ME/CFS
Very severe → recoveredIll 10 years before improving
Julie’s SEVERE ME/CFS Full Recovery - What Saved Her
- Condition
- ME/CFS
- At worst
- Very severe (bedbound, unable to do basic care)
- Ill before improving
- 10 years
- Published
- No date given
Read the original ↗
In their words
- Condition: ME/CFS
she was diagnosed with chronic fatigue syndrome or any cfs
Watch the video ↗From the video’s captions - At worst: Very severe
i was laying on my bed and i was like the only thing i could do was breathing i wasn't even showering
Watch the video ↗From the video’s captions - Now: Recovered
i just did so many 12-hour days like i just really went all out and i feel okay
Watch the video ↗From the video’s captions - Began after: a bacterial or tick-borne infection
before i had a uti a urinary tract infection and in order to treat that uti i got prescribed antibiotics
Summary
Julie Morin says her illness began at 18 and that a ciprofloxacin course was the cause, followed by years in a wheelchair and months bedridden after a 2017 Lyme treatment with steroids. From 2018 she credits brain retraining, meditation and visualisation, plus sleep routines, whole foods, sunlight and grounding. Recovery came gradually over a few years, and she now works full time. She paid 4,000 euros for specialist tests.
Ask Miruvor AI
What they tried
What they credit
Also tried
Psychological treatment (talk therapy)· HelpedSleep routine (early bed, dark and cool room, no food after 7:30pm)· HelpedWhole-food, nutrient-dense diet· HelpedGrounding (bare feet on the earth)· HelpedGratitude and love practice· HelpedMedical Medium books and podcast· HelpedActivity tracker ring and app· No changeCiprofloxacin (Cipro)· Much worse18-month Lyme antibiotic treatment· Much worsesteroids (cortisone pills)· Much worse
Their words about each treatment
- Ciprofloxacin (Cipro) · Much worse
so the medicine i took is called cipro ciprofloxacin
Watch the video ↗From the video’s captions - Psychological treatment (talk therapy) · Helped
it actually really helped me because i think it can help any everyone
Watch the video ↗From the video’s captions - 18-month Lyme antibiotic treatment · Much worse
in the span of three weeks i went from i don't know i think i was at like 30 of my capacities maybe to one percent
Watch the video ↗From the video’s captions - Sleep routine (early bed, dark and cool room, no food after 7:30pm) · Helped
i actually started seeing better energy in the morning
Watch the video ↗From the video’s captions - Whole-food, nutrient-dense diet · Helped
as long as it was whole unprocessed foods i was i was good to go and that really helped with you know giving that energy back
Watch the video ↗From the video’s captions - Grounding (bare feet on the earth) · Helped
when you touch the ground with your bare feet or hands or whatever your bare skin
Watch the video ↗From the video’s captions - Gratitude and love practice · Helped
i was trying to foster those feelings of gratitude because i knew they were healing my body
Watch the video ↗From the video’s captions - Meditation (Headspace app) · Helped a lot
that's when meditation came in and i realized the in insane power of meditations
Watch the video ↗From the video’s captions - Brain retraining (visualisation, affirmations, hypnosis) · Helped a lot
there was also a big part of brainery training that was essential and i can't state this enough
Watch the video ↗From the video’s captions - Gradual movement · Helped
it was literally one step after the other
Watch the video ↗From the video’s captions - Pacing · Helped
the whole pacing thing of course is very important to emphasize the fact that those new programs are actually taking something positive
Watch the video ↗From the video’s captions - Medical Medium books and podcast · Helped
i also discovered the work of medical medium
Watch the video ↗From the video’s captions - Activity tracker ring and app · No change
i did use bio hiking tools before i had a ring for three years
Watch the video ↗From the video’s captions - sunlight exposure, bed by the window and wheeled outside · Helped
i was just going outside my dad would just reel the wheelchair and then i was like facebook just receiving the thing and just charging myself
Watch the video ↗From the video’s captions - steroids (cortisone pills) · Much worse
when you have urine toxicity and you take steroids like cortisone pills it's a it's a death cocktail ... that's why i went from 30 to 1
Watch the video ↗From the video’s captions
Approaches: CBT & mindset · Alternative therapies · Brain retraining · Diet · Mind-body practices · Physiotherapy and rehab
