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Long COVID Moderate → near normalIll 17 months before improving or writing

Over a year of long COVID symptoms, now nearly back to normal after getting a puppy

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
17 months
Last post
Feb 2025
In their words
  • At worst: ModerateMoving around still hurts a lot and if I do something like a walk I’ll end up having a very long nap. In context ↗
  • Now: Near normalMy taste and smell are recovering but I suspect my tinnitus is permanent, but overall I’m doing really well. In context ↗
  • Began after: COVIDI caught covid in Oct 2020 In context ↗
Read from 32 of their posts and comments; links to the 20 this page draws on

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Summary

Tundra 23074 caught COVID-19 in October 2020 and spent over a year with body aches, lost taste and smell, tinnitus, insomnia, anxiety and relapses after each Pfizer dose and a suspected Delta reinfection. Their recovery began around March 2022, which they linked to getting a puppy, and by mid-2022 most symptoms had gone. They had their original life back, though tinnitus and taste and smell loss remained.

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What they tried

What they credit

Also tried

fixing my sleeping schedule· Helpednose plug· Helpedgetting a puppy· Helpedmore fibre· No changeskincare products· No changesmoking to help me eat· WorseCOVID vaccination as treatment· Worsedoing whatever I want· Much worseCBT· Not said
Their words about each treatment
  • fixing my sleeping schedule · Helpedbefore I fixed my sleeping schedule I was an insomniac for 4 months and it was the most depressed I’ve ever been In context ↗
  • nose plug · HelpedI have to eat with a nose plug ... It’s what I do because I have the same problem.
  • more fibre · No changeeven after I started eating more fibre it still felt awful and the blood still persisted In context ↗
  • doing whatever I want · Much worseI tried that and relapsed so hard. In context ↗
  • CBT · Not saidI’m going through CBT but it’s my body that makes me feel terrible In context ↗
  • smoking to help me eat · WorseI’d smoke to help me eat but then the racing heart symptom kicked in and I had to stop In context ↗
  • skincare products · No changeNone of my skincare products worked so I just stopped apart from applying cleanser, moisturiser and sunscreen In context ↗
  • getting a puppy · HelpedMy recovery started when I got my puppy. In context ↗
  • time · Helped a lotthey just went away on their own In context ↗
  • COVID vaccination as treatment · WorseI ended up relapsing really badly for 2 weeks because of the first vaccination- it was pure exhaustion, swollen lymph nodes and I found it difficult to eat. In context ↗

Their path

Very severeSevereModerateMildNear normalRecovered12 mo2 y3 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 7 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
October 2020COVID-19; start of long COVIDI caught covid in Oct 2020 In context ↗Not stated
May 2021housebound, pain on moving, long naps, 12-14 hours of sleep a dayMoving around still hurts a lot and if I do something like a walk I’ll end up having a very long nap. In context ↗Moderate
June 2021bad two-week relapse after first Pfizer doseI’m 9 months in and I’m going through a really bad relapse In context ↗Severe
October 2021reinfected, probably Delta; felt terrible all over againmonth 12 I got reinfected with I believe Delta and recovered but I feel terrible all over again. In context ↗Moderate
March 2022recovery accelerated after getting a puppyThe period of March-June 2022 was like an exponential curve in terms of recovery. In context ↗Mild
May 2022most symptoms gone; sleeping 10-12 hours and tiring easilyMost of my symptoms have gone and the only thing I suffer from is 10-12 hours of daily sleeping and falling tired easily. In context ↗Mild
October 2022no long covid symptoms anymoreI don’t have long covid anymore! ... I have no long covid symptoms anymore! In context ↗Near normal
May 2024original life back; taste and smell recovering, tinnitus likely permanentMy taste and smell are recovering but I suspect my tinnitus is permanent, but overall I’m doing really well. In context ↗Near normal

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI pay for it the next day where I struggle to move out of my bed for hours. In context ↗
  • Brain fogI still have brain fog and fatigue In context ↗
  • Sleep problemsI can sleep 12-14 hours a day In context ↗
  • Pain & fibromyalgiaNo more muscle symptoms! I used to wake up with absolutely aching muscles everyday In context ↗
  • Headaches & migraineWhen I used to read it would give me really bad headaches In context ↗
  • Gut problemssevere constipation In context ↗
  • BreathlessnessI would actually become out of breath which scared me In context ↗
  • Heart symptoms & palpitationsmy heart beat races so fast and I’m out of breath In context ↗
  • Muscle weaknessmy whole body feels so heavy In context ↗
  • Neuropathy & tinglingI still feel as if bugs are crawling under my skin In context ↗
  • Flu-like symptomsI still get swollen lymph nodes and fever In context ↗
  • Loss of smell or tasteI can’t taste flavours though but I’m overall okay In context ↗
  • TinnitusI suspect my tinnitus is permanent In context ↗
  • Hair lossmy hair fell out in chunks and ruined my hairline In context ↗

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