Long COVID left them reclusive; somewhat better with serrapeptase and red light therapy
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Jun 2025
In their words
- Condition: Long COVID
I had longcovid before it was cool
In context ↗ - At worst: Moderate
the deep moderate ME/CFS like symptoms
In context ↗ - Now: Somewhat better
I recovered from the fatigue, breathing, smell, taste (some minor flucuations here and there though in those senses), BUT I have all the neuro and possibly autoimmune head garbage with weird vision.
In context ↗
Read from 23 of their posts and comments; links to the 18 this page draws on
Summary
Kite 68156 was ill for over six years with ME/CFS-type symptoms, living reclusively after chemical and EMF sensitivities began and unable to tolerate perfume or screens. Serrapeptase, herbal antibacterials and propolis helped keep them functional, and red light therapy gave some success; fatigue, breathing and smell and taste recovered, but constant head pressure, tinnitus, burning lips/mouth and face/head neuro issues continued. Lumbrokinase and nicotine patches made them sicker.
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What they tried
What they credit
Also tried
Their words about each treatment
- serrapeptase (serra) · Helped
I'm on serra, it's the only thing that's been truely helping me function
In context ↗ - nicotine patches · Worse
I feel the energy and some relaxation at the same time for an hour or so but then I'd feel wretched and even more fatigued after
In context ↗ - vitamin D3 (vegan 2500 iu dry rice-flour form) · Not said
I actually needed to rebound off of calcifediol and get on the vegan 2500 iu dry only rice flour additive form D3
In context ↗ - avoidance of screens, wireless radiation, perfumes and chemicals · Helped
The only way to manage it all I found is unfortunately avoidance
In context ↗ - red light therapy (and laser appointment) · Helped
I'm having some success in certain areas from serrapeptase, and red light therapy
In context ↗ - herbal antibiotics / antibacterial and antiviral herbals · Helped
The things that help me the most are herbal antibiotics and enzymes that degrade proteins
In context ↗ - propolis · Helped
I take propolis every day, it just keeps the general neuroinflmmation down and gives me a little more energy.
In context ↗ - cistus · Helped
a lot of what works for people in the Lyme camp works for me like I drink cistus every day
In context ↗ - methyl-B12 · Helped
I take methyl-b12 every day but I been taking that for more years than I can remember now because if I don't I permanently crash.
In context ↗ - fasting for 3 days at a time · Helped
I tried fasting though for 3 days at a time, barely any results from that but a little bit clearer head and senses.
In context ↗ - papain and caricain · Helped
Papain and caricain were alright for a while but eventually they turned on me
In context ↗ - Cutler protocol (chelation, ALA) · No change
I've been on the Cutler protocol for years before and reached max tolerance of all chelators, still nothing.
In context ↗ - strict diet avoiding sugar, bread and land meat · Helped
I just avoid sugar at all costs since that makes things real bad, real fast.
In context ↗ - largely fasted eating pattern · Helped
I tend to live in a largely fasted state save for breakfast in the morning and I'll have a dinner every couple days
In context ↗ - THC edible · Much worse
Horribly, I can't handle even the tiniest nibble of an edible.
In context ↗ - lumbrokinase · Worse
I got a surge in it from attempting to start lumbrokinase and had to back off. I got super sick
In context ↗ - Candifense · Helped
I decided to try a different enzyme complex more geared towards candida control called Candifense
In context ↗ - brain retraining · Not said
Over the years there is little I haven't tried from supplements, to diets, to even the brain retraining crap.
In context ↗
Approaches: Alternative therapies · Anticoagulants · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 5.9 years after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| about 2019 | fell illI been in this black hole for over 6 yearsIn context ↗ | Not stated |
| — | chemical and EMF sensitivity began; worst health problemsmy worst problems actually began health wise after I developed multiple chemical sensitivity and EMF sensitivity at the same timeIn context ↗ | Moderate |
| 2025-05-28 | improved on fatigue and PEM; serrapeptase kept them functioningI'm on serra, it's the only thing that's been truely helping me functionIn context ↗ | Mild |
| 2025-05-28 | tinnitus and head/ear pressure flare after HDMI cable and screen useI still almost screwed myself from using the HDMI cable in my monitor, tinnitus and head/ear pressure is still flaring from that mistake days agoIn context ↗ | Moderate |
| 2025-06-27 | brutal flare after starting lumbrokinaseI got a surge in it from attempting to start lumbrokinase and had to back off. I got super sickIn context ↗ | Moderate |
| 2025-06-27 | mind and senses brightened within an hour of CandifenseI decided to try a different enzyme complex more geared towards candida control called Candifense and within the hour my mind and sense brightened up quite a bit and I feel lighterIn context ↗ | Mild |
| 2025-06-30 | functional and clearer sensorily on serrapeptase, herbals and red light therapyI'm having some success in certain areas from serrapeptase, and red light therapyIn context ↗ | Mild |
Adverse events
- Serrapeptase“I also when I first started was very herxy in a similar way.” In context ↗ Herx / die-off reaction
- Nicotine patches“I feel the energy and some relaxation at the same time for an hour or so but then I'd feel wretched and even more fatigued after” In context ↗ Made symptoms worse
- Vitamin D and sun exposure“after a period of feeling more fatigued on it but tolerating it things eventually normalized” In context ↗ Made symptoms worse
- “if I add the one's that breakdown what meat is made of like papain for example this will flare my head inflammation but make me feel better energy wise” In context ↗ Autoimmune or inflammatory flare
- “Papain and caricain were alright for a while but eventually they turned on me” In context ↗ Made symptoms worse
- “ALA can help the neuropathy in my head/face but is extremely overstimulating” In context ↗ Side effects
- Lumbrokinase“I got a surge in it from attempting to start lumbrokinase and had to back off. I got super sick” In context ↗ Made symptoms worse
- “I'm not taking another capsule of the Candifense one tomorrow because it also makes my digestive system feel like crap” In context ↗ Gut side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
though I improved on the general fatigue and PEM
In context ↗ - Brain fog
it hits me a day later with the worst of the brain fog
In context ↗ - Anxiety & low mood
ridiculous anxiety
In context ↗ - Headaches & migraine
the 24/7 electric head pressure
In context ↗ - Tinnitus
tinnitus and head/ear pressure is still flaring from that mistake days ago
In context ↗ - Neuropathy & tingling
I get the inflamed tingling, burning lips/mouth too
In context ↗ - Vision problems
I have all the neuro and possibly autoimmune head garbage with weird vision
In context ↗ - Loss of smell or taste
I recovered from the fatigue, breathing, smell, taste
In context ↗ - POTS & dysautonomia
I just wake up feeling like I'm going to pass out
In context ↗
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