Long COVID with weak heavy legs, somewhat better after physical therapy and Cymbalta
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 1 year
- Last post
- Sep 2023
In their words
- Condition: Long COVID
Main symptoms have been muscle pain
In context ↗ - At worst: Mild
Heavy weak legs and just sort of muscle pain all over.
In context ↗ - Now: Somewhat better
this is the best I’ve felt in my legs for over a year
In context ↗
Read from 11 of their posts and comments; links to the 6 this page draws on
Summary
Coast 68117 had long COVID for over a year with muscle pain, heavy weak legs, shakiness, tingling and tension headaches, but could still walk. Physical therapy eased the pain and twitching, Cymbalta calmed the nervous system, and cutting out gluten gave the best leg day in over a year. Dandelion root, 1700 mg three times daily, further relieved leg heaviness, though widespread pain and headaches remained.
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What they tried
What they credit
Also tried
Their words about each treatment
- ketamine · Helped
At least try ketamine first, it helped a lot with my chronic pain suicidal ideation
In context ↗ - Cymbalta · Helped a lot
Cymbalta helped me a lot with shakiness, pain, and weakness. It kind of let my nervous system relax a little bit.
In context ↗ - Ala · Not said
I’ve been on a couple of things, Ala and coq10, cymbalta, plus a couple antihistamines
In context ↗ - PT · Helped
Pt has helped the twitching the most
In context ↗ - cut out gluten · Helped a lot
Until I cut out gluten. As stupid as that is this is the best I’ve felt in my legs for over a year.
In context ↗ - dandelion root · Helped a lot
I added dandelion root to the mix and it was like the best day for my leg symptoms I’ve had in almost a year.
In context ↗
Approaches: SNRIs
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | long COVID with muscle pain all over, heavy weak legs, shakiness and tinglingHeavy weak legs and just sort of muscle pain all over.In context ↗ | Mild | |
| 2023-09-01 | legs much better after cutting out glutenUntil I cut out gluten ... this is the best I’ve felt in my legs for over a yearIn context ↗ | Mild | Gluten-free diet |
| 2023-09-05 | best leg day in almost a year after adding dandelion rootI added dandelion root to the mix and it was like the best day for my leg symptoms I’ve had in almost a year.In context ↗ | Mild | Dandelion (root, extract, juice) |
| 2023-09-08 | leg heaviness and tingling held at bay by dandelion root; PT easing twitchingPt has helped the twitching the mostIn context ↗ | Mild | Dandelion (root, extract, juice) |
Symptoms mentioned
Their words about their symptoms
- Pain & fibromyalgia
Heavy weak legs and just sort of muscle pain all over.
In context ↗ - Muscle weakness
Heavy weak legs
In context ↗ - Neuropathy & tingling
the heaviness and tingling came right back
In context ↗ - Headaches & migraine
has not helped with widespread pain or my tension headaches
In context ↗ - Anxiety & low mood
it helped a lot with my chronic pain suicidal ideation
In context ↗ - Brain fog
Cymbalta helped a lot, felt smarter overnight
In context ↗
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