Story
ME/CFS
Substantial
Severe Independent (blog, forum, news)
Mast cell (MCAS) & allergiesPOTS & dysautonomia substantial
ME/CFS · Severe · Ill 2.5 years · forums.phoenixrising.me · Mar 2016
ME/CFS
Severe → substantialIll for 2.5 years
What Is MCAS Like?
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill for
- 2.5 years
- Published
- Mar 2016
Summary
Hydroxyzine (Atarax), dose not stated, used as a regular and rescue medication; she had been very sick for 2-3 years with severe MCAS at the time of her post. She described it as a miracle drug that lets her safely eat food and controls stage-two anaphylaxis-type reactions, including throat narrowing, itching, phlegm, tachycardia into the 160s, facial flushing, and body shaking. It has let her avoid using an EpiPen altogether. The account describes ongoing reliance on the medication rather than a one-time cure, with continued use implied as necessary and no relapse mentioned.
Symptoms mentioned
Symptoms: Mast cell (MCAS) & allergies, POTS & dysautonomia.