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Long COVID Severe → recoveredIll 2 years before improving or writing

Bedridden for a month with long COVID, now recovered, crediting metformin and time

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
2 years
Last post
Jun 2024
In their words
  • Condition: Long COVIDI recovered from long Covid, it started beginning 2022 for me In context ↗
  • At worst: SevereI was bedridden for a month ... Since last Sunday im completely bedridden again In context ↗
  • Now: RecoveredI recovered after 2 years! I couldn’t even walk to the supermarket & now I joined the gym In context ↗
  • Began after: COVIDI got Covid, probably Delta 5 of November. It was pretty bad
Read from 14 of their posts and comments; links to the 8 this page draws on

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Summary

Acorn 87044 became ill with long COVID in early 2022, having had COVID in November 2021, and was bedridden for a month with brain fog, fainting, low blood pressure and food intolerances. They relapsed repeatedly, usually after reinfection, with most rounds lasting three months or more though one after vaccination lasted a month. They recovered by autumn 2023, crediting metformin and possibly time, and now work out and are tapering their SSRI, with occasional vertigo remaining.

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What they tried

Their words about each treatment
  • Iron Supplements · Not saidI thought it might have been anemia, because I loose so much blood. But I already take Iron Supplements and blood test turned out fine. In context ↗
  • all vitamins · No changeI took all vitamins , tried antihistamines and aspiring microdosing. But nothing improved. So I stopped In context ↗
  • antihistamines · No changetried antihistamines and aspiring microdosing. But nothing improved. In context ↗
  • ibuprofen · Worsetook it against bad period pain and really regret it. In context ↗
  • naproxen · HelpedI felt better when I was taking naproxen during period, which is an anti-inflammatory In context ↗
  • avoiding inflammatory foods (no gluten, sugar, lactose, coffee, nicotine) · HelpedAnyways avoiding everything which was inflammatory, helped for me. In context ↗
  • SSRI · HelpedSsri really help me cope and I still take them! In context ↗
  • paxlovid · WorseOnes I thought , I recovered from paxlovid (bc I recovered once with it) In context ↗
  • metformin · Helped a loti took it for 14 days, 500mg a day! In context ↗

Approaches: Diet · Other drugs and medicines

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo2 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
beginning 2022became ill with long COVID after a November 2021 infection; bedridden for a monthI got very weak, couldn’t work out anymore ... I was bedridden for a month. In context ↗Severe
spring 2022got better after about a month in bedAfter a bit more over a month in bed. I finally got better. I could do an activity for a day and then would be tired the day after. In context ↗Moderate
late April 2022crashed after dancing an hour and walking; bedridden again with intense brain fogSince last Sunday im completely bedridden again. In context ↗Severe
2022-2023repeated COVID reinfections, each followed by months in bedany time I recover I’d get Covid again and bam another 3 months in bed In context ↗Severe
autumn 2023recovered after taking metformin for 14 days, two months after the last relapsethe last thing I tried was metformin and I totally recovered for the first time In context ↗RecoveredMetformin
2024-06-02recovered after two years; joined a gym and is tapering SSRI, with occasional vertigoI recovered after 2 years! I couldn’t even walk to the supermarket & now I joined the gym and going of ssri. In context ↗RecoveredMetformin

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaisecouldn’t go to the supermarket without sleeping for 4 hours after In context ↗
  • Brain fogI got extremely tired and brain fogged. In context ↗
  • POTS & dysautonomiaI would faint when standing up or standing for too long. In context ↗
  • Pain & fibromyalgiajoint pain (hip and knee) In context ↗
  • Gut problemsdigestion issues etc. In context ↗
  • BreathlessnessI had everything, shortness of breath In context ↗
  • Neuropathy & tinglingbrain and face tingles (pins and needles) In context ↗
  • Anxiety & low moodI told them I got depressed and anxiety attacks because of being sick for so long. In context ↗
  • Loss of smell or tastefish and chicken smells extremely rotten and I cannot eat it anymore In context ↗

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