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| age 18 | digestive problems and burning foot pain during stressful studies; on crutchesfor a year and a half i was using crutches i couldn't really walkWatch the video ↗From the video’s captions | Moderate | |
| age 19 to 20 | foot pain went away and she walked againafter a year and a half it just went better it just went away i started walking again and it was fineWatch the video ↗From the video’s captions | Near normal | |
| about age 22 | 24 hours of leg paralysis after elliptical biking, lingering symptomssuddenly my whole legs went into a can of muscle paralysis for about 24 hoursWatch the video ↗From the video’s captions | Mild | |
| January 2015, age 25 | whole-body paralysis during yoga, hospital, then two years in a wheelchairone day it was in january 2015 i started doing some yoga exercises on the floor and then all of a sudden my whole body went into muscle paralysisWatch the video ↗From the video’s captions | Moderate | |
| September 2017 | crashed on Lyme antibiotics and steroids; bedbound, cared for by her fatherin the span of three weeks i went from i don't know i think i was at like 30 of my capacities maybe to one percentWatch the video ↗From the video’s captions | Very severe | |
| two or three months after January 2018 | small gains after starting her sleep, food, sunlight and meditation routinethat was like maybe two three months after starting all thisWatch the video ↗From the video’s captions | Very severe | Meditation, yoga, breathwork |
| — | walked outside again, out of the wheelchairthat literally just pulled me out of my wheelchair that was that visionWatch the video ↗From the video’s captions | Not stated | Brain retraining programs (DNRS, Gupta, ANS Rewire, Primal Trust) |
| about 2022 | working full weeks and playing volleyballjust before this interview i was um playing volleyball in the pool after a whole week of workingWatch the video ↗From the video’s captions | Recovered |
Adverse events
- Lyme / co-infection protocols“in the span of three weeks i went from i don't know i think i was at like 30 of my capacities maybe to one percent” Watch the video ↗From the video’s captions Made symptoms worse
- “when you have urine toxicity and you take steroids like cortisone pills it's a it's a death cocktail” Watch the video ↗From the video’s captions Made symptoms worse
Symptoms mentioned
Brain fogGut problemsMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseVision problems
Their words about their symptoms
- Post-exertional malaise
that was sending me to 16 hours of muscle paralysis of whole body paralysis
Watch the video ↗From the video’s captions - Brain fog
enormous brain fog dizziness
Watch the video ↗From the video’s captions - POTS & dysautonomia
i had very bad vertigo also at one point
Watch the video ↗From the video’s captions - Neuropathy & tingling
it was kind of like it was burning pain when i was walking
Watch the video ↗From the video’s captions - Pain & fibromyalgia
my pain level went from maybe 8 out of 10 to a 3 out of 10
Watch the video ↗From the video’s captions - Gut problems
i had chronic diarrhea i just couldn't digest my food
Watch the video ↗From the video’s captions - Muscle weakness
i just couldn't use my muscles not even to lift my arm
Watch the video ↗From the video’s captions - Vision problems
night terrors blurry vision everything you're describing
Watch the video ↗From the video’s captions
Ask Miruvor AI
Similar stories
-
Severely ill with ME/CFS for ten years, now near normal after nervous-system work
She first developed fatigue at the start of A levels in her teens and was severely ill for about ten years, rarely leaving the house, unable to work, with PEM, pain and depression. Viruses, moves and stress repeatedly set her back. From about 2022 she…
-
Couchbound with long COVID for most of a year, now recovered with time and rest
They fell ill with COVID-19 in April 2020 at 25 and were couchbound, using a wheelchair for outings, for most of a year before recovering with time and rest. An Omicron reinfection in January 2022 brought a second bout; after a crash in late June/early July,…
-
Housebound with long COVID, somewhat better after diet and paced exercise
Fell ill with long COVID in September 2022 and was largely housebound with breathlessness, presyncope, head pressure and anxiety. A strict anti-inflammatory diet, iron, B12 and vitamin D, and paced walking and indoor biking brought big gains, but a September…
-
Not enough detail to draw a path
Bedbound with ME/CFS, now almost back to normal after brain retraining and carnivore diet
Fox 26082 became ill around 17, after mononucleosis, and later had a bedbound period, eventually diagnosed with ME/CFS. She credits brain retraining (ANS Rewire) and a carnivore diet, along with meditation, therapy, sleep and careful activity…