In bed with ME/CFS flares, much better with rest and antihistamines
- Condition
- ME/CFS
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 4.5 years
- Last post
- May 2026
In their words
- Condition: ME/CFS
I'm 28 and have ME/CFS.
In context ↗ - At worst: Moderate
I used to work really physical jobs and I don't think there's no way I could now when there's way too many days out of each month I hardly feel like I can leave bed.
In context ↗ - Now: Much better
my symptoms have improved over time little by little too but this is the one thing I still can't seem to shake.
In context ↗ - Began after: COVID
I Initially got covid around October 2021.
In context ↗ - Says they never had: Light & noise sensitivity
I never felt overly sensitive to screens, noise, or lights unless I was already feeling pretty rough.
Read from 21 of their posts and comments; links to the 14 this page draws on
Summary
Plover 72068 developed long COVID after a COVID infection in October 2021, with near-weekly flares of burning pain, fatigue, soreness, dry eyes and brain fog that kept them in bed. Flares slowly spaced out over two years, helped by rest, time, antihistamines and creatine. By late 2024 they could do heavy physical work again, though morning fatigue and post-exertional crashes persisted into 2026.
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What they tried
What they credit
Also tried
Their words about each treatment
- anything for pain or fever · No change
Taking anything for pain or fever doesn't really help sometimes either
In context ↗ - ice pack compress · Helped
giving the ice pack compress around my body a try right now. Even if it is a placebo effect it at least feels soothing
In context ↗ - rest and pacing · Helped
I rest when I can and pace myself.
In context ↗ - antihistamines (loratadine) · Helped
antihistamines seemed to help me from feeling so run down like a preventative measure which I still take
In context ↗ - time · Helped
I feel like the one thing that may have helped me the most was just time and rest unfortunately
In context ↗ - Fluvoxamine · Not said
I'm prescribed fluvoxamine for anxiety and other general issues
In context ↗ - fish oil · Not said
The only other meds I take are Fluvoxamine which I was already on long before covid, and fish oil as a supplement.
In context ↗ - drinking plenty of water · No change
I don't think it really makes a difference in how I feel in the mornings drinking plenty of it
In context ↗ - creatine · Helped
I've been taking creatine over 3 weeks now ... Definitely seems like it's improved my fatigue and muscle aching symptoms so far
In context ↗ - different vitamins · Not said
Currently been supplementing with different vitamins to see if I notice any positive differences at all
In context ↗
Approaches: H1 antihistamines · Pacing · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| October 2021 | COVID-19 infection; long COVID symptoms beganI Initially got covid around October 2021.In context ↗ | Moderate | |
| 2023-12-04 | two years of near-weekly flare-ups keeping them in bedGoing on two years of long covid symptoms. Every time I have a flare up which is around every couple weeks or so ... so sore that I hardly feel like leaving bed or doing anything physical.In context ↗ | Moderate | |
| 2024-01-07 | flare-up, laid in bed earlyAnother flare up again today and feeling like I have to lay in bed early.In context ↗ | Moderate | |
| 2024-07-26 | breathlessness, chest pains and cough gone; fatigue and burning remainedI had SOB, some chest pains, and rough coughing during about the first year after having covid and I haven't really felt any of those symptoms anymore.In context ↗ | Moderate | Time and spontaneous remission |
| 2024-12-31 | could do heavy physical labour again without days of paybackI've gotten to the point to where I can do heavy physical activity again and not feel horrible for days afterwards.In context ↗ | Mild | Time and spontaneous remission |
| 2025-03-17 | creatine eased fatigue and muscle achingDefinitely seems like it's improved my fatigue and muscle aching symptoms so far and I feel like I have a bit more longevity.In context ↗ | Mild | Creatine |
| 2026-05-17 | gradual improvement but still unrefreshed on waking and crashing after exertionI feel like my symptoms have improved over time little by little too but this is the one thing I still can't seem to shake.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Too much physical exertion still crashes me
In context ↗ - Brain fog
Feeling foggy and slow inside my mind.
In context ↗ - POTS & dysautonomia
I do have moments when standing up for a period where I do feel weak and kinda lightheaded
In context ↗ - Sleep problems
I almost never feel properly rested
In context ↗ - Pain & fibromyalgia
my worst most recurring symptom has been really bad fatigue and muscle pain
In context ↗ - Breathlessness
I had SOB, some chest pains, and rough coughing during about the first year after having covid and I haven't really felt any of those symptoms anymore.
In context ↗ - Heart symptoms & palpitations
I'd have a slight pain or discomfort in my chest with a rough cough that comes and goes when I had flare ups.
In context ↗ - Neuropathy & tingling
Very dry eyes and numb feeling mouth
In context ↗ - Anxiety & low mood
I'm prescribed fluvoxamine for anxiety and other general issues
In context ↗ - Flu-like symptoms
it's just so old living with what feels like a bad recurring flu
In context ↗
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