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Long COVID Moderate → no benefitIll for 10 months

Long COVID numbness, brain fog and air hunger, with only some good weeks

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill for
10 months
Last post
Aug 2025
In their words
  • Condition: Long COVIDit's what I guess made me realize I must be experiencing long Covid In context ↗
  • At worst: ModerateI couldn't do the simplest tasks like holding a pen, typing at my computer or even using my phone. In context ↗
  • Now: No benefitHad some good weeks but the air hunger always seems to come back In context ↗
  • Began after: COVIDI contracted Covid back in November last year
Read from 2 of their posts and comments; links to the 2 this page draws on

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Summary

At 21, Falcon 78181 caught COVID in November 2024 and did not bounce back, developing whole-body numbness and tingling that left them unable to hold a pen, type or use a phone, along with severe brain fog, bladder irritation and intermittent air hunger. Six months in, the numbness still came and went in the forearms and hands. By August 2025 there had been some good weeks, but the air hunger kept returning and sleep was poor.

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What they tried

Their words about each treatment
  • antibiotics · Not saidPretty sure I had a UTI (blood in my urine was what made me get on antibiotics) In context ↗

Their path

Very severeSevereModerateMildNear normalRecoveredonset3 mo6 mo9 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they were
November 2024COVID infection followed by whole-body numbness and loss of hand useI couldn't do the simplest tasks like holding a pen, typing at my computer or even using my phone In context ↗Moderate
January 2025bladder irritation, UTI then yeast infectionAnother symptom that popped up was bladder irritation about a month after I was initially sick In context ↗Moderate
—some good weeks between bouts of air hungerHad some good weeks but the air hunger always seems to come back In context ↗Mild
August 2025air hunger returned a few days before; struggling to sleepit decided to come back a few days ago and i'm struggling to sleep In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Brain fogmy brain fog has been so bad since I got sick it's difficult to remember everything In context ↗
  • Neuropathy & tinglingCurrently still have this numb sensation in my forearms and hands In context ↗
  • BreathlessnessHad some good weeks but the air hunger always seems to come back In context ↗
  • Sleep problemsi'm struggling to sleep In context ↗
  • Loss of smell or tasteknew it was Covid when I lost my sense of taste In context ↗
  • Pain & fibromyalgiaSitting on furniture or laying in bed was enough to feel like my body was being stabbed In context ↗
  • Muscle weaknessHard to work my fingers some days for sure In context ↗

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