Long COVID
Moderate → much betterIll 2 years before improving or writing
Long COVID, unable to work for over a year, now much better after Pfizer shots and time
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 2 years
- Last post
- May 2022
In their words
- Condition: Long COVID
Got ill in april 2020 and i had almost the whole menu of long covid symptoms
In context ↗ - At worst: Moderate
it is still not possible for me to function. I cant work (desk job) at all.
In context ↗ - Now: Much better
Back to work for 4 hours a week now! ... After 1,5 year i had a normal walking speed between 12 and 13 minutes per km.
- Began after: COVID
Before i got Covid i was a cold shower enthousiast.
Read from 78 of their posts and comments; links to the 44 this page draws on
- Dec 2021
- Apr 2021
- Feb 2021
- Jan 2021
- Jul 2021
- Apr 2022
- Jan 2021
- Mar 2022
- Apr 2021
- Aug 2021
- Sep 2021
- Sep 2021
- Feb 2021
- Apr 2021
- Jul 2021
- Aug 2021
- Mar 2022
- Jul 2021
- Jul 2021
- Sep 2021
- Sep 2021
- Dec 2021
- Nov 2021
- Mar 2022
- Mar 2022
- Mar 2022
- Mar 2022
- Apr 2022
- Apr 2022
- May 2022
- Feb 2021
- May 2021
- Jul 2021
- Jan 2022
- May 2021
- Feb 2021
- Sep 2021
- Jul 2021
- Mar 2022
- Jul 2021
- Jul 2021
- Aug 2021
- Dec 2021
- Aug 2021
Summary
Got long COVID in April 2020 and could not work for over a year, with breathlessness, brain fog, tinnitus, pain and a sore throat. They credit two Pfizer shots, each followed by two weeks of worsening then a big improvement, supplements that largely cleared their muscle and joint pain, and time. By 2022 they walked at normal speed and worked four hours a week, though fatigue, brain fog, tinnitus, pain, a sore throat and worsened asthma remained, and a vagus nerve device sent them to the ER.
Ask Miruvor AI
What they tried
What they credit
Also tried
inhalers (foster, spiriva, ventolin, alvesco, salbutamol)· Helpedprednisolon / prednisone· Helped · wore offWim Hof breathing· Helpedubiquinol· Helpedalpha lipoic acid· Helpedvitamin b complex· Helpedvit C· HelpedNAC· Helpedmagnesium orotaat· Helpedl-carnitine· Helpedb12 injections· Helpedpre and probiotics· Helpedimmupro food-intolerance diet· HelpedOkinawa powder· Helpedoregano oil pills· Helpedspeech / vocal therapy· Helpedpsychologist· Helpedavoiding screens / screen time limit· Helpedmeditation· Helpedl-glutamine· Helpedhot and cold baths for hands· Helpedlow histamine / antihistamine diet· No changeFODMAP diet· No changelow fibre diet· No changelow carb diet· No changeantihistamines· No changePEA· No changeparacetamol· No changeibuprofen· No changenattokinase· No changeacupuncture· No changeCBD oil (raw)· No changecold showers / cold training· Worseivermectine· Worse36 hour water fast· Worseflush niacin· Worsevagus nerve device· Much worsevit D· Not saidquercetin· Not saidsinging therapy· Not saidacupressure· Not said
Their words about each treatment
- eating more protein · Helped
I turned it around by eating more protein.
In context ↗ - guided lung revalidation / physical therapy · Helped
what finally made a difference was the combination with guided lung revalidation at the hospital
In context ↗ - inhalers (foster, spiriva, ventolin, alvesco, salbutamol) · Helped
I use inhalers: foster, spiriva respimat, alvesco and if necessary salbutamol.
In context ↗ - prednisolon / prednisone · Helped
It helps your long haul symptoms, just as long as you take the pills.
