Long COVID
Mild → much betterIll 2 years before improving or writingNeeds ongoing treatment
Long COVID with nausea, weakness and brain fog, now much better after pacing and rest
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 2 years
- Last post
- May 2024
In their words
- Condition: Long COVID
I got COVID back in May of this year and bounced back really fast. Then, about 4 months later I started to develop long covid symptoms.
In context ↗ - At worst: Mild
I am not severe though. I was house bound for 1 week and that was my worst crash.
In context ↗ - Now: Much better
A lot better now. My panic attacks have subsided some but I still have a ton of health anomalies due to my long covid.
In context ↗ - Began after: COVID
I got Covid in May while I was pregnant.
Read from 78 of their posts and comments; links to the 35 this page draws on
Summary
Osprey 12043 developed long COVID after a May 2022 infection, with nausea and weakness from around September and later brain fog and palpitations. Gentle exercise, pacing, diet changes and rest were followed by improvement to roughly 80-90%, but overexertion, stress, suspected reinfections and flu caused repeated crashes. By May 2024 they felt a lot better, though still had health anomalies and symptom flare-ups with periods and illness.
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What they tried
What they credit
Also tried
Their words about each treatment
- clomid · Worse
I took clomid to help with my fertility for 1 week. I had sever visual disturbances while on the medication and then I got visual snow for 1 year.
In context ↗ - intermittent fasting · Much worse
Once I started getting LH symptoms, fasting made things much worse. I don't do it anymore.
In context ↗ - iron supplements · Helped
I take iron supplements also and it usually helps a lot. I take about 45 to 65mg every other day (I weigh 160lbs)
In context ↗ - DHEA · Helped
The supplement had a positive effect on my symptoms despite my doubts.
In context ↗ - prenatal vitamins · Worse
I started getting dizziness from taking the vitamins and had to stop
In context ↗ - lowering sugar, alcohol and coffee intake · Helped
Lowering my sugar, alcohol, and coffee intake helped a little.
In context ↗ - ECG reader, pulse ox, blood pressure cuff, glucose monitor · Helped
I have found them very useful sometimes for no other reason than to simply calm me down
In context ↗ - gentle exercise, morning yoga, treadmill walking and light weights · Helped
Very light exercise also helped build my tolerance back up
In context ↗ - pacing · Helped
Rest. I learned how to pace myself and learned how to say no to social activities.
In context ↗ - multivitamin · Helped
Multivitamin and sunlight.
In context ↗ - sunlight · Helped
I sat out in the sun when I could and let the sunlight touch my skin for about 20 minutes a day.
In context ↗ - psychiatric hospital · Worse
Yes. It was a bad idea.
In context ↗ - time · Helped
I didn't do anything. It just slowly improved and went away on its own.
In context ↗
Approaches: Diet · Exercise and activity · Hormones & thyroid · Pacing · Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| September 2022 | Long COVID symptoms beganSo I started getting LC symptoms at the beginning of September maybe earlier.In context ↗ | |
| 2022-10-13 | Fatigue and weakness returned after a small improvementtoday I woke up feeling tired and weak again out of nowhere.In context ↗ | |
| 2022-11-19 | Walked 0.50 miles on treadmill after starting gentle workoutsI started working out a couple of weeks ago and am now finally able to walk .50 miles on my treadmill.In context ↗ | Everyday exercise and activity |
| 2022-12-01 | Ran 0.75 miles for the first time since AugustI ran 0.75 miles today.In context ↗ | Everyday exercise and activity |
| 2022-12-20 | Major crash after birthdays and pushing throughI have been completely off all day. I feel like I am living in a daze.In context ↗ | |
| 2023-01-12 | Suspected reinfection and relapse after 80% recoveryI have completely relapsed after being at 80% for a solid 2 months.In context ↗ | |
| 2023-01-21 | Jogged half a mile on treadmill after a hard crashToday, I was able to get on my treadmill again and jog half a mile (10min).In context ↗ | |
| 2023-03-22 | Work stress and moving house triggered a crashI thought I was maybe 80% to 90% recovered but I think I am crashing again.In context ↗ | |
| 2023-04-21 | Coffee caused palpitations and severe weaknesscaffeine completely wrecks me. I get heart palpitations and I feel extremely weakIn context ↗ | |
| 2023-07-31 | Mostly recovered, with period-related symptom flare-upsI'm a year in and mostly recovered, but my period still brings back old symptoms.In context ↗ | Pacing and the energy envelope |
| 2023-12-04 | Flu triggered a flare-upI recently had the flu and now I'm having all sorts of symptoms again.In context ↗ | |
| 2024-01-09 | Suspected reinfection/cold triggered a relapseI am experiencing a relapse in some symptomsIn context ↗ | |
| 2024-05-15 | Felt a lot better, but still had health anomaliesA lot better now. My panic attacks have subsided some but I still have a ton of health anomalies due to my long covid.In context ↗ |
Adverse events
- Clomiphene (Clomid)“I took clomid to help with my fertility for 1 week. I had sever visual disturbances while on the medication and then I got visual snow for 1 year.” In context ↗ Side effects
- Intermittent fasting“Once I started getting LH symptoms, fasting made things much worse. I don't do it anymore.” In context ↗ Made symptoms worse
- Everyday exercise and activity“I have recently started to do some gentle exercises but I feel very sore and tired after.” In context ↗ Made symptoms worse
- Everyday exercise and activity“I tried the week before too, but I ramped up too fast and crashed for 2 days.” In context ↗ Made symptoms worse
- Everyday exercise and activity“I did get PEM after working out but it has not been super intense and seems to resolve faster now than it did before.” In context ↗ Made symptoms worse
- Everyday exercise and activity“I am now feeling very weak and symptomatic. I hope I recover soon. I pushed too hard today.” In context ↗ Made symptoms worse
- Prenatal vitamins“I was taking prenatal vitamins to help with my PEM unfortunately, I started getting dizziness from taking the vitamins and had to stop.” In context ↗ Side effects
- Everyday exercise and activity“the second I start lifting weights, I get intense PEM. I feel nauseous, week, light headed, and get derealization and start freaking out.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsHeadaches & migraineHeart symptoms & palpitationsMuscle weaknessPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsVision problems
Their words about their symptoms
- Post-exertional malaise
My PEM seems to be proportional to my exertion.
In context ↗ - Brain fog
My brain fog is terrible.
In context ↗ - POTS & dysautonomia
my dizziness is horrible
In context ↗ - Sleep problems
I have insomnia so I don't sleep.
In context ↗ - Pain & fibromyalgia
my muscles became so sore I could beraly walk
In context ↗ - Headaches & migraine
I also have a terrible headache.
In context ↗ - Gut problems
I am dealing with strong bouts of nausea and acid reflux. I also have diarrhea
In context ↗ - Breathlessness
my wheezing has come back
In context ↗ - Heart symptoms & palpitations
I get heart palpitations all the time
In context ↗ - Muscle weakness
The weakness has gotten better.
In context ↗ - Anxiety & low mood
My panic attacks have subsided some
In context ↗ - Vision problems
I am having oscillopsia
In context ↗
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