Long COVID
Severe → somewhat betterIll 3.5 years before improving or writing
Bedbound with long COVID POTS, somewhat better on antihistamines and ivabradine
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 3.5 years
- Last post
- Jun 2026
In their words
- At worst: Severe
I’m basically bed bound now. Haven’t showered in 2 weeks.
In context ↗ - Now: Somewhat better
Doing a lot better than I was then but still not fully recovered! But it’s like night and day compared
In context ↗ - Began after: COVID
I got covid in July and it was mild.
In context ↗
Read from 86 of their posts and comments; links to the 25 this page draws on
Summary
Morgan, a 24-year-old man, developed mild long COVID after a July 2022 infection, then became bedbound with POTS, brain fog and fatigue after a fourth Pfizer dose in December 2022; he was hospitalised and malnourished in February 2023. He improved slowly over three years, crediting antihistamines, ivabradine, low-histamine diet, gut work and lymphatic drainage; thiamine made him feel awful. By June 2026 he was much better but not fully recovered.
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What they tried
What they credit
Also tried
creon enzymes· Helpedgluten and lactose free diet· Helpedgluten and lactose free diet· Helpedvaltrex· Helpedlactolose· Helpedrotational smoothies· Helpedwalking exercises· Worsethiamine· Worse4th booster· Much worse
Their words about each treatment
- creon enzymes · Helped
my weight had stabilised after starting creon enzymes and I was back to dancing nearly everyday around the house
In context ↗ - 4th booster · Much worse
3 days after the vaccine I felt incredibly faint like I was sinking and my heart rate shot up to 150-160
In context ↗ - walking exercises · Worse
tried to do some walking exercises for 5 minutes ... now I’m dealing with awful fatigue
In context ↗ - gluten and lactose free diet · Helped
Cutting out those foods so far has given me diarrhoea but I hope that stops once my body adjusts
In context ↗ - thiamine · Worse
I started thiamine a few days ago ... However my brain fog and fatigue is WORSE
In context ↗ - valtrex · Helped
When I did a week of valtrex these symptoms went away for me, however I stopped it due to worsening fatigue. all the symptoms came back
In context ↗ - Acupressure mats · Helped
Acupressure mats and meditation during the worst flares where I felt I was back to day one
In context ↗ - low histamine diet · Helped
Things I believe helped me: ... Low histamine diet.
In context ↗ - lactolose · Helped
Gut work! I cannot stress that enough. Lactolose & gut teas with rotational smoothies.
In context ↗ - Antihistamines · Helped
Things I believe helped me: ... Antihistamines!
In context ↗ - Ivabradine · Helped
Ivabradine for POTs.
In context ↗ - Lymphatic drainage · Helped
Lymphatic drainage once a month or once every few months.
In context ↗
Approaches: H1 antihistamines · POTS medication · Alternative therapies · Diet · Mind-body practices
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened |
|---|---|
| July 2022 | mild long COVID after COVID infectionI got covid in July and it was mild.In context ↗ |
| January 1, 2023 | major deterioration with POTS/dysautonomia after 4th Pfizer vaccine3 days after the vaccine I felt incredibly faint like I was sinking and my heart rate shot up to 150-160.In context ↗ |
| February 2023 | hospitalised for 2 weeks, malnourished, unable to tolerate sound/lightwas hospitalised in February for 2 weeks due to extreme deterioration and loss of weight (diagnosed malnourished then). was unable to handle sound light or move/sleep back thenIn context ↗ |
| July 2023 | slow improvements but still barely 15-20% recoveredwhile I’m grateful I’ve had slow slow slow improvements, I’m still not anywhere near recovered.In context ↗ |
| August 2023 | some improvement; still not recoveredBetter than I was then but still not recovered at allIn context ↗ |
| November 2023 | cold set backI had a cold a week ago (not Covid) and it’s set me back a bit.In context ↗ |
| January 2024 | more tolerable since August; good days/weeksSince august it’s certainly been more tolerable and I even have had several good ... days/weeks at a time.In context ↗ |
