Long COVID
Mild → somewhat betterIll 8 months before improving or writingNeeds ongoing treatment
Long COVID with brain fog and unrefreshing sleep, somewhat better with CPAP and diet
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 8 months
- Last post
- Sep 2026
In their words
- Condition: Long COVID
Got LC in 2022, many symptoms at a time
In context ↗ - At worst: Mild
I can go forward with a normal life (if it wasn't for the brain fog)
In context ↗ - Now: Somewhat better
While my energy isn't 100% of what is was, I can go forward with a normal life (if it wasn't for the brain fog) ... still suffering from it
- Began after: COVID
Got covid Jan/2022.
In context ↗ - Says they never had: Breathlessness
I did not have shortness of breath as you.
Read from 85 of their posts and comments; links to the 37 this page draws on
Summary
Ocean 95998 caught COVID in January 2022 and developed long COVID with brain fog, dysautonomia, histamine intolerance and unrefreshing sleep, plus sleep apnoea. CPAP largely resolved the fatigue and headaches, and a low-histamine diet, antihistamines, ketotifen and cromolyn eased MCAS symptoms. Brain fog and fragmented sleep persisted, and by 2024 their food tolerance had shrunk to potato and chicken.
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What they tried
What they credit
Also tried
coffee· Helpedcold baths / cold showers· Helpedagomelatine (Valdoxan)· Helpedeating less at night· HelpedMontelukast· No changehigh dose thiamine (B1)· No changeLDN· No changeacyclovir· No changeB12· No changecopper· No changevitamin D· No changevitamin C· No changeFludrocortisone· No changeIvabradine· No changepropranolol· No changeH2 antihistamines· No changeguanfacine· No changeSSRI (Lexapro)· WorseAripiprazole· Worse
Their words about each treatment
- coffee · Helped
coffee aliviates 10% of my brain fog
In context ↗ - CPAP · Helped
My fatigue was virtually eliminated after I discovered I developed serious sleep apnea and treated with CPAP
In context ↗ - low histamine diet · Helped a lot
Low histamine diet is the only thing that helped make it manageable
In context ↗ - cold baths / cold showers · Helped
I'm taking the cold baths everyday, they indeed help a little.
In context ↗ - adenoids and tonsils removal · Helped
so removing them improved a lot, but only by time not that I noticed it
In context ↗ - Montelukast · No change
Have tried it for 2 weeks before sleep, no side effects and no effects on any of my post-covid symptoms
In context ↗ - high dose thiamine (B1) · No change
Did it for a month, no effects, good or bad.
In context ↗ - 3rd COVID vaccine dose · Helped
on my 3rd my fatigue was mainly gone
In context ↗ - SSRI (Lexapro) · Worse
After covid I tried going back to SSRI, it was terrible for my brain fog because my pressure went down A LOT.
In context ↗ - agomelatine (Valdoxan) · Helped
Agomelatine helped to calm the anxiety.
In context ↗ - LDN · No change
Felt zero difference after using 2 weeks 4mg
In context ↗ - Aripiprazole · Worse
Ended up lowering my blood pressure which is already low, same bad effects as when I had SSRI post-COVID
In context ↗ - acyclovir · No change
Had to take it after surgery, didn't make any effect
In context ↗ - eating less at night · Helped
the only thing that helped with it was low histamine diet, eating less at night
In context ↗ - B12 · No change
Didn't help a bit
In context ↗ - copper · No change
I supplemented and felt no difference
In context ↗ - vitamin D · No change
copper, vitamin D, vitamin C, SSRI, Fludrocortisone, Ivabradine and a few other I don't remember right now
In context ↗ - Vyvanse · Helped
Vyvanse (only thing able to increase my blood pressure and make me not feel fatigued by the day
In context ↗ - propranolol · No change
propranolol is a sympathomimetic so it ends up making no effect whatsoever on my blood pressure
In context ↗ - antihistamines (H1) · Helped
Anti histamines help 90% of my symptoms except for tachycardia and brain fog.
In context ↗ - H2 antihistamines · No change
H2 didn't help me, H1 thankfully does
In context ↗ - ketotifen · Helped
The only thing that helped with tachycardia was ketotifen.
