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Long COVID Moderate → much betterIll 3 years before improving or writingNeeds ongoing treatment

Long COVID with a vaccine crash at its worst, now much better after pacing and propranolol

Canyon 25561 on RedditLast post Jul 2025

Condition
Long COVID
At worst
Moderate (mostly housebound)
Ill before improving or writing
3 years
Last post
Jul 2025
In their words
  • Condition: Long COVID3 years since COVID, 22 months since Moderna. Something is getting better. In context ↗
  • At worst: ModerateBefore propranolol I would spend the entire day struggling to stand up and go over there, come back and fall over like I had just done a 50 mile bike ride In context ↗
  • Now: Much betterIt’s been a couple of months and I feel semi human and like my body actually gets rest when I go to bed. In context ↗
  • Began after: COVID3 years since COVID, 22 months since Moderna In context ↗
Read from 133 of their posts and comments; links to the 44 this page draws on

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Summary

They fell ill with COVID at the end of 2019; a Moderna shot in April 2021 cost 12 points of VO2 max and was the worst of it. Pacing with a Garmin watch, L-glutamine, NADH with CoQ10, cutting caffeine and sugar, Strattera, and propranolol 40 mg each afternoon brought slow gains; propranolol gave them their life back. By March 2024 they exercised five days a week but had not returned to work; later they overdid it and were knocked back for six months, and by March 2025 they felt massively better but had slacked on good habits.

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What they tried

What they credit

Garmin / Body Battery· Helped a lot · mainoccupational therapy· Helped a lotCreatine hcl· Helped a lotStrattera· Helped a lotpropranolol· Helped a lot · maincanola and palm oil elimination· Helped a lotWelltory app· Helpedhdrop· Helpedchiropractor· HelpedNADH· HelpedCoQ10· Helpedglutathione· Helpedmagnesium· Helpedpotassium supplement· Helpedstimulants (Adderall, Concerta, Vyvanse, methylphenidate)· Helpedstimulants (Adderall, Concerta, Vyvanse, methylphenidate)· Helpedstimulants (Adderall, Concerta, Vyvanse, methylphenidate)· HelpedLexapro· Helpedcaffeine elimination· Helpeddairy elimination· Helpedketogenic/low-carb diet· Helpedcollagen· Helpedcontinuous glucose monitor (CGM)· Helped

Also tried

L-glutamine· HelpedAlexa reminders· HelpedCBTi· Helpedring ear plugs· Helpedantibiotics for ear infection· Helped · wore offturmeric· Helpedgraded walks, core and cardio· Helpedyoga· Helpedsugar and alcohol elimination· Helpedsugar and alcohol elimination· Helpedvitamin D prescription· No changeprevorstatin· Worsemuscle relaxants and sleep aids· WorseCOVID vaccination as treatment· WorseCannabis (THC, marijuana)· Worsehigh-dose vitamin C (Emergen-C)· Not saidwheat elimination· Not said
Their words about each treatment
  • L-glutamine · HelpedL-glutamine helps me after walks snd chores with pain In context ↗
  • Garmin / Body Battery · Helped a lotBody Battery turned my whole life around and made it all controllable. In context ↗
  • Welltory app · HelpedIt’s been tremendously helpful for me in terms of figuring out what is and is not working for improving cognition. In context ↗
  • hdrop · HelpedMy hdrop helps me make sure I am hydrated enough… it helps me to see it as a percentage In context ↗
  • Alexa reminders · HelpedAlexa prompts me with what I need to do throughout the day to maintain a schedule and take breaks. In context ↗
  • CBTi · HelpedCbti helps with this In context ↗
  • occupational therapy · Helped a lotOccupational therapy was way more helpful than therapy In context ↗
  • chiropractor · HelpedIf I stay within the green zone, see my chiropractor In context ↗
  • ring ear plugs · HelpedTry the ring ones. I feel a lot less stressed. In context ↗
  • NADH · HelpedNADH+COQ10 in one pill clears my brain fog but not if I take them separately in two pills. In context ↗
  • glutathione · HelpedNadh+coq10, glutathione helps In context ↗
  • Creatine hcl · Helped a lotCreatine hcl has been amazing for adhd+cfs In context ↗
  • vitamin D prescription · No changeThe vitamin d rx didn’t do it for me :( In context ↗
  • magnesium · HelpedYeah if I up the dose on magnesium I can function but then my tummy rebels. In context ↗
  • potassium supplement · Helpedadding a potassium supplement before bed In context ↗
  • high-dose vitamin C (Emergen-C) · Not saidI do high dose vitamin C (emergenc packets) at dinner to flush stimulants out faster and improve overnight recovery. In context ↗
  • stimulants (Adderall, Concerta, Vyvanse, methylphenidate) · HelpedIRs were my solution In context ↗
  • Strattera · Helped a lotStrattera this past week has really been a big change. In context ↗
  • Lexapro · HelpedLexapro is helping with my fatigue In context ↗
  • propranolol · Helped a lotI’m taking 40mg everyday around 4pm… It’s given me my life back. In context ↗
  • prevorstatin · WorseI just tried prevorstatin for a couple of weeks. I had a bad reaction. In context ↗
  • antibiotics for ear infection · HelpedAfter antibiotics I feel awesome for a couple of weeks but it goes away again. In context ↗
  • turmeric · HelpedAgreed on the turmeric! In context ↗
  • muscle relaxants and sleep aids · WorseI haven’t been able to tolerate muscle relaxants or sleep aids. They all destroy sleep quality. In context ↗
  • graded walks, core and cardio · HelpedI’ve got a consistent weekly routine and am exercising 5 days a week now In context ↗
  • yoga · HelpedYesterday I did park yoga and got a perfect night’s sleep. In context ↗
  • caffeine elimination · HelpedCaffeine is something I cut out for better energy overall. In context ↗
  • sugar and alcohol elimination · HelpedSugar and alcohol are all no-gos. In context ↗
  • wheat elimination · Not saidI think I’m cutting out wheat for a while, see if I improve any. In context ↗
  • dairy elimination · HelpedI cut out milk and cheese and feel a little better. In context ↗
  • canola and palm oil elimination · Helped a lotCutting out canola and palm oil even in salad dressings and packaged foods really was a big improvement In context ↗
  • ketogenic/low-carb diet · HelpedCarbs seem to prolong my crashes In context ↗
  • collagen · HelpedDaily avocado, collagen, and apples with peels have all made improvements. In context ↗
  • continuous glucose monitor (CGM) · HelpedIn combination with my cgm it is helping me break the catch 22 In context ↗
  • COVID vaccination as treatment · WorseI had Moderna last April. I lost 12 points of cardiovascular fitness and have only regained 2. It was the final nail in my coffin. In context ↗
  • Cannabis (THC, marijuana) · WorseMy Garmin says it might help that day, but I pay for it in terms of energy levels for a week. In context ↗