| February 2024 | bad reaction to thiamine with panic attacks and high blood pressureafter I had a bad reaction to thiamine (again) last week and have had constant panic attacks/adrenaline dumps my blood pressure is high againIn context ↗ |
| June 2024 | anhedonia significantly improved; other symptoms up and downAnhedonia has significantly improved (don’t want to jinx this).In context ↗ |
| September 2024 | flare, mostly bedridden againAnd then mostly bedridden again for 2 flares in 2024, one in February-March and one in SeptemberIn context ↗ |
| November 2024 | low-histamine/gluten/dairy diet die-off flaresince starting the diet I think I’ve been experiencing die off as a lot of my normal symptoms (especially the neuro ones & fatigue) began to flareIn context ↗ |
| January 2026 | still mostly housebound but able to travel and create music; credits antihistamines, ivabradine, diet, gut work and lymphatic drainageThings I believe helped me: Antihistamines! ... Ivabradine for POTs. ... Low histamine diet.In context ↗ |
| June 2026 | doing a lot better than 2023 but still not fully recoveredDoing a lot better than I was then but still not fully recovered! But it’s like night and day comparedIn context ↗ |
Adverse events
- COVID vaccination as treatment“My doctors advised me to get it and it made me go from 90% to 20%” In context ↗ Made symptoms worse
- COVID vaccination as treatment“3 days after the vaccine I felt incredibly faint like I was sinking and my heart rate shot up to 150-160” In context ↗ Heart rhythm problems
- COVID vaccination as treatment“the 4th booster gave me Dysautonomia & Anhedonia. Nearly a month of hell” In context ↗ Mood or psychiatric effects
- Thiamine / benfotiamine“my brain fog and fatigue is WORSE ... I stopped taking it it made me sick” Made symptoms worse
- Thiamine / benfotiamine“but after I had a bad reaction to thiamine (again) last week and have had constant panic attacks/adrenaline dumps my blood pressure is high again” In context ↗ Mood or psychiatric effects
- Valtrex / valacyclovir“When I did a week of valtrex these symptoms went away for me, however I stopped it due to worsening fatigue” In context ↗ Made symptoms worse
- Low-histamine diet“I think I’ve been experiencing die off as a lot of my normal symptoms (especially the neuro ones & fatigue) began to flare” In context ↗ Herx / die-off reaction
- Gluten-free diet, Elimination diets (other)“Cutting out those foods so far has given me diarrhoea but I hope that stops once my body adjusts” In context ↗ Gut side effects
- Walking“tried to do some walking exercises for 5 minutes to help with the pots symptoms ... and now I’m dealing with awful fatigue” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessFlu-like symptomsGut problemsHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityLoss of smell or tasteMast cell (MCAS) & allergiesMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulationVision problems
Their words about their symptoms
- Post-exertional malaise
I absolutely have had energy crashes.
In context ↗ - Brain fog
Brain Fog (again fluctuating)
In context ↗ - POTS & dysautonomia
I have since been diagnosed with POTs & MCAs
In context ↗ - Sleep problems
extreme insomnia
In context ↗ - Pain & fibromyalgia
flare my joints/migraines/blood pooling
In context ↗ - Headaches & migraine
dizziness/vertigo, migraines
In context ↗ - Gut problems
my gut has severe dysbiosis.
In context ↗ - Light & noise sensitivity
only symptoms that seem to have faded almost completely are sensory overload
In context ↗ - Breathlessness
shortness of breath & adrenaline surges
In context ↗ - Muscle weakness
my weight and muscles have plummeted
In context ↗ - Neuropathy & tingling
I definitely still get numb feet
In context ↗ - Anxiety & low mood
extreme anxiety
In context ↗ - Flu-like symptoms
Swollen ear and neck glands.
In context ↗ - Loss of smell or taste
weird taste in mouth
In context ↗ - Temperature regulation
temperature deregulation (somewhat improved still can’t sweat but can feel cold now
In context ↗ - Vision problems
Dizziness / Vertigo / Visual Snow
In context ↗
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