In context ↗ - guanfacine · No change
I tried guanfacine, it sadly didn't help me.
In context ↗ - sodium cromolyn · Helped
it's the only thing which reduced my brain fog slightly
In context ↗
Approaches: H1 antihistamines · Antihistamines & MCAS · Diet · Stimulants · Surgery & structural · Vaccination
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| January 2022 | caught COVID-19 and long COVID symptoms beganGot covid Jan/2022.In context ↗ | |
| about 6 months in (mid 2022) | many symptoms at once; developed depression and anxiety on top of long COVID; sleep was so bad they were suicidal at one pointafter 6 months of suffering through this and seeing my dreams getting crushed I developed depression and anxiety again on top of LCIn context ↗ | |
| 8 months post-COVID (around September 2022) | fatigue came under control with CPAP and histamine intolerance with diet managementFatigue went under control after using CPAP and histamine intolerance under control after 8 months post-COVID+diet managementIn context ↗ | CPAP and sleep apnoea treatment |
| November 2023 | Vyvanse lifted energy by raising blood pressure, other symptoms unchangedVyvanse (only thing able to increase my blood pressure and make me not feel fatigued by the day, all the rest remains the same)In context ↗ | Lisdexamfetamine (Vyvanse, Elvanse) |
| October 2023 onward | MCAS worsened and safe foods shrank to potato, with major weight lossNow the only food I don't react to is potato. I lost all my other safe foods.In context ↗ | |
| May 2024 | antihistamines used to regain weight after months of only eating potatoI only took antihistamines in May of this year because I needed to gain weight back after only eating potato for months.In context ↗ | H1 antihistamines (unspecified) |
| March 2025 | nasal cromolyn with the low-histamine diet stopped the tachycardiaSodium cromolyn in nasal form solved my tachycardia when following a low histamine diet.In context ↗ | |
| September 2026 | still has brain fog and broken sleep but avoids trigger foods to keep blood pressure and heart rate stablestill suffering from it but I've recognized the foods I need to avoid to not be with low blood pressure, tachycardiaIn context ↗ |
Adverse events
- Escitalopram (Lexapro), Agomelatine (Valdoxan)“After covid I tried going back to SSRI, it was terrible for my brain fog because my pressure went down A LOT.” In context ↗ Made symptoms worse
- Escitalopram (Lexapro)“But after LC I couldn't tolerate it, so my doctor prescribed an antidepressant which is not a SSRI, called agomelatine.” In context ↗ Low blood pressure or fainting
- Agomelatine (Valdoxan)“it has been working well (on depression and anxiety alone) with no side-effects (just increased anxiety on the first week)” In context ↗ Mood or psychiatric effects
- Low-dose Abilify / aripiprazole“Ended up lowering my blood pressure which is already low, same bad effects as when I had SSRI post-COVID” In context ↗ Low blood pressure or fainting
- Copper“It did, it was like if I ate high histamine foods, I imagine it was because of the excipients within the pill.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogGut problemsHeadaches & migraineHeart symptoms & palpitationsMast cell (MCAS) & allergiesPOTS & dysautonomiaSleep problemsTemperature regulationVision problems
Their words about their symptoms
- Brain fog
the brain fog, sleep problems persists
In context ↗ - POTS & dysautonomia
Dysautonomia related things like sleep apnea, VVS, tiredness and tachycardia
In context ↗ - Mast cell (MCAS) & allergies
Today the only foods I don't react to are potato and chicken.
In context ↗ - Sleep problems
My sleep is still terribly fragmented and I still don't feel as refreshed after sleep as I normally would
In context ↗ - Gut problems
MCAS, low histamine diet made it get better.
In context ↗ - Heart symptoms & palpitations
low blood pressure, tachycardia and other allergy symptoms
In context ↗ - Anxiety & low mood
I developed depression and anxiety again on top of LC
In context ↗ - Headaches & migraine
The brain fog won't necessarily go away (mine didn't) but never had headache again
In context ↗ - Temperature regulation
I had them in my first 1-2 months after Covid.
In context ↗ - Vision problems
worsened the symptoms of temporal myopia
In context ↗
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