Long COVID with daily fatigue and sensitivity, somewhat better with rest and a clinic
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- Sep 2024
In their words
- Condition: Long COVID
I’ve been long hauling for 8 months
In context ↗ - At worst: Moderate
I had to quit my job coz it was making all my symptoms worse.
In context ↗ - Now: Somewhat better
I’m still nowhere near where I want to be but I’m making progress
In context ↗ - Began after: COVID
Started back in August 2022 when I got an infection and had a horrible reaction to the antibiotics I was given. Then I got COVID while this was happening and my Dr thinks influenza A as well.
Read from 43 of their posts and comments; links to the 24 this page draws on
Summary
A Brisbane man became ill in August 2022 after an infection, antibiotics reaction and COVID with suspected influenza A. He left his physical job in December 2022 and improved with rest and a long COVID clinic. By August 2023 he was over 80% back to normal, then flared. By September 2024 he still had daily depersonalisation, fatigue, aches and light/noise sensitivity, and said he was not his old self.
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What they tried
What they credit
Also tried
Their words about each treatment
- antibiotics · Worse
had a horrible reaction to the antibiotics I was given
In context ↗ - learning limits and stopping work to rest · Helped
Only since I stopped working have I actually started to make some proper progress.
In context ↗ - long Covid clinic · Helped
Been going weekly for the past 6 weeks or so and it’s really good and helping me take steps towards recovery.
In context ↗ - exercise therapy at the long COVID clinic · Helped
Exercise was actually helping and I was making good progress prior to then crash
In context ↗ - Vitamin C · Helped
I have started taking quite a few vitamins which have helped make it a bit more manageable, Vitamin C, Vitamin D, Magnesium, CoQ10, Fish Oil.
In context ↗ - yoga, stretching and breathing exercises · Helped
Floor exercises have been really good for me, yoga and stretching type exercises with controlled breathing
In context ↗ - big diet change · Helped
I’m slowly losing weight but it’s super slow and only due to a big diet change and intermittent fasting.
In context ↗ - Celebrex · Helped a lot
Celebrex has been a life saver for me.
In context ↗ - telling DP/DR to fuck off and distraction · Helped
It sounds like a weird thing to do but it’s actually helped me since seeing their post about it.
In context ↗ - Berocca · Helped
Berocca has been doing wonders for me.
In context ↗ - therapy · Helped
Therapy definitely helped me
In context ↗ - sertraline · Helped
I also take sertraline for the anxiety and that has definitely helped
In context ↗ - probiotics · Helped
I take coQ10, vitamin D, C, B, Fish Oil and probiotics
In context ↗ - Alprazolam (Xanax) · Not said
I was addicted to Xanax about 8 years ago and coming off them gave me seizures, I think because I didn’t wean off them slow enough.
In context ↗
Approaches: CBT & mindset · SSRIs · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| August 2022 | COVID with suspected influenza A after an infection and antibiotic reactionStarted back in August 2022 when I got an infection and had a horrible reaction to the antibiotics I was given.In context ↗ | Moderate | |
| October 2022 | back at work but constant body achesI’ve gotten a bit better since and am back at workIn context ↗ | Mild | |
| December 2022 | stopped working and began recoveryI left my job in December 2022 and am seeing pretty good improvements.In context ↗ | Moderate | Pacing and the energy envelope |
| February 2023 | crash after stressful travel and financial stressI was fully crashed out for like 3 daysIn context ↗ | Severe | |
| March 2023 | coming out of crashI’ve only just started feeling better again the past 2 days.In context ↗ | Mild | |
| August 2023 | reached over 80% back to normalI was at 80%+ back to normal until a few days agoIn context ↗ | Mild | |
| August 2023 | flair up, possibly a coldI had another flair up, I’m hoping it’s just a cold and it will pass in a few days.In context ↗ | Mild | |
| April 2024 | better than after year one but still not old selfI’m a lot better than I was after year 1, I’m still not my old selfIn context ↗ | Mild | |
| September 2024 | still daily symptoms, not old selfI’m still nowhere near where I want to be but I’m making progressIn context ↗ | Mild |
Adverse events
- Antibiotics (unspecified)“I got an infection, which I had to take antibiotics to get rid of and had a horrible reaction to. Sweats, disorientation, headaches, racing heart rate and allergic reaction type symptoms like tingling lips.” In context ↗ Allergic reaction / anaphylaxis
- Graded rehab and self-made programmes“Gotta be real careful with the graded exercise. Will end up pushing yourself into a crash. At least that’s been my experience from pushing too much.” In context ↗ Made symptoms worse
- Alprazolam (Xanax)“I was addicted to Xanax about 8 years ago and coming off them gave me seizures, I think because I didn’t wean off them slow enough.” In context ↗ Withdrawal problems
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
any over exertion would would leave me bed ridden for days
In context ↗ - POTS & dysautonomia
dizziness and fatigue
In context ↗ - Sleep problems
it still takes me hours to get to sleep
In context ↗ - Pain & fibromyalgia
constant aches and pains
In context ↗ - Headaches & migraine
daily headaches
In context ↗ - Light & noise sensitivity
bad light and noise sensitivity issues
In context ↗ - Breathlessness
shortness of breath
In context ↗ - Heart symptoms & palpitations
spike my heart rate
In context ↗ - Muscle weakness
weakness in my legs
In context ↗ - Anxiety & low mood
take meds to help with the anxiety
In context ↗ - Vision problems
Vision gets blurry from time to time
In context ↗ - Gut problems
constantly nauseous and dizzy
In context ↗
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