Approaches: SSRIs · Alternative therapies · Beta-blockers · Diet · Other drugs and medicines · Pacing · Stimulants · Supplements

Their path

Very severeSevereModerateMildNear normalRecovered2 y3 y4 y5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 16 months after onset: the story doesn’t say how ill they were before that. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
late 2019COVID illness begins3 years since COVID, 22 months since Moderna In context ↗Not stated
April 2021Moderna shot; lost 12 points of VO2 max, like falling off a cliffIt was like falling off a cliff… I’m still struggling. In context ↗Moderate
May 2022massively better after dropping caffeine and sugarI’m massively better than I was. In context ↗Mild
November 2022doing a lot better, PEM mild, back to short workoutsI’m doing a lot better now… so here is what I learned... I’d say my PEM is really mild. In context ↗Mild
June 2023pacing with Body Battery; started running a littleOnce I learned to use Garmin Body Battery for pacing it got a lot easier. I’m even running a little now. In context ↗MildSymptom-tracking apps and wearables (Visible)
mid 2023overdid it and was knocked back for about 6 monthsI just felt better for a couple of months and overdid it and knocked myself back on my butt for 6 months. In context ↗Moderate
March 2024consistent routine, exercising 5 days a week, still off workI’ve got a consistent weekly routine and am exercising 5 days a week now… but I had to give up things ... and I’m still not back to work yet In context ↗Mild
June 2024crashed after a Memorial Day weekend of too much activityOn my butt today (following Monday) like I have the flu because PEM accrues over a rolling period and it was all too much even with cutting back on exercise. In context ↗Moderate
August 2024Garmin fitness stats suddenly tanked, energy holeTwo weeks ago, my Garmin stats suddenly took a nose dive and I can’t figure out why In context ↗Mild
September 2024Strattera allowed two months of errands in two daysStrattera this past week has really been a big change. I did two months worth of errands in two days In context ↗Mild
November 2024propranolol; felt semi human and sleep became restorativeIt’s been a couple of months and I feel semi human and like my body actually gets rest when I go to bed. In context ↗MildPropranolol (Inderal)
March 2025felt massively better and slacked on routinesI had a weird psychological effect of feeling massively better caused me to slack on all my good habits so I need to tighten that back up again In context ↗MildPropranolol (Inderal)

Adverse events

Symptoms mentioned

Anxiety & low moodBrain fogPain & fibromyalgiaPost-exertional malaiseSleep problems
Their words about their symptoms
  • Post-exertional malaiseI’d say my PEM is really mild. In context ↗
  • Brain fogNADH+COQ10 in one pill clears my brain fog but not if I take them separately in two pills. In context ↗
  • Sleep problemsGlycine 1mg every hour 4 hours before bed and 6 right before helps my insomnia In context ↗
  • Pain & fibromyalgiaL glutamine has helped me with the multi day muscle soreness In context ↗
  • Anxiety & low moodPropranolol for anxiety, but taken everyday at 4pm is really helping me. In context ↗

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