In context ↗ - Wim Hof breathing · Helped
since I do it (1 month now) the ringing in my ears have gotten a lot less
In context ↗ - cold showers / cold training · Worse
now it only causes me to relapse
In context ↗ - ubiquinol · Helped
Beginning Jan 2021 i started taking ubiquinol, alpha lipoic acid, vitamin b complex, vit C, NAC, magnesium orotaat, l- carnitine, b12 and pre and probiitics
In context ↗ - low histamine / antihistamine diet · No change
Changing diet (and i tried a lot: immupro, fodmap, low histamine, low fibre, if and combinations of those) didnt do anything for me
In context ↗ - immupro food-intolerance diet · Helped
I did an immupro test, which showed 18 food intolerances. I avoided them and did a 4 day rotation scheme
In context ↗ - low carb diet · No change
I also started to eat low carb.
In context ↗ - antihistamines · No change
several medications ao antihistamines and prednisolon. Nothing did the trick for me to really recover.
In context ↗ - ivermectine · Worse
I was prescribed to use ivermectine twice with an interval of 2 weeks. Both times i got a relapse soon after.
In context ↗ - PEA · No change
A bit later i started to use pea but that didnt do much.
In context ↗ - pfizer vaccination · Helped a lot
For me both vaccinations (pfizer) had a great positive impact
In context ↗ - paracetamol · No change
I also took a lot of paracetamol when the joints were so bad. 3x 1000 mg a day.
In context ↗ - ibuprofen · No change
a cocktail of ibuprofen and paracetamol, which often isnt enough
In context ↗ - intermittant fasting 16/8 · Helped
I still do intermittant fasting and supplements because i think it helps.
In context ↗ - 36 hour water fast · Worse
I went from a regular 16 hour fast to a one time 36 hour fast and it triggered a really bad flare up.
In context ↗ - vit D · Not said
a regime with: ubiquinol, alpha lipoic acid, NAC, vit B complex, vit C, carnitin, vit D and magnesium
In context ↗ - quercetin · Not said
Also i believe pre and probiotics,zink, quercetin and vit D are important.
In context ↗ - Okinawa powder · Helped
I feel better on days i take Okinawa powder.
In context ↗ - oregano oil pills · Helped
taking a lot of oregano oil pills. It does seem to have some effect!
In context ↗ - speech / vocal therapy · Helped
Speech therapy helped some.
In context ↗ - psychologist · Helped
Also my psychologist helped me get rid of parts of the nightmares
In context ↗ - singing therapy · Not said
Now i do singing therapy which is fun but not better than speech therapy.
In context ↗ - avoiding screens / screen time limit · Helped
I set screen time on max 1 hour a day.
In context ↗ - meditation · Helped
it did help my brainfog.
In context ↗ - flush niacin · Worse
the flush niacin even makes me feel really sick
In context ↗ - nattokinase · No change
I tried flush niacin and nattokinase. To no effects
In context ↗ - acupuncture · No change
Acupuncture did not help me.
In context ↗ - l-glutamine · Helped
It helped me stop losing weight!
In context ↗ - CBD oil (raw) · No change
I took the raw variant but it didnt do anything for me
In context ↗ - hot and cold baths for hands · Helped
I found some relief with hot and cold baths for just your hands.
In context ↗ - acupressure · Not said
The accupressure actually is quite intuitive, and some of the points i used already!
