry sinus/nervelike pain.
In context ↗ - Began after: COVID
I used to have horrible floaters 4-5 months after COVID.
In context ↗
Read from 25 of their posts and comments; links to the 19 this page draws on
Summary
Marsh 33883 developed long COVID after a COVID-19 infection, with hair loss, burning stiff hands, joint pain, severe depression, anhedonia, acid reflux and insomnia. Fixing thyroid and vitamin D levels plus Nutrafol and hair products brought hair back to 85%; supplementing iron ended the joint pain. Hands improved steadily month by month; by May 2024 they were much better, with insomnia, random dehydration and dry sinus, nerve-like pain remaining.
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What they tried
What they credit
Also tried
iron· Helpedlutein and zeaxanthin gummies· Helpedtaurine· Helpedskin cycling (4 products, tret being one of them)· HelpedHoney face masks· HelpedOmegas· HelpedAstaxanthin· HelpedCordyceps· HelpedRhodiola· Helpedvitamin d3/k2· Helpedbeets· HelpedEmergenC packet· HelpedNutrafol· Helpedrosemary diluted oil in scalp· Helpeddeep conditioning and Olaplex· Helpedghee, caffeine, volufiline, and aquaphor around eyes· Helpedoil pulling and waterpik· HelpedAuvelity(Wellbutrin)· HelpedProzac· Helpedsteam sauna and infrared sauna· Helpedantihistamines· HelpedLDN· Helpedflonase· Helpedliquid ghee up my nose· Helpedwrist braces, ice packs and heating pad· Helpedsun exposure· Helpedgabapentin· No changeTramadol· No changefiller· Worsevitamin C· Not saidBiotin· Not saidvagus nerve resets· Not saidbreath work· Not saidShoemaker-style CIRS protocols· Not saidDiphenhydramine (Benadryl)· Not said
Their words about each treatment
- iron · Helped
I noticed when I supplemented iron my joint pain went away.
In context ↗ - vitamin C · Not said
I'd recommend to keep supplementing irom/vitamin C.
In context ↗ - lutein and zeaxanthin gummies · Helped
specifically for eye floaters - lutein and zeaxanthin gummies & taurine. ... Now most days I have none or just don't notice them
In context ↗ - taurine · Helped
specifically for eye floaters - lutein and zeaxanthin gummies & taurine.
In context ↗ - skin cycling (4 products, tret being one of them) · Helped
The surface of my skin itself is better than its ever been even pre COVID due to this.
In context ↗ - Honey face masks · Helped
Also Honey face masks = great glow.
In context ↗ - Omegas · Helped
Inside out healing I use myself for skin: Omegas, iron, vitamin C, Astaxanthin
In context ↗ - Astaxanthin · Helped
Astaxanthin (helps reduce moisture loss and keeps skin smooth)
In context ↗ - Cordyceps · Helped
Cordyceps (good for energy and skin)
In context ↗ - Rhodiola · Helped
Rhodiola (good for focus and skin)
In context ↗ - vitamin d3/k2 · Helped
Fixed my thyroid levels <2.5 TSH and vitamin D levels (you need a vitamin D/K2 supp)
In context ↗ - EmergenC packet · Helped
EmergenC packet in the morning has helped me.
In context ↗ - Biotin · Not said
Key supplements for hair: Biotin/Nutrufol. (Still trying this
In context ↗ - Nutrafol · Helped
as well as added nutrafol in daily. ... My hair is now 85% back to normal and grows like crazy.
In context ↗ - rosemary diluted oil in scalp · Helped
rosemary diluted oil in scalp 1-2 a week
In context ↗ - deep conditioning and Olaplex · Helped
do deep conditioning every wash ... Olaplex once a week.
In context ↗ - filler · Worse
I tried a tiny bit of filler cuz I was anxious and it made it 10x WORSE.
In context ↗ - ghee, caffeine, volufiline, and aquaphor around eyes · Helped
Now almost year later I almost have no bags again. I use ghee, caffeine, volufiline, and aquaphor all around eyes
In context ↗ - neural retraining program · Helped
I use a different program, but those 3 are well-known. ... when Ive been diligent its really worked
In context ↗ - oil pulling and waterpik · Helped
It cured my cavities (obviously it cant rebuild enamel, but it can remove the cavity itself) and gingivitis.
