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Long COVID Mild → near normalIll 15 months before improving or writingNeeds ongoing treatment

Long COVID brain fog and fatigue, now near normal after carnivore diet and paid program

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
15 months
Last post
Oct 2023
In their words
  • Condition: Long COVIDI was reinfected in July and never got better. In context ↗
  • At worst: Mildmy suffering seems to be mild compared to many of you In context ↗
  • Now: Near normalIt was very expensive but I am now 90% back to normal and still climbing. In context ↗
  • Began after: COVIDI was reinfected in July and never got better. In context ↗
Read from 53 of their posts and comments; links to the 23 this page draws on

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Summary

After a July 2022 COVID reinfection (their first infection cleared in about six weeks) they developed long COVID with brain fog, dizziness, headaches, tinnitus, tingling and fatigue, worst at months 3-4. A carnivore diet helped their brain fog, and a paid recovery program they joined in March 2023 took them to about 90% of normal by October 2023, still climbing. Red light therapy caused a reaction that took about six weeks to recover from.

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Asking aboutPebble 43883’s story

What they tried

Their words about each treatment
  • B vitamins · HelpedB vitamins all the way. Those are the only ones I can actually feel. In context ↗
  • benfotiamine · Not saidI took some benfotiamine, along with some other supplements, in September - not a lot, maybe used 1/3 of the bottle. In context ↗
  • red light therapy · Much worseI had a bad reaction to the red light too. Not sure what but brought on headaches and body pain for several weeks. In context ↗
  • Fish oil · Not saidWhat I continue to take: ... - Fish oil In context ↗
  • CoQ10 · Not saidWhat I continue to take: ... - CoQ10 In context ↗
  • Magnesium L-threonate · HelpedLow doses of melatonin. Magnesium L-threonate before bed. In context ↗
  • D3 + k2 · Not saidWhat I continue to take: ... - D3 + k2 In context ↗
  • D-Ribose powder · Not saidWhat I continue to take: ... - D-Ribose powder In context ↗
  • Lion's Mane · Not saidWhat I continue to take: ... - Lion's Mane In context ↗
  • NAD+ · HelpedThe NAD+ is second in line In context ↗
  • carnivore diet · Helped a lotThe carnivore diet has been doing good things for me and I'm only a week in. My brain fog is significantly better. In context ↗
  • keto diet · HelpedI'm doing keto instead right now and it's beneficial, but carnivore was better. In context ↗
  • zyrtec · HelpedShe prescribed zyrtec, flonase, and sudafed daily. ... I finally got my ear to pop after 3 weeks of the meds. In context ↗
  • GABA · HelpedGABA, ashwaganda, B vitamins complex. ... Those were all things that had a good effect on me. In context ↗
  • melatonin · HelpedToning down my B vitamin intake helped. No caffeine. Low doses of melatonin. In context ↗
  • smoking weed · Not saidBut I also can't decide if smoking weed has been helpful to LC or not. In context ↗
  • rest · HelpedOne mistake I made was rushing to get back to work. Both mental and physical rest are crucial. In context ↗
  • coconut water and aloe juice · HelpedI had gastritis a few years before covid was a thing. ... coconut water and aloe juice helped. In context ↗
  • cfsrecovery program · Helped a lotI finally gave in and joined his program back in March. It was very expensive but I am now 90% back to normal and still climbing. In context ↗
  • COVID vaccination as treatment · Not saidI had three vaccines with a normal 5 days of feeling trashy. They gave me my first taste of the dizzy-drunk feeling In context ↗

Approaches: Amino acids and carnitine · Brain retraining · Pacing · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
July 2022COVID reinfection; never recovered, long COVID beginsI was reinfected in July and never got better. Same symptoms as the first time: brain fog, dizziness, fatigue, headaches, tinnitus, body pain, body tingling. In context ↗Mild
October-November 2022Worst months, mostly neurological symptomsmy worst months were 3-4 In context ↗Mild
2022-10-22crashed after second red light therapy sessionI did my 2nd one today and felt yucky as soon as I got out. I've felt worse as the day went on. In context ↗Mild
November 2022felt almost normal on carnivore dietOne week on carnivore and I was feeling almost normal aside from my inner ear problems. In context ↗Near normal
late November 2022fell off carnivore diet at Thanksgiving, switched to ketoThanksgiving derailed me. I couldn't find the strength to have a plate of just turkey. In context ↗Mild
2022-12-30steady slow improvementI'm at 6 months and steadily (but slooooowly) improving. In context ↗Mild
2023-08-22living quite normally after following recovery programMuch better. Not 100% yet but I'm living quite normally. ... his methods helped me make huge progress In context ↗Near normalBrain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust)
2023-10-16about 90% back to normal after joining paid programI am now 90% back to normal and still climbing. In context ↗Near normalBrain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust)

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Brain fogbrain fog, dizziness, fatigue, headaches, tinnitus, body pain, body tingling In context ↗
  • POTS & dysautonomiaI often describe my dizziness like being drunk. ... since I changed my diet In context ↗
  • Headaches & migraineIt brought on body pain (I think it was nerve pain) and constant headaches. In context ↗
  • TinnitusThe tinnitus is still there, not as bad, but the dizziness has cleared up. In context ↗
  • Neuropathy & tinglingMine came on with infection and never left. Has dissipated a little over time. In context ↗
  • Pain & fibromyalgiaI'm mostly over the body pain but the headaches still come on In context ↗
  • Vision problemsbrain fog and dizziness are biggest symptoms, followed by tinnitus, body tingling, headaches, blurry vision and fatigue In context ↗
  • Post-exertional malaiseI do experience an increase in symptoms if I eat lots of sugar or do too much physical activity. In context ↗

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