Long COVID with panic, DPDR and suicidal thoughts, somewhat better with time and rest
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 4 months
- Last post
- Jan 2024
In their words
- Condition: Long COVID
I'm posting this as a diary for my progress with long covid.
In context ↗ - At worst: Moderate
Stopped going to work, using Short Term Disability Leave. ... fearful and paranoid of everything and everyone for the first three weeks.
In context ↗ - Now: Somewhat better
Mine’s getting better slowly along with the derealization but still lingers here and there.
In context ↗ - Began after: COVID
I got COVID on Oct 1
In context ↗
Read from 7 of their posts and comments; links to the 6 this page draws on
Summary
Pebble 22420 developed long COVID after a fourth COVID infection in October 2023, with diarrhea, chest pain, tingling, insomnia, panic, paranoia, DPDR, harm OCD and suicidal thoughts. They stopped work on short-term disability. By month 4 they reported getting much better with time, rest, trauma therapy, sleep routines and supplements, though derealization still lingered and depression had set in. A workout in weeks 4–6 caused a crash.
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What they tried
What they credit
Also tried
Their words about each treatment
- No alcohol, no caffeine · Helped
What helped: ... - No alcohol ... - No caffeine
In context ↗ - Working out · Worse
I tried working out twice this week since I was starting to feel good, but it led to a crash the following week.
In context ↗ - Going for a walk everyday · Not said
I try to go for a walk everyday
In context ↗ - Celery, Turmeric & Ginger Juice · Not said
Celery, Turmeric & Ginger Juice
In context ↗ - Seed Probiotics · Helped
What helped: ... - Probiotic
In context ↗ - Women's Daily Multivitamins · Helped
Been taking daily multivitamins, resting a lot, not pushing myself too hard.
In context ↗ - Fish Oil · Helped
Supplements everyday ... - Fish Oil
In context ↗ - Calm Magnesium Drink with Cherry Juice · Not said
Calm Magnesium Drink with Cherry Juice at night (if I need help falling asleep)
In context ↗ - Trauma Focused Therapy (EMDR / IFS) · Helped
What helped: ... - EDMR Therapy for Trauma
In context ↗ - Talk Therapy (CBT) · Not said
Talk Therapy (CBT)
In context ↗ - Naturopathic Doctor · Not said
Naturopathic Doctor (To help with hormones and gut biome)
In context ↗ - Vitamin C · Helped
Supplements everyday ... - Vitamin C
In context ↗ - Sleeping every night at the same time for 7-8 hours · Helped
Sleeping every night at the same time, and sleeping for 7-8 hours
In context ↗
Approaches: Diet · Pacing · Supplements · Trauma & somatic work
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| Oct 1, 2023 | Fourth COVID infection; long COVID beginsI got COVID on Oct 1In context ↗ | Not stated | |
| Oct 8-22, 2023 | Worst weeks: severe paranoia, panic, DPDR and insomnia; stopped work on short-term disabilityStopped going to work, using Short Term Disability Leave.In context ↗ | Moderate | |
| Oct 23-Nov 11, 2023 | Started seeing progress; diarrhea, nausea, DPDR and sensory overload subsidedOn the fourth week I started seeing progress, but it's still an uphill battle.In context ↗ | Moderate | |
| Nov 12-25, 2023 | Crashed after working out twice the previous weekI tried working out twice this week since I was starting to feel good, but it led to a crash the following week.In context ↗ | Moderate | |
| Nov 26, 2023 | Week 9: still unable to work out or do much physically, but walking daily and seeing progressI am seeing progress and hope it continues that way!In context ↗ | Moderate | |
| Dec 3, 2023 | Month 3: neuro symptoms slowly improving; calming nervous system helpedSlowly it’s all getting better! I’m on month 3, and calming my nervous system has been helping.In context ↗ | Mild | |
| Dec 17, 2023 | Intrusive thoughts much better after trauma therapy, no alcohol or caffeine, sleep routine and supplementsMy intrusive thoughts are getting MUCH better, 2.5 months after my major panic attack that was induced by COVID dysautomania.In context ↗ | Mild | Trauma work (EFT, EMDR, TRE) |
| Jan 8, 2024 | Month 4: much better overall, but derealization lingered and depression set inOn month 4 and getting so much better.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
I tried working out twice this week since I was starting to feel good, but it led to a crash the following week.
In context ↗ - Brain fog
Right now my most prevalent symptoms are fatigue, brain fog, anxiety, depression and anhedonia.
In context ↗ - POTS & dysautonomia
Loss of vision when getting up
In context ↗ - Pain & fibromyalgia
Body aches, Muscle spasms
In context ↗ - Headaches & migraine
Tension headaches
In context ↗ - Light & noise sensitivity
Sensory overload
In context ↗ - Breathlessness
Shortness of breath
In context ↗ - Heart symptoms & palpitations
Elevated heartrate
In context ↗ - Neuropathy & tingling
Tingling in my spine
In context ↗ - Anxiety & low mood
depression has been setting in.
In context ↗
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