In context ↗ - valium · Helped
Only once I got prescribed valium did my nervous system calm down
In context ↗ - fixing thyroid levels · Helped
Fixing my thyroid levels have helped me mentally so far!
In context ↗ - Auvelity(Wellbutrin) · Helped
When I was prescribed Auvelity(Wellbutrin) the Anhedonia went away but I think it messed with my vascular issues so had to stop.
In context ↗ - Prozac · Helped
It has only helped with panic attacks and I don't cry anymore.
In context ↗ - steam sauna and infrared sauna · Helped
Both seemed to help.
In context ↗ - vagus nerve resets · Not said
now just starting vagus nerve resets and being more diligent at breath work
In context ↗ - breath work · Not said
being more diligent at breath work
In context ↗ - antihistamines · Helped
They helped with insomnia and sinus inflammation.
In context ↗ - traveling to Florida · Helped a lot
My symptoms completely diminished by 90% when I traveled to Florida on vacation
In context ↗ - LDN · Helped
Joint pain and fatigue so far I believe.
In context ↗ - flonase · Helped
Right now - flonase, liquid ghee up my nose helps.
In context ↗ - gabapentin · No change
I am on gabapentin for potential nerve issues, but still not having a ton of relief.
In context ↗ - Tramadol · No change
Opioids don't work either (tried Tramadol in hospital once).
In context ↗ - Shoemaker-style CIRS protocols · Not said
For me, I am doing the above AND stereotypical treatment protocols with one of the doctors that collaborates with Dr. Shoemaker.
In context ↗ - wrist braces, ice packs and heating pad · Helped
I got some wrist braces, and ice packs for hands. Use a heating pad every night that helps.
In context ↗ - sun exposure · Helped
The sun increases your MSH hormone. ... I have the same experience:)
In context ↗ - Diphenhydramine (Benadryl) · Not said
Benadryl helps me sleep at night but feel like its hurting me in the long run. More dryness, brain fog, etc.
In context ↗
Approaches: Benzodiazepines · Brain retraining · Thyroid hormones
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | COVID-19 infection followed by long COVID symptomsI used to have horrible floaters 4-5 months after COVID.In context ↗ | Not stated | |
| 2023-07-08 | severe depression, anhedonia, hair loss and burning handsAnhedonia is one of my main symptoms right now.In context ↗ | Mild | |
| 2023-08-01 | hair regrew to 85% after fixing thyroid and vitamin D, iron and NutrafolMy hair is now 85% back to normal and grows like crazy.In context ↗ | Mild | Thyroid hormones (unspecified) |
| 2024-05-22 | hands much better; insomnia and dry sinus/nerve-like pain remainHands doing so much better! Hardly any issues.In context ↗ | Near normal |
Adverse events
- Dextromethorphan-bupropion (Auvelity)“When I was prescribed Auvelity(Wellbutrin) the Anhedonia went away but I think it messed with my vascular issues so had to stop.” In context ↗ Made symptoms worse
- Fluoxetine (Prozac)“Prozac has no side effects for me besides for the sexual-related stuff.” In context ↗ Side effects
- Diphenhydramine (Benadryl)“Benadryl helps me sleep at night but feel like its hurting me in the long run. More dryness, brain fog, etc.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogGut problemsHair lossNeuropathy & tinglingPain & fibromyalgiaSleep problemsVision problems
Their words about their symptoms
- Hair loss
60% of my hair fell off. Clumps and clumps in the shower.
In context ↗ - Pain & fibromyalgia
I noticed when I supplemented iron my joint pain went away.
In context ↗ - Neuropathy & tingling
Only thing now that really gets in the way sometimes is insomnia and random dehydration and dry sinus/nervelike pain.
In context ↗ - Sleep problems
Only thing now that really gets in the way sometimes is insomnia
In context ↗ - Anxiety & low mood
I'm still working on my severe depression and healing joint pain
In context ↗ - Brain fog
More dryness, brain fog, etc.
In context ↗ - Gut problems
I experience mild dry nose and bad acid reflux (worse then before).
In context ↗ - Vision problems
I used to have horrible floaters 4-5 months after COVID.
In context ↗
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