Unable to walk and largely bedbound with ME/CFS, much better on diet and acupuncture
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving or writing
- 1 year
- Last post
- Jan 2026
In their words
- Condition: ME/CFS
My 17 yo daughter has long COVID / me-cfs
In context ↗ - At worst: Very severe
for four months she couldn't leave the house ... or sometimes even lift a glass of water
In context ↗ - Now: Much better
It brought her from about 20 percent to 55 percent within less than a week.
In context ↗ - Began after: another virus
she caught several colds back-to-back. One may have been covid.
Summary
A 16-year-old girl fell ill in January 2025 after back-to-back colds. She became severely light and heat sensitive, could not use screens or walk, and for four months was largely bedbound. A strict anti-candida, gluten-free, low-sugar diet with high-dose vitamin D and supplements brought her from about 20 to 55 percent of normal within days; acupuncture helped head pressure. She could walk 10+ minutes again but still had limits.
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What they tried
What they credit
Also tried
Their words about each treatment
- plant-based Anti-Candida diet · Helped a lot
this very strict diet definitely made a big difference
In context ↗ - black walnut · Helped
using black walnut to kill candida
In context ↗ - vitamin D · Helped
We started giving her 15000 IU per day of vitamin d
In context ↗ - probiotics · Helped
introducing probiotics to replace the candida
In context ↗ - Boswella · Helped
Boswella to lower inflammation
In context ↗ - butchers broom · Helped
butchers broom to improve blood circulation
In context ↗ - huperzine a · Helped
huperzine a to improve nerve receptors and ATP
In context ↗ - other vitamins · Not said
A few other vitamins.
In context ↗ - steroids · Worse
The optometrist gave her steroids, which seemed to help for 2-3 weeks but then the symptoms came back. More steroids but just a downward spiral from there.
In context ↗ - acupuncture · Helped
The other thing that she says is making a big difference is acupuncture.
In context ↗ - l-glutamine · Not said
Get l-glutamine. It heals the gut, clears out dysbiosis and helps the brain too, even.
In context ↗ - l-reuterei · Helped
The best probiotic we found was l-reuterei.
In context ↗ - bpc-157 · Not said
We also use the enzyme bpc-157
In context ↗ - black linseed oil · Not said
Finally, we use black linseed oil
In context ↗
Approaches: Alternative therapies · Diet · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| January 2025 | fell ill after back-to-back coldsLast January, just after turning 16, she caught several colds back-to-back. One may have been covid. She started feeling fatigued and feeling pressure in her head, and started having bad eye symptomsIn context ↗ | Moderate |
| spring 2025 | bedbound in a dark room, limbs and neck paralysis, ER visitfor four months she couldn't leave the house ... or sometimes even lift a glass of waterIn context ↗ | Very severe |
| June 2025 | dramatic shift within days of starting the candida diet and supplementsThe cocktail and diet changes seem to be working rapidly. She's gone from bed bound in a dark room to being able to go to the swimming pool.In context ↗ | Moderate |
| 2026-01-11 | ups and downs, some things workingWe've had ups / downs but have done a ton of research and some things are working.In context ↗ | Mild |
Adverse events
- Corticosteroid pulses“When her eyes went wonky they gave her steroids, which only made her gut worse.” In context ↗ Gut side effects
- Corticosteroid pulses“More steroids but just a downward spiral from there.” In context ↗ Made symptoms worse
Symptoms mentioned
Their words about their symptoms
- Gut problems
bad ibs since birth
In context ↗ - Vision problems
eye fatigue, ptosis, blurry vision
In context ↗ - Light & noise sensitivity
Her light sensitivity and delete problems subsided.
In context ↗ - Temperature regulation
became severely light and heat sensitive
In context ↗ - Muscle weakness
At one point she couldn't move her limbs or hold her head up.
In context ↗ - Neuropathy & tingling
the zapping feelings in her joints became unbelievable fatigue
In context ↗ - Headaches & migraine
She gets pressure in her head and headaches and the acupuncture seems to relieve the fluid or pressure in her head.
In context ↗ - Flu-like symptoms
Developed sinus pain and sore throat.
In context ↗ - Brain fog
She doesn't become too tired to play a board game anymore and has less brain fog.
In context ↗ - POTS & dysautonomia
She has the type of ME that is accompanied with orthostatic hypotension. So she gets dizzy when she bends her head downward
In context ↗
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