Housebound with long COVID, now nearly back to normal after iron infusions and lion's mane
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 6 months
- Last post
- Feb 2024
In their words
- Condition: Long COVID
my last infection of COVID that caused LC
In context ↗ - At worst: Severe
I couldn’t even leave my house.
In context ↗ - Now: Near normal
The only thing I still have is a little light sensitivity to lights such as car and stop lights. ... I’m about 98% better.
- Began after: COVID
my last infection of COVID that caused LC
In context ↗
Read from 26 of their posts and comments; links to the 12 this page draws on
Summary
Glacier 57630 got long COVID after a COVID infection in early 2023 and by April was housebound with severe brain fog, derealization, dizziness, panic attacks, migraines, body aches, GI issues and light sensitivity. Iron infusions, which lifted the fog, plus lion's mane, B vitamins and magnesium were credited, and CoQ10 helped settle their headaches. By December 2023 they were about 98% better with only slight light sensitivity left.
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What they tried
What they credit
Also tried
Their words about each treatment
- rest · Helped
For me it was rest, as well as socializing more!
In context ↗ - Lions Mane · Helped
The symptoms I've had take has got better are: ... Lions Mane, Cod Liver Oil, Magnesium oxide, B12, B-Complex, and Iron Infusions.
In context ↗ - Vitamin D · Helped
Try Lions Mane, B Complex, Vitamin D, and Also get a full iron panel which includes your ferritin.
In context ↗ - iron infusions · Helped a lot
ended up getting iron infusions and I believe that was the start of me getting better from LC
In context ↗ - Magnesium oxide · Helped
still have them but Magnesium oxide, Butterbur, and COQ10 has settled them down but I still am in pain
In context ↗ - artifical tears · Not said
Got my eyes checked 2x, was diagnosed with dry eyes, using artifical tears.
In context ↗ - nortriptyline · Worse
neuro prescribed me that and nortriptyline, made me feel like a zombie.. so stopped.
In context ↗
Approaches: Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | COVID infection brings on long COVIDmy last infection of COVID that caused LCIn context ↗ | Not stated | |
| April 2023 | housebound, dizzy spells and panic attacksI couldn’t even leave my house. Having dizzy and lightheadedness spells, panic attacks and the whole 9In context ↗ | Severe | |
| August 2023 | brain fog began lifting with iron infusions; getting out moreafter my first infusion I felt as some of the brain fog liftedIn context ↗ | Mild | Iron infusion / ferritin repletion |
| December 2023 | about 98% better, only slight light sensitivity leftI’m about 98% better.In context ↗ | Near normal | Iron infusion / ferritin repletion |
| February 2024 | doing much betterI’m doing so much better now.In context ↗ | Near normal |
Adverse events
- Nortriptyline (Pamelor)“Yeah neuro prescribed me that and nortriptyline, made me feel like a zombie.. so stopped.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Brain fog
I had SEVERE brain fog and derealization which has cleared up.
In context ↗ - POTS & dysautonomia
dis regulated nervous system, high blood pressure
In context ↗ - Headaches & migraine
still have them but Magnesium oxide, Butterbur, and COQ10 has settled them down
In context ↗ - Light & noise sensitivity
The only thing I still have is a little light sensitivity to lights such as car and stop lights.
In context ↗ - Anxiety & low mood
Mine lasted a few months. Better now.
In context ↗ - Breathlessness
And yes, I would have bouts of being out of breath or shallow breathing.
In context ↗
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