Long COVID
Moderate → near normalIll 4 months before improving or writing
Homebound with long COVID, now nearly back to normal after low-dose naltrexone
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 4 months
- Last post
- Jan 2023
In their words
- Condition: Long COVID
started long hauling by early February
In context ↗ - At worst: Moderate
I’ve been sick and basically homebound this entire year
In context ↗ - Now: Near normal
Fatigue did not come back & I’m functioning almost completely normally now. Just dealing with remaining gut issues at this point…
In context ↗ - Began after: COVID
Initial infection January 12-15 of this year (very mild).
Read from 95 of their posts and comments; links to the 40 this page draws on
- Dec 2022
- Oct 2022
- Dec 2022
- Jan 2023
- Aug 2022
- Aug 2022
- Sep 2022
- Jun 2022
- Oct 2022
- Aug 2022
- Oct 2022
- Sep 2022
- Sep 2022
- Sep 2022
- Sep 2022
- Sep 2022
- Sep 2022
- Oct 2022
- Jan 2023
- Sep 2022
- Jan 2023
- Dec 2022
- Jan 2023
- Dec 2022
- Sep 2022
- Sep 2022
- Jun 2022
- Sep 2022
- Jan 2023
- Jan 2023
- Sep 2022
- Sep 2022
- May 2022
- Aug 2022
- Oct 2022
- Aug 2022
- Sep 2022
- Sep 2022
- Aug 2022
- Aug 2022
Summary
Pebble 60413 caught COVID in January 2022 and was homebound with nausea, weight loss, brain fog, anxiety and insomnia for most of the year. Low-dose naltrexone, BPC-157/TB4 peptides, a gut-healing protein powder, a gluten- and dairy-free diet and parasite cleansing were credited for her slow improvement, while kava helped her anxiety-driven insomnia. By her one-year mark most symptoms had resolved and she was lifting again, though gut and mental issues remained and she still had about ten pounds to regain.
Ask Miruvor AI
What they tried
What they credit
Also tried
custom gut healing protein powder· Helped a lotkava· Helped a lotimmune system modulator· Helpedcutting out caffeine, dairy and gluten· Helpedcutting out caffeine, dairy and gluten· Helpedcutting out caffeine, dairy and gluten· HelpedModucare (plant sterols)· Helpedbioidentical progesterone· No changehormone balancing supplement· No changeTHC edibles· Worseweight lifting· Much worseTUDCA· Not saidLauricidin (monolaurin)· Not saidCBN oil· Not saidCBG· Not saidmagnesium glycinate· Not saidcustom liposomal essential oil clearing formula· Not saidnutritional & mass gainer shakes· Not saidraw dairy· Not saidmilk thistle· Not saidchanca piedra· Not saidcastor oil packs· Not saiddry brushing & massage· Not said
Their words about each treatment
- weight lifting · Much worse
I made the mistake of trying to continue my usual programming in the beginning of my long haul (before I knew what was happening) which proved to be a horrible decision. Made things 10x worse
In context ↗ - THC edibles · Worse
once this LH shit started, I started to have BAD panicky anxiety / racing heart from them.
In context ↗ - low dose naltrexone (LDN) · Helped
I’ve been on 4.5mg of LDN for about 3 months now and it definitely has helped me feel better overall.
In context ↗ - BPC157 + TB4 peptides · Helped
I’ve been on a compound of BPC157/TB4 which are healing peptides and I think those are helping too!
In context ↗ - immune system modulator · Helped
Doctor put me on an immune system modulator and that seems to have helped make it less severe but it hasn’t gone away completely.
In context ↗ - custom gut healing protein powder · Helped a lot
My one doctor has a custom gut healing protein powder which I contribute to most of my improvement
In context ↗ - digestive enzymes · Helped
Digestive enzymes helped
In context ↗ - CellCore parasite cleansing protocol · Helped
Since I started parasite cleansing (~7 weeks ago), I’ve at least been maintaining my weight and have stopped losing.
In context ↗ - cutting out caffeine, dairy and gluten · Helped
I cut out ALL caffeine, even tea, and started taking a Kava supplement and FINALLY had relief from the panicky anxiety.
In context ↗ - TUDCA · Not said
TUDCA for biliary support (sluggish liver)
In context ↗ - Lauricidin (monolaurin) · Not said
Lauricidin (OTC supplement of monolaurin, compound derived from coconut oil) is a good, natural anti-viral I’ve been taking too
In context ↗ - kava · Helped a lot
I just recently started taking kava and it has helped tremendously
In context ↗ - CBN oil · Not said
Also taking CBN oil & magnesium glycinate, for what it’s worth.
In context ↗ - CBG · Not said
Can’t say much about the CBG though
In context ↗ - ivermectin · Helped
I’ve been taking it since Friday and I have been feeling better
In context ↗ - Moducare (plant sterols) · Helped
Moducare (plant sterols) is another natural supplement to balance autoimmune issues. Currently on them myself and they have helped with pain and overall malaise.
In context ↗ - custom liposomal essential oil clearing formula · Not said
my other doctor has me on a custom liposomal essential oil “clearing” formula as well to help with the dysbiosis
In context ↗ - nutritional & mass gainer shakes · Not said
I’d try to take in liquid calories from nutritional & mass gainer shakes but even that was sometimes too much
In context ↗ - raw dairy · Not said
My doctor has me on raw dairy for the added nutrients
In context ↗ - bioidentical progesterone · No change
I am on bioidentical progesterone & a hormone balancing supplement so clearly those two aren’t doing shit to help regulate anything.
