Long COVID
Moderate → somewhat better
Housebound with long COVID, now somewhat better after an antihistamine
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- Not stated
- Last post
- Feb 2026
In their words
- Condition: Long COVID
I detected I had CFS (long covid)
In context ↗ - At worst: Moderate
I'm housebound, but not bedbound, I can walk around the house a bit
In context ↗ - Now: Somewhat better
the more months I spended "infection free" the more I was getting better and was recovering to a certain degree
In context ↗ - Began after: COVID
I got infected by covid, my acute infection was tolerable, then one week later, I could barely walk from pain.
In context ↗
Read from 23 of their posts and comments; links to the 15 this page draws on
Summary
They had fibromyalgia from age 18 with pain, dysautonomia, IBS and brain fog, and were about 60% of normal by late 2021. COVID in 2021 and a reinfection in January 2023 left them housebound with headache, nausea, fatigue and crashes. An antihistamine for sleep cleared their head and gave roughly 10% improvement, but overdoing activity and an endometriosis attack set them back. By 2026 they were recovering slowly.
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What they tried
What they credit
Also tried
Ormux (Primal Fx)· Helpedtherapist· Helpedcutting dairy· Helpedsupplements· Helped · wore offpainkillers· No changevitamin D· No changetreatment for H.Pylori and Candida· No changesleep meds· No changenervous system regulating program· No changehome workouts· Worseanti-depressants· Much worse
Their words about each treatment
- painkillers · No change
I was on several painkillers, and morphine was my next option
In context ↗ - vitamin D · No change
I always had trouble with the vitamin D and believe me I took hella high doses, I just don't know why my body can't get its levels up
In context ↗ - functional medicine doctor · Helped
Finally I found a functional medicine doctor, and at the end of 2021 I was at a 60% from a 100% that is good health
In context ↗ - treatment for H.Pylori and Candida · No change
I was diagnosed with H.Pylori and Candida for a long time by a functional doctor but the treatment didn't worked fully
In context ↗ - resting and pacing · Helped
Eventually my baseline increased a little ... I really suck at pacing by my own
In context ↗ - home workouts · Worse
doing a lil workout here and then (even with weights) but at home, this cycle would make me crash
In context ↗ - Ormux (Primal Fx) · Helped
this Ormux supplement disminished my pain in 24-48 hours, but the real benefit I felt it when I finished the jar
In context ↗ - therapist · Helped
I see a therapist and she's very helpful
In context ↗ - anti-depressants · Much worse
I took anti-depressants and the next day I woke up suicidal and with a panic attack
In context ↗ - cutting dairy · Helped
Also cutting dairy seems to help
In context ↗ - ceftriaxone injections · Helped
my internist gave me 5 injections of intramuscular ceftriaxone ... the headache honestley went away, and I've felt better overall, but not back to my baseline
In context ↗ - difenhidramine (anti-histamine) · Helped
I introduced difenhidramine (anti-histamine) to help my sleep and overall it helped me get 10% better ... I felt like a switch in a good way, my mind cleared up
In context ↗ - sleep meds · No change
I've been having the worst sleep even with sleep meds
In context ↗ - supplements · Helped
I added anti histamiens and some supplements and I think I had a little remmision period
In context ↗ - nervous system regulating program · No change
I already purchased a nervous system regulating program that was very expensive and it's been many months without improvement!
In context ↗ - time · Helped
long covid started and I got better over time in that year ... the more months I spended "infection free" the more I was getting better
Approaches: H1 antihistamines · Alternative therapies · Antibiotics · Pacing
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2016, age 18 | fibromyalgia onset: fatigue, joint and muscle pain, dysautonomia, insomnia, IBS, brain fog; gave up their careerI got fibromyalgia when I was 18 and I saw my life collapse since then.In context ↗ | Mild | |
| end of 2021 | reached about 60% of good health with a functional medicine doctorat the end of 2021 I was at a 60% from a 100% that is good healthIn context ↗ | Mild | |
| 2021-2022 | first COVID infection; could barely walk from pain a week laterI got infected by covid, my acute infection was tolerable, then one week later, I could barely walk from pain.In context ↗ | Moderate | |
| August 2022 to March 2023 | back at the gym doing full workouts with a personal trainerFrom august last year to march this year finally I was back at working out, and I felt greatIn context ↗ | Mild | |
| January 2023 | COVID reinfection; long COVID with headache, nausea, extreme fatigue, insomnia, tremorsI got reinfected in january 2023, this was the one that ended up everything for me.In context ↗ | Moderate | |
| 2023-2024 | housebound for two years; small activities like washing dishes cause crashesI'm houseboound, and I've been housebound for two yearsIn context ↗ | Moderate | |
| November 2024 | diphenhydramine cleared their head fog, about 10% better; went to the beach and a painting classI introduced difenhidramine (anti-histamine) to help my sleep and overall it helped me get 10% betterIn context ↗ | Mild | Diphenhydramine (Benadryl) |
| November 2024 | crash after an endometriosis pain attack, vomiting and a family fight; head felt poisoned for daysthe day after that my head is like totally concusedIn context ↗ | Moderate | |
| late 2024 to early 2025 | partial remission with antihistamines and supplements; could paint, cook and have long conversations, then overdid itEventually my baseline increased a little and I added anti histamiens and some supplementsIn context ↗ | Mild | Diphenhydramine (Benadryl) |
| late April 2025 | relapsed after pushing through art commissionsThis feeling started washing over the weeks, and now I'm like it used to be before but not that bad.In context ↗ | Mild | |
| February 2026 | slowly recovering the longer they went without infectionsthe more I was getting better and was recovering to a certain degree.In context ↗ | Mild |
Adverse events
- Antidepressants (unspecified)“I took anti-depressants and the next day I woke up suicidal and with a panic attack.” In context ↗ Suicidal thoughts or attempt
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessFlu-like symptomsGut problemsHair lossHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Pain & fibromyalgia
joint and muscle pain, dysautonomia, mild insomnia, IBS, hair loss
In context ↗ - POTS & dysautonomia
dysautonomia, mild insomnia, IBS, hair loss, weight loss, depression, anxiety, brain fog
In context ↗ - Sleep problems
insomnia that causes me to not sleep for like 4 days
In context ↗ - Hair loss
IBS, hair loss, weight loss
In context ↗ - Anxiety & low mood
depression, anxiety, brain fog
In context ↗ - Brain fog
I feel mentally disabled compared to how sharp and smart I was
In context ↗ - Post-exertional malaise
if I do extenous activities, I have to take a few days or weeks to recover
In context ↗ - Headaches & migraine
24/7 nausea and headache, extrema fatigue
In context ↗ - Muscle weakness
muscle weakness, hand tremors
In context ↗ - Neuropathy & tingling
internal tremors all over my body
In context ↗ - Breathlessness
pain, fatigue, headache, lack of air, tremors, nausea
In context ↗ - Heart symptoms & palpitations
chest pain, neurological symptoms
In context ↗ - Light & noise sensitivity
I got so much light sensitivity I can't go out in the sun
In context ↗ - Flu-like symptoms
I feel flu like symptomps but it's not related to PEM
In context ↗
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