Four months in bed with long COVID, somewhat better; acyclovir and methylene blue helped
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Apr 2026
In their words
- Condition: Long COVID
I have had LC since 22 and have gone through it all
In context ↗ - At worst: Severe
4 months in bed and heaps of research led me to a dark place
In context ↗ - Now: Somewhat better
biggest improvement to my brain fiction in 4 years. Hasn’t helped much else unfortunately
In context ↗ - Began after: a vaccination
all my problems started after 2nd dose of Pfizer
Read from 35 of their posts and comments; links to the 19 this page draws on
Summary
After a second Pfizer dose in late 2021 they developed long COVID; COVID and an end-of-2023 reinfection worsened it, adding muscle wasting, chronic fatigue, extreme anxiety and four months in bed. Acyclovir cleared brain fog for a couple of months and a short famciclovir course cleared headaches for the first time in two years, with a month-long famciclovir trial under way, benzodiazepines eased panic within hours, and methylene blue gave the biggest cognitive gain in four years. GI, memory, vision and joint problems persisted.
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What they tried
What they credit
Also tried
Their words about each treatment
- kept training and pushing through · Much worse
I had something similar and kept training and pushing through ended up having a heart attack.
In context ↗ - Acyclovir · Helped a lot
I did a week of Acyclovir and cleared my brainfog for a couple of months going to give it another go soon
In context ↗ - Lexotan · Helped a lot
Benzos work for me more than anything else Ive tried, 70% better
In context ↗ - melatonin gummies · Not said
Also started taking melatonin gummies before I go to sleep as I was waking at 2am
In context ↗ - famciclovir · Not said
Im currently trying a month of famciclovir to see if I get any relief.
In context ↗ - natto · No change
The idea behind natto is it clears the fibrin I did it for a while and didn’t see any results
In context ↗ - a course of antibiotics · Helped
Biggest one of improvements Ive had In the last 2 years was after a course of antibiotics I seem to improve dramatically for about 3 months
In context ↗ - colonoscopy · Helped
the next best improvement was after a colonoscopy I put it down to removing all bacteria from your GI tract
In context ↗ - meloxicam · Helped
I took a meloxicam yesterday and had a reasonable day Im going to keep it up and see how it goes
In context ↗ - LDN ( low dose naltrexone) · No change
Some people get see relief for the brain fog by using LDN ( low dose naltrexone)it did not work for me though.
In context ↗ - lipothermal glutathione · Helped
I have been taking lipothermal glutathione it did coincides with reduced headaches
In context ↗ - methylene blue · Helped a lot
Yes Ive been taking MB for about 3 months know biggest improvement to my brain fiction in 4 years.
In context ↗ - time · Helped
The Dpdr just went with time
In context ↗ - COVID vaccination as treatment · Not said
Mine was late 21 have has myocarditis multiple times now. Evidence now showing myocarditis and pericarditis are a result of the vaccine not of the virus.
In context ↗
Approaches: Antibiotics · Benzodiazepines · Other drugs and medicines
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2021 | long COVID began about five weeks after a second Pfizer doseall my problems started after 2nd dose of Pfizer ... my symptoms started about 5 weeks after the second shot | Mild | |
| 2022 | COVID infection made symptoms worse8 months before I had actually gotten covid which made the symptoms worseIn context ↗ | Mild | |
| end of 2023 | reinfection brought muscle wasting, extreme fatigue, anxiety and four months in beda second infection at the end of 23 gave me all new symptoms of muscle wasting, chronic fatigue, extreme anxiety an depression ... 4 months in bed and heaps of research led me to a dark placeIn context ↗ | Severe | |
| early 2024 | five-day acyclovir course cleared brain fog for a couple of monthsI did a 5 day course of Acyclovir earlier this year and had a huge improvement that unfortunately subsidedIn context ↗ | Moderate | Acyclovir |
| July 2024 | Lexotan eased panic and dark thoughts within hours1.5mg Lexotan solved this for me in hours ... I went from curled up shaking in bed to a shitty version of normal almost immediatelyIn context ↗ | Moderate | Bromazepam (Lexotan) |
| July 2025 | methylene blue improved cognition within a monthI have had a huge Improvement after a month on methylene blue ... biggest improvement to my brain fiction in 4 years | Moderate | Methylene blue |
| October 2025 | cognitive gains held; GI, muscle, vision and joint problems persistedI have found methylene blue has helped cognitively more than anything elseIn context ↗ | Moderate |
Adverse events
- COVID vaccination as treatment“Mine was late 21 have has myocarditis multiple times now. Evidence now showing myocarditis and pericarditis are a result of the vaccine not of the virus.” In context ↗ Other
- COVID vaccination as treatment“4 years after my shot the shoulder that I received it in feels like it’s rotting from the inside” In context ↗ Other
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I would be sick 3-4 days after every time I exercised
In context ↗ - Brain fog
I now have muscle waisting severe GI issues, blurry vision, memory issues
In context ↗ - Sleep problems
I was waking at 2am and laying there with horrible thoughts till I got out of bed in the morning
In context ↗ - Pain & fibromyalgia
I am still in pain but I am nicer than ever
In context ↗ - Headaches & migraine
I have been taking lipothermal glutathione it did coincides with reduced headaches
In context ↗ - Gut problems
severe GI issues, blurry vision, memory issues
In context ↗ - Light & noise sensitivity
Loud sounds and bright lights feel like being stabbed in the brain
In context ↗ - Heart symptoms & palpitations
Mine was late 21 have has myocarditis multiple times now
In context ↗ - Muscle weakness
all new symptoms of muscle wasting, chronic fatigue
In context ↗ - Neuropathy & tingling
small fibre neuropathy and on and on and on
In context ↗ - Anxiety & low mood
extreme anxiety an depression which Ive never had in my life
In context ↗
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