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Long COVID Moderate → relapsedIll 2.5 years before improving or writing

COVID pneumonia and delirium, long COVID improved then returned after reinfection

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
2.5 years
Last post
Dec 2022
In their words
  • Condition: Long COVIDI’m still dealing with long Covid symptoms. In context ↗
  • At worst: ModerateEven vacuuming was hard as hell. In context ↗
  • Now: RelapsedAll my progress down the drain. In context ↗
  • Began after: COVIDYes I got covid in the first wave in 2020 and almost lost my life.
Read from 7 of their posts and comments; links to the 6 this page draws on

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Summary

Jenny caught COVID in the first wave in 2020 and was severely ill with pneumonia, high fevers and delirium, then left with brain fog, fatigue and numb skin. An omicron reinfection in December 2021 brought all her long-haul symptoms back and set her progress back. By late 2022 she was walking her dogs up to 5,000 steps a day and focusing on nutrition, but still battled brain fog, extreme fatigue and new migraines.

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What they tried

Their words about each treatment
  • vegan diet · HelpedI went vegan this year to help my body and I just feel great In context ↗
  • vitamins · Not saidI’m taking my vitamins went vegan and even walking up to 3 miles now In context ↗
  • walking · HelpedI’m finally able to walk up to 3 miles without losing my breath. ... I went from doing 2000 steps per day to now I’m at 5000 steps per day
  • breathing exercises · Not saidI did breathing exercises to keep my anxiety down and sat in silence just breathing and to help clear up my pneumonia. In context ↗
  • giving it to God · HelpedI allowed myself 5 min to panic but then I personally gave it to God and he took it all away In context ↗
  • 10 day antibiotic · Not saidI’m currently on a 10 day antibiotic In context ↗
  • Antidepressants (unspecified) · WorseI do suffer from Depression but I don’t take meds they recommend. They make me feel worse. In context ↗

Approaches: Diet · Exercise and activity

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happenedAfter
2020COVID-19 in the first wave; pneumonia, 104 fever, deliriumI got covid in the first wave in 2020 and almost lost my life. In context ↗
mid-2021adjusted to the damage but still unable to do muchTook me a year just to adjust to the damage. In context ↗
December 2021omicron reinfection brought back all symptomsAll my progress down the drain. I only got a little sick but it brought back ALL MY SYMPTOMS back In context ↗
January 2022walking up to 3 miles without losing her breathI’m finally able to walk up to 3 miles without losing my breath. In context ↗Walking
December 2022walking dogs, building up steps; still brain fog and fatigueI went from doing 2000 steps per day to now I’m at 5000 steps per day. In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Brain fogBrain fog and extreme fatigue is what I have never stopped battling with since getting covid. In context ↗
  • Sleep problemsWanting to sleep all the time and some brain fog returned to a more consistent. In context ↗
  • Headaches & migraineNow migraines after second infection. In context ↗
  • Heart symptoms & palpitationsI am having or feeling heart issue ugh. In context ↗
  • Neuropathy & tinglingNumbness all over the body Nerve damage possibly she said. In context ↗
  • Anxiety & low moodI do suffer from Depression but I don’t take meds they recommend. In context ↗
  • Loss of smell or tasteI lost my smell this time around and taste. In context ↗
  • BreathlessnessThese last few months have been a little rough on my breathing In context ↗
  • Vision problemsI am seeing some flashing lights underneath my left eye In context ↗
  • Pain & fibromyalgialow grade fevers aches in my body and ribs from coughing In context ↗
  • Temperature regulationday 4,5 high fevers and congestion with chest distress In context ↗
  • Gut problemsI was delirious, lost control of my bladder and was throwing up In context ↗
  • Flu-like symptomsHowever, it was like having low grade flu I was down 3 days In context ↗

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