Long COVID with week-long crashes after outings, now much better on iron and vitamin D
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Jun 2026
In their words
- Condition: Long COVID
Still having covid fatigue.
In context ↗ - At worst: Moderate
now I'm able to get out of bed more often and not be as affected by PEM
In context ↗ - Now: Much better
I'm 2 years in and both have gotten so much better.
In context ↗ - Began after: COVID
body prob. remembering the trauma of first getting covid 1 year ago
Read from 20 of their posts and comments; links to the 17 this page draws on
Summary
A long COVID patient fell ill in mid-2022 and later lost a job to a wrist problem; they used to crash for a week after outings. Iron for a ferritin of 4 and vitamin D helped overall; guanfacine and NAC were followed by better memory, while iron led to less PEM and more activity. A prolactinoma drug was stopped over heart palpitations. They had cut work hours by 2025, and by 2026 fatigue persisted though brain fog had largely gone.
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What they tried
What they credit
Also tried
Their words about each treatment
- Adderall · Helped
Took adderall this morning and noticed wow my sinus congestion, sneezing, and runny nose that I thought was allergies was all gone/cleared.
In context ↗ - Allegra, Benadryl and Claritin · No change
doctors prescribed me Allegra, Benadryl, and Flonase spray and nothing worked
In context ↗ - cabergoline (caborgolin) · Worse
I started taking caborgolin but ended up having to stop due to heart palpitations for a week
In context ↗ - hormonal birth control · Not said
OBGYN had me on hormonal birth control and iron as a substitute
In context ↗ - iron pills · Helped
I've been taking iron pills due to low ferritin levels (it was at a 4 mid last year) and now I'm able to get out of bed more often and not be as affected by PEM.
In context ↗ - Vitamin D2 and D3 · Helped
after taking Vitamin D2 and D3, I noticed a great change in mood
In context ↗ - guanfacine · Helped
I've noticed better working memory and am able to form coherent sentences on guafacine after 6 months
In context ↗ - NAC · Helped
I have added NAC, an antioxident, recently which has helped my working memory a lot
In context ↗ - American ginseng · Helped
I started on American ginseng last weekendand have noticed an increase in energy.
In context ↗ - amino acids · Not said
Currently testing out adding in amino acids.
In context ↗ - Suja green juice · Helped
recently added Suja green juice into my daily diet. Feeling a lot better since.
In context ↗ - chiropractor · No change
After going through chiropractor, physical therapy, and acupuncture with nothing working
In context ↗ - cortisteroid shots · Not said
they ended up sending me to get cortisteroid shots and taking a daily Tylenol
In context ↗ - HRT w/ intaking estradiol and progestin · Not said
I've tried both but didn't work out so trying out HRT w/ intaking estradiol and progestin
In context ↗ - prozac · Not said
I went on adderall, guanfacine, and prozac.
In context ↗ - methylated vitamin b complex · Helped
Lately what helped was adding methylated vitamin b complex.
In context ↗ - antihistamine diet · Not said
I do try to be on a antihistamine diet as much as I can
In context ↗ - PPI · No change
Can't figure out if it's due to low stomach acid cus tried PPI and didn't help.
In context ↗ - behind the counter nasal spray · Helped
behind the counter nasal spray from the pharmacy instantly helped me today
In context ↗
Approaches: Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The first step with a time is 14 months after onset: the story doesn’t say how ill they were before that. The dashed part: the story doesn’t say when. 2 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2022 | COVID infection followed by long COVIDthe trauma of first getting covid 1 year agoIn context ↗ | Not stated | |
| first year | mostly in bed, unable to use a mouse well enough to work, week-long crashes after going outI'm able to get out of bed more often and not be as affected by PEMIn context ↗ | Moderate | |
| 2023-07 | relapse with vertigo and shortness of breathHaving some symptoms relapses this past week ... like vertigo and shortness of breathIn context ↗ | Not stated | |
| 2023-09 | felt much better overall with vitamin D and ironI've been feeling much better overall w/ a mix of vitamin D and iron.In context ↗ | Moderate | Iron infusion / ferritin repletion |
| 2024-02 | better working memory, out of bed more often, less affected by PEMI've noticed better working memory and am able to form coherent sentences on guafacine after 6 monthsIn context ↗ | Mild | Guanfacine |
| 2024-06 | spoke coherently again and crashes shortened from a week to two daysI'm 2 years in and both have gotten so much better ... if I go out one day, I crash for 2 days but at least it's not a week anymoreIn context ↗ | Mild | |
| 2025-02 | stepped down and cut work hours while still recoveringhas to step down and work less hoursIn context ↗ | Mild | |
| 2025-06 | felt better after travelling to hot vacation spotsI was wondering how come I felt better after traveling to hot vacation spotsIn context ↗ | Mild | |
| 2026-06 | brain fog and memory problems largely gone, fatigue persistsStill having covid fatigue. The memory issues and brain fog have pretty much gone away.In context ↗ | Mild |
Adverse events
- “I started taking caborgolin but ended up having to stop due to heart palpitations for a week.” In context ↗ Heart rhythm problems
- “I had heart palps and couldn't focus working nor sleep. So had to get off and switch to HRT.” In context ↗ Side effects
- “Meds gave me side effects so I've yet to find something that can shrink it or at least keep it at bay.” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
if I go out one day, I crash for 2 days but at least it's not a week anymore
In context ↗ - Brain fog
The memory issues and brain fog have pretty much gone away
In context ↗ - POTS & dysautonomia
Less affected by POTS
In context ↗ - Mast cell (MCAS) & allergies
I was suffering from ragweed allergies for last few weeks
In context ↗ - Sleep problems
Still have tons of sleep issues though
In context ↗ - Pain & fibromyalgia
Thankfully the joint pains have been occurring less often.
In context ↗ - Gut problems
I'm having cramps on my right side under rib cage and abdominal pain as well.
In context ↗ - Breathlessness
like vertigo and shortness of breath
In context ↗ - Heart symptoms & palpitations
I had heart palps and couldn't focus working nor sleep
In context ↗ - Neuropathy & tingling
I also had tingly calves and couldn't sleep
In context ↗ - Temperature regulation
my feet and legs get so cold when I'm just trying to sleep at night
In context ↗
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