Long COVID improving, then reinfections left them worse than ever and unable to work
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3 years
- Last post
- Aug 2024
In their words
- Condition: Long COVID
I’m 22 months+ and yes to the above
In context ↗ - At worst: Moderate
I’m pretty much the worst off I’ve ever been right now. I’m not giving up hope but not being able to work is scary
In context ↗ - Now: Relapsed
I WAS improving, but I got reinfected twice last year and both times made me much worse. I’m pretty much the worst off I’ve ever been right now.
In context ↗ - Began after: COVID
2 Years.
In context ↗
Read from 6 of their posts and comments; links to the 6 this page draws on
Summary
Dew 71812 has had long COVID since mid-2021, with chest pain, headaches, breathlessness, dizziness, POTS and neuropathy; panic attacks and a choking throat sensation eased by about 10-11 months and they were improving. Two COVID reinfections in 2023 then left them worse than ever and unable to work. By August 2024 they reacted to anything they ate or drank and had visited the ER; antihistamines and a low-histamine diet had done nothing.
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What they tried
Also tried
Their words about each treatment
- cutting out alcohol and processed foods · No change
I tried cutting out alcohol and processed foods
In context ↗ - loratidine · No change
Antihistamines don't seem to help any, I take loratidine and pepcid twice daily
In context ↗ - pepcid · No change
I take loratidine and pepcid twice daily
In context ↗ - Quercetin · No change
antihistamines and Quercetin have done nothing for me
In context ↗ - low histamine diet · No change
neither did a low histamine diet
In context ↗ - Vit C · No change
Quercitin and Vit C also seem to do nothing
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 years after onset: the story doesn’t say how ill they were before that. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| onset | long COVID onset | Not stated |
| around 9-10 months in | choking throat sensation and panic attacks easedAround 9-10 months that symptom went away.In context ↗ | Not stated |
| 2023 | two COVID reinfections, worse than ever and unable to workI got reinfected twice last year and both times made me much worse.In context ↗ | Moderate |
| August 2024 | reactions to all food and drink, dehydration, ER visitFor the past month I seem to get horrible reactions to anything I eat or drink.In context ↗ | Moderate |
Symptoms mentioned
Their words about their symptoms
- Brain fog
Brain fog and depersonalization as well but I also had those pre-COVID.
In context ↗ - POTS & dysautonomia
I definitely have POTS and neuropathy
In context ↗ - Mast cell (MCAS) & allergies
I thought maybe MCAS since I get randomly itchy, tight throat
In context ↗ - Sleep problems
tinnitus, insomnia
In context ↗ - Headaches & migraine
Chest pain, headaches, fatigue, SOB, dizziness are my worst symptoms.
In context ↗ - Neuropathy & tingling
my face and hands tingle and go numb
In context ↗ - Anxiety & low mood
Used to get panic attacks as well but those subsided about 11 months in.
In context ↗