In context ↗ - milk thistle · Not said
focusing on liver support now (TUDCA, milk thistle, chanca piedra, castor oil packs, etc)
In context ↗ - castor oil packs · Not said
Castor oil liver packs & TUDCA for biliary pathways
In context ↗ - dry brushing & massage · Not said
Dry brushing & massage for lymphatics.
In context ↗ - time · Helped
it honestly just took time before the nausea subsided & my appetite returned
In context ↗
Approaches: Other drugs and medicines · Peptides · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| early February 2022 | long haul began with nausea, lost appetite, weight loss, brain fog and anxiety; homeboundRecovered relatively quickly and felt fine for about 2.5 weeks until early February when all hell broke loose.In context ↗ | Moderate | |
| early 2022 | crashed after trying to keep up usual gym programmingI made the mistake of trying to continue my usual programming in the beginning of my long haul ... Made things 10x worse, hence the 6 months off.In context ↗ | Moderate | |
| April-May 2022 (months 3-4) | anxiety through the roof, derealization, continued weight loss, homeboundOnce I got to months 3-4 anxiety went THROUGH the roof, esp as i continued to lose weight.In context ↗ | Moderate | |
| May 2022 (month 4) | started LDN and BPC-157/TB4 peptides; less time in bed and on the couchI’m almost 8 months in and started LDN in month 4 and have seen significant improvement since then.In context ↗ | Moderate | Low-dose naltrexone |
| August-September 2022 (month 6) | nausea gone, eating normally again, weight loss stoppedAround month 6 is when things turned around and I was able to eat normally again.In context ↗ | Moderate | |
| December 2022 | off LDN, fatigue stayed away, functioning almost completely normallyFatigue did not come back & I’m functioning almost completely normally now.In context ↗ | Near normal | Low-dose naltrexone |
| January 2023 | most symptoms resolved, lifting weights again; gut healing and weight regain ongoingmost things have resolved, FINALLY gaining a bit of weight back, started lifting weights about a month ago (after 6 months off), but still working on healing my gutIn context ↗ | Near normal |
Adverse events
- Cannabis (THC, marijuana)“About 2 months into long hauling, I started having horrible reactions to the edibles…panicky anxiety, heart palpitations, sense of impending doom, weird spasms / jolts etc.” In context ↗ Mood or psychiatric effects
- Antiparasitics“currently going thru the same with parasite cleansing & candida overgrowth. Weird fatigue, go poop, feel better” In context ↗ Herx / die-off reaction
- Antiparasitics“detoxing all the bad bacteria & other nonsense in there which unfortunately has overburdened my liver with the toxins ... Pulling back on the gut detox reduced the skin inflammation” In context ↗ Herx / die-off reaction
Symptoms mentioned
Anxiety & low moodBrain fogGut problemsHair lossHeadaches & migraineHeart symptoms & palpitationsNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulationTinnitusVision problems
Their words about their symptoms
- Post-exertional malaise
joint pain, PEM, and was continually losing weight for months too
In context ↗ - Brain fog
subtle brain fog (no where near as bad as it was a few months ago)
In context ↗ - POTS & dysautonomia
extreme dizziness / lightheadedness
In context ↗ - Sleep problems
So now I have crippling insomnia
In context ↗ - Pain & fibromyalgia
persistent joint pain
In context ↗ - Headaches & migraine
sore throat & headache for maybe 3-4 days
In context ↗ - Gut problems
Still dealing with candida overgrowth, bacterial dysbiosis, leaky gut & parasites
In context ↗ - Heart symptoms & palpitations
insomnia, heart palpitations, panicky anxiety
In context ↗ - Neuropathy & tingling
weird brain zaps / pressure waves while falling asleep
In context ↗ - Anxiety & low mood
panicky anxiety, apathetic depression, extreme detachment / derealization
In context ↗ - Tinnitus
I’ve had some pretty gnarly tinnitus since then
In context ↗ - Temperature regulation
couldn’t regulate my body temp
In context ↗ - Vision problems
Definitely notice way more floaters
In context ↗ - Hair loss
I lost SO much hair from Covid / longhauling and finally eight months later it’s starting to grow back.
In context ↗
Ask Miruvor AI
Similar stories
-
Long COVID gut symptoms, now about 90% after digestive enzymes
A fit man in his late 40s developed long COVID gut symptoms after a mild December 2022 infection: bloating, burping, reflux and abdominal pain, worst in the evenings. Amitriptyline and nortriptyline eased the pain but raised his heart rate, so he stopped…
-
Bedridden then housebound with long COVID, now much better with pacing and LDN
They had ME/CFS from EBV since age 19 and were mild until COVID in February 2020 left them bedridden then housebound for years; exercise advice in 2021 disabled them further. Pacing, rest, low-histamine diet, supplements, LDN, semaglutide and peptides lifted…
-
Long COVID at 50% of normal, nearly back to normal after NAD+ patches and ivermectin
They caught COVID in July 2021 and spent about four months feeling terrible with chest pain that sent them to the ER, severe brain fog and fatigue, rating themselves at 50% of normal. NAD+ iontophoresis patches, ivermectin and other supplements helped; a…
-
Long COVID at 20-40% of baseline, somewhat better with LDN and nicotine patches
Maple 26677 developed long COVID in 2023 after an omicron infection, with tachycardia, breathlessness, brain fog and PEM that left them at 20-40% of baseline while still working. A tick bite brought babesia, and they credited nicotine patches and low-dose…