Long COVID
Severe → much betterIll 2.5 years before improving or writing
Sometimes bedbound with long COVID and too weak to talk, now much better
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2.5 years
- Last post
- Jan 2026
In their words
- Condition: Long COVID
I got Covid on July 14,’23 and it was just a cold.
In context ↗ - At worst: Severe
5 days later I crashed severely I could barely talk because I was so weak and felt head was on fire
In context ↗ - Now: Much better
I am much improved probably 80% now ... I am still not back to work yet
In context ↗ - Began after: COVID
I got Covid on July 14,’23 and it was just a cold.
In context ↗
Read from 36 of their posts and comments; links to the 21 this page draws on
Summary
A 35-year-old woman became ill with long COVID after a mild July 2023 infection and five days later crashed, too weak to talk; she lost her job and was sometimes bedbound. A bad cold that October brought the symptoms back. She improved slowly over two and a half years, though a stellate ganglion block in 2024 left her worse for weeks and she doubted it was worth it; fatigue, brain fog and tachycardia remained.
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What they tried
What they credit
Also tried
Their words about each treatment
- buspirone · Worse
I had the zaps from taking buspirone. It was the weirdest feeling. I didn’t like the feeling so I stopped the meds and the zapping stopped too
In context ↗ - 24 hour fast · Worse
I tried it, it made me feel so much worse. I need to feed myself every few hours
In context ↗ - gabapentin · Helped
it helps me sleep at night, I don’t have any other odd side effects from it, and it helps with my back pain and headaches
In context ↗ - LDN · Worse
I tried LDN A few weeks ago. It made my symptoms worse, fatigue, brain fog etc. I tried pushing through but I couldn’t do it. And it was .5mg.
In context ↗ - Wellbutrin · Worse
Unfortunately that was worse, I only took it for 4 days maybe? Felt so horrible I couldn’t do it.
In context ↗ - Breaking Free by Jan Rothney · No change
I did Jan rothneys course which was very informative but I didn’t really find much improvement in my recovery.
In context ↗ - SGB · Worse
I felt worse for a few weeks honestly. Then it settled and I very very slowly started getting better
In context ↗ - EAT (Epipharyngeal Abrasive Therapy) · Helped
The eat did well for me I think. He said it was swollen but only grade 1. I didn’t even realize how congested I was until after I can breathe so much better now.
In context ↗ - beta blockers · Helped
I was on beta blockers, I think it helped because I rarely get it anymore. But they had horrible side effects.
In context ↗ - meditation · Helped
I laid down every day and listened to something that I enjoyed, whether a podcast, meditation, nature sounds
In context ↗ - somatic tracking · Helped
I also did somatic tracking, a bit of eft, not to get rid of the symptoms but to get in tune with my body and calm my system.
In context ↗ - pacing · Helped
I still have some bad days for sure because my pacing habits are bad sometimes
In context ↗
Approaches: Brain retraining · Mind-body practices · Trauma & somatic work
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| July 14, 2023 | mild COVID-19 infectionI got Covid on July 14,’23 and it was just a cold.In context ↗ | Mild |
| July 19, 2023 | severe crash five days after infection5 days later I crashed severely I could barely talk because I was so weak and felt head was on fire.In context ↗ | Severe |
| October 2023 | slow improvementI am definitely improving from what I was 2 months ago!In context ↗ | Moderate |
| October 2023 | crashed after a bad cold/fluthen bam I got a bad cold/flu a few weeks ago and the symptoms came back, but I am slowly improving againIn context ↗ | Moderate |
| February 2024 | slow up-and-down improvement, short walks a few times a weekSome days I am still housebound and some days bed bound. I can now take slow walks usually a few times a week. It’s up and down a lot.In context ↗ | Moderate |
| July-August 2024 | felt worse for weeks after stellate ganglion block and EAT in DallasAnd I felt worse for a few weeks honestly.In context ↗ | Moderate |
| December 2024 | head pressure and vertigo mostly gone, brain fog and fatigue leftMy head pressure is 90% goneIn context ↗ | Moderate |
| May 2025 | doing much better, not back at work, tachycardia remainsI am doing so much better than I was back then but def not 100% yet and not back to work yet.In context ↗ | Mild |
| January 2026 | about 80% improved, still not back at workI am much improved probably 80% now. ... I am still not back to work yet.In context ↗ | Mild |
Adverse events
- Intermittent fasting“I tried it, it made me feel so much worse.” In context ↗ Made symptoms worse
- Buspirone (Buspar)“I had the zaps from taking buspirone. It was the weirdest feeling. I didn’t like the feeling so I stopped the meds and the zapping stopped too” In context ↗ Side effects
- Low-dose naltrexone“I tried LDN A few weeks ago. It made my symptoms worse, fatigue, brain fog etc. I tried pushing through but I couldn’t do it. And it was .5mg.” In context ↗ Made symptoms worse
- Bupropion (Wellbutrin)“Unfortunately that was worse, I only took it for 4 days maybe? Felt so horrible I couldn’t do it.” In context ↗ Made symptoms worse
- Stellate ganglion block“I had a rough time in post op for the right SGB I was shaking all over for like 20-30 min but I calmed down then.” In context ↗ Side effects
- Stellate ganglion block“after wards in post op my BP and hr went through the roof but he was keeping an eye on it and it calmed down then.” In context ↗ Heart rhythm problems
- Stellate ganglion block“And I felt worse for a few weeks honestly. Then it settled and I very very slowly started getting better” In context ↗ Made symptoms worse
- Beta-blockers (unspecified)“I was on beta blockers, I think it helped because I rarely get it anymore. But they had horrible side effects.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessFlu-like symptomsHeadaches & migraineHeart symptoms & palpitationsMuscle weaknessPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTinnitus
Their words about their symptoms
- Post-exertional malaise
Now I just have fatigue, pem, head pressure
In context ↗ - Brain fog
Still have some brain fog and fatigue tho
In context ↗ - POTS & dysautonomia
Symptoms 95% gone: vertigo, lethargy, nightmares, tinnitus, head pressure, bad sleep, palpitations.
In context ↗ - Headaches & migraine
I had head pressure for a long time too, almost 2 years.
In context ↗ - Sleep problems
I can’t sleep more than 7-8 hours.
In context ↗ - Breathlessness
I can breathe so much better now
In context ↗ - Heart symptoms & palpitations
Symptoms remaining: some fatigue and brain fog, tachycardia. ( taking beta blockers for that)
In context ↗ - Muscle weakness
I could barely talk because I was so weak
In context ↗ - Anxiety & low mood
It’s really tough and now my mental health is really bad.
In context ↗ - Flu-like symptoms
The fever flu stuff hasn’t happened for a few months.
In context ↗ - Pain & fibromyalgia
it helps with my back pain and headaches.
In context ↗
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