In context ↗ - vagus nerve device · Much worse
I used a vagus nerve device recommended for long covid it got me to the ER with pressure on my chest and chestpain
In context ↗
Approaches: Diet · Physiotherapy and rehab · Vaccination
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| April 2020 | COVID-19; long COVID beginsI got sick in april 2020In context ↗ | Moderate | |
| first months, 2020 | too breathless to do breathing exercises, unable to work or driveI couldnt do it in the first 8 months because of too much shortness of breath.In context ↗ | Moderate | |
| late 2020 | able to drive again; nerve pain starting to improveIt took me about 7-8 months before I could drive again.In context ↗ | Moderate | |
| January 2021 | muscle and joint pain cleared after starting supplements5 weeks later i finally got rid of those horrible muscle and joint pains.In context ↗ | Moderate | |
| May 2021 | two weeks worse after first Pfizer shot, then much betterBoth times i was more ill for 2 weeks and after i was way better than before the shot!In context ↗ | Moderate | COVID vaccination as treatment |
| July 2021 | back to work four hours a week; brain fog lifted enough to readBack to work for 4 hours a week now!In context ↗ | Moderate | |
| January 2022 | crashed after Pfizer boosterGot my booster 2 days ago, i am feeling quite bad again but have good hopes!In context ↗ | Moderate | COVID vaccination as treatment |
| March 2022 | walking at normal speed with lingering fatigue, brain fog and tinnitusAfter 1,5 year i had a normal walking speed between 12 and 13 minutes per km.In context ↗ | Mild |
Adverse events
- Corticosteroid pulses“I felt so good but I had also trouble sleeping and an overall stressed out feeling.” In context ↗ Insomnia from treatment
- Ivermectin“I was prescribed to use ivermectine twice with an interval of 2 weeks. Both times i got a relapse soon after.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“I had my first pfizer shot 2 days ago and the tinnitus has gotten a lot worse! Also my others symptoms have worsened and others came back.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“Both times i got ill for 2 weeks, but felt so so much better after.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“Got my booster 2 days ago, i am feeling quite bad again but have good hopes!” In context ↗ Made symptoms worse
- Intermittent fasting“I went from a regular 16 hour fast to a one time 36 hour fast and it triggered a really bad flare up.” In context ↗ Made symptoms worse
- Cryotherapy and cold exposure“However now it only causes me to relapse. :(” In context ↗ Made symptoms worse
- Niacin (vitamin B3)“I tried flush niacin and nattokinase. To no effects, the flush niacin even makes me feel really sick” In context ↗ Side effects
- Vagus nerve stimulation“it got me to the ER with pressure on my chest and chestpain, combined with electric feeling, coming up in waves and shaking” In context ↗ ER visit
Symptoms mentioned
Brain fogBreathlessnessFlu-like symptomsGut problemsHeadaches & migraineHeart symptoms & palpitationsLoss of smell or tasteMast cell (MCAS) & allergiesMuscle weaknessNeuropathy & tinglingPain & fibromyalgiaPost-exertional malaiseSleep problemsTinnitus
Their words about their symptoms
- Post-exertional malaise
when i went over my boundaries it comes back
In context ↗ - Brain fog
my brainfog lifted enough to read
In context ↗ - Tinnitus
the ringing in my ears have gotten a lot less
In context ↗ - Breathlessness
I still have shortness of breath when walking faster than 4 km an hour
In context ↗ - Pain & fibromyalgia
Now i only have joint pain on off days and relapses
In context ↗ - Headaches & migraine
backpains, head aches and sore throat
In context ↗ - Flu-like symptoms
I still have a soar throat after 20 months.
In context ↗ - Sleep problems
I had lots of nightmares in the first 10 months.
In context ↗ - Neuropathy & tingling
At the moment the pain is still not completely gone, but it is manageable.
In context ↗ - Loss of smell or taste
My smell came back after more than a year.
In context ↗ - Gut problems
so i still have bowel issues
In context ↗ - Mast cell (MCAS) & allergies
i still react badly to a lot of food
In context ↗ - Muscle weakness
So also to stop getting weaker muscles
In context ↗
Ask Miruvor AI
Similar stories
-
Not enough detail to draw a path
Neuro long COVID with dizziness and brain fog, now close to normal after rest and pacing
A woman in her thirties in Germany developed neuro long COVID after a first COVID infection in 2024, with dizziness, brain fog and headaches. She credits radical rest, pacing and a three-month break from work; a first Novavax shot helped clear the last…
-
Severe long COVID relapse with neuropathy; keto eased symptoms, then relapsed
Infected with COVID in December 2021, she had a severe relapse after a gym session eight months in, with numbness, weight loss, burning sensations and neuropathy; she said she did not have CFS. Keto and antihistamines eased some symptoms. By early 2023 she…
-
Close to bedbound with long COVID, now 70% better after cromolyn and LDN
Badger 81537 fell ill with long COVID in about 2021 and was close to bedbound with severe brain fog and sensory intolerance. Cromolyn from 2023, LDN and guanfacine with NAC brought them to a consistent 70% better, able to take long walks; Novavax boosters…
-
Long COVID with exhaustion, now nearly back to normal after anti-inflammatory diet
Ill from early 2020, they had long COVID for years with oxygen drops, sleep apnoea, brain fog, exhaustion, tinnitus and heart-rate surges, but kept working. An anti-inflammatory diet and a month of pacing helped; vagal humming and later intermittent fasting…