Long COVID
Severe → much betterIll 1 year before improving or writingNeeds ongoing treatment
Largely bedridden with long COVID, now much better with pacing and LDN
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 1 year
- Last post
- Apr 2026
In their words
- Condition: Long COVID
I’ve had LC since 2021.
In context ↗ - At worst: Severe
I went from severe LC to moderate.
In context ↗ - Now: Much better
I’m maybe 60% recovered with a lot of AI health issues that were triggered by Covid
In context ↗ - Began after: COVID
got sick early 2021, started LHing in October 2021
Read from 96 of their posts and comments; links to the 42 this page draws on
- Jun 2025
- Apr 2026
- Apr 2026
- May 2023
- Apr 2022
- Sep 2025
- Jan 2022
- Sep 2023
- Aug 2025
- May 2022
- Feb 2022
- Sep 2022
- Apr 2026
- Sep 2023
- Sep 2022
- Apr 2023
- Feb 2023
- Nov 2023
- Jan 2026
- Nov 2025
- Dec 2023
- Sep 2023
- Dec 2025
- Apr 2026
- Jan 2022
- Jan 2022
- May 2022
- Sep 2022
- Apr 2023
- Oct 2025
- Sep 2022
- Oct 2022
- Sep 2022
- Aug 2023
- Apr 2024
- Apr 2025
- Jul 2022
- Oct 2022
- Oct 2022
- Nov 2025
- Sep 2022
- Jan 2022
Summary
They developed long COVID in late 2021 and spent months unable to function, barely walking around the block and largely bedridden by month six. Pacing, rest, a low-histamine diet, supplements, LDN and testosterone helped; they had regained about 60% by 2022, but by 2026 were working full time with difficulty and still far from their old baseline. Exercise, an MRI and a booster caused setbacks, and neuro symptoms and PEM remained.
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What they tried
What they credit
LDN (low dose naltrexone)· Helped a lot · maintestosterone· Helped a lotlow histamine diet· Helpedintermittent fasting· Helpedsalt water, hydration, electrolytes and compression socks· Helpedsalt water, hydration, electrolytes and compression socks· Helpedpotassium· HelpedCoQ10· Helpedriboflavin· Helpedfish oil / omega-3· Helpedaggressive resting· Helpedvestibular physical therapy exercises· Helpedpacing, cutting exertion and resting· HelpedCBD· HelpedAdderall / ADHD meds· Helpedgotu kola tea· Helpedcreatine· HelpedBCAAs· HelpedALCAR· Helpedvitamin D· Helped
Also tried
4-7-8 breathing· Helpedmagnesium (glycinate, threonate)· HelpedCove Beam· HelpedOasis supplements· Helpedmeclizine· HelpedPEA· Helpedapolactoferrin / lactoferrin· Helpedprednisolone acetate eye drops· Helpedtime· Helpedelimination diet· No changefamotidine· Worselight gym exercise and roller skating· WorseLion’s Mane (fresh and Oriveda extract)· WorseCOVID vaccination as treatment· Worsemini TENS machine on vagus nerve and cervical spine· Not saidmanuka honey· Not saidvitamin C· Not saidL-Glutamine· Not saidiron supplement· Not said
Their words about each treatment
- low histamine diet · Helped
It took me a month to notice improvement on a low histamine diet.
In context ↗ - intermittent fasting · Helped
I started a low histamine diet and intermittent fasting + other LH protocols and I eventually saw relief.
In context ↗ - salt water, hydration, electrolytes and compression socks · Helped
Taking potassium, magnesium, and salt with 64 oz of water every day helped a lot.
In context ↗ - 4-7-8 breathing · Helped
I tried the 4-7-8 breathing strategy
In context ↗ - potassium · Helped
Hitting my daily value of potassium and taking magnesium supplements helped those the most.
In context ↗ - magnesium (glycinate, threonate) · Helped
Taking Magnesium threonate and potassium stopped my internal and external vibrations.
In context ↗ - famotidine · Worse
when I took it, it made me feel CRAZY
In context ↗ - light gym exercise and roller skating · Worse
I hit the gym for an hour and did very light exercises at low weight.
In context ↗ - CoQ10 · Helped
Supplementing C0q10, riboflavin, magnesium, potassium, sodium, fish oil
In context ↗ - fish oil / omega-3 · Helped
LDN, BCAAs, ALCAR, Vit D (due to dx’d deficienxy), Omega-3s, and creatine have made the biggest differences for me over time.
In context ↗ - Cove Beam · Helped
I use/used Cove Beam most of the time out of convenience
In context ↗ - Oasis supplements · Helped
Cove Beam and Oasis supplements, aggressive resting
In context ↗ - aggressive resting · Helped
five or six months into a super strict anti inflammatory diet, Cove Beam and Oasis supplements, aggressive resting
In context ↗ - meclizine · Helped
Doc prescribed meclizine for the really bad episodes
In context ↗ - vestibular physical therapy exercises · Helped
some physical vestibular therapy exercises. The physical therapy helped
In context ↗ - mini TENS machine on vagus nerve and cervical spine · Not said
I bought a mini TENS machine and spent hours a day massaging my vagus nerve and cervical spine area.
In context ↗ - pacing, cutting exertion and resting · Helped
I started getting better when I stopped forcing myself to try and do as much as I used to.
In context ↗ - Lion’s Mane (fresh and Oriveda extract) · Worse
it felt like the front of my brain was on fire
In context ↗ - CBD · Helped
taking cbd at night helped me a ton
In context ↗ - LDN (low dose naltrexone) · Helped a lot
LDN has been my greatest addition, really turns down the C inflammation for me.
In context ↗ - PEA · Helped
took some PEA for nerve pain, fell asleep during a painful episode, and woke up an hour later feeling amazing, little pain
In context ↗ - testosterone · Helped a lot
T reduced my POTS / physical symptoms a lot. I went from severe LC to moderate.
In context ↗ - Adderall / ADHD meds · Helped
LDN and Adderall increased my baseline, but I’m still in this limbo state.
In context ↗ - gotu kola tea · Helped
I’ve had moderate energy increase every day from drinking gotu kola tea
In context ↗ - apolactoferrin / lactoferrin · Helped
took 1000mg lacto every day for a week
In context ↗ - manuka honey · Not said
1 tablespoon/21g Manuka Honey 829 MGO
In context ↗ - vitamin C · Not said
1000 mg Vitamin C
In context ↗ - L-Glutamine · Not said
10-20g L-Glutamine
In context ↗ - iron supplement · Not said
Iron supplement 325mg elemental iron: I used to take this
In context ↗ - elimination diet · No change
I did the elimination diet six years ago and it did nothing for this symptom.
In context ↗ - creatine · Helped
Omega-3s, and creatine have made the biggest differences for me over time
In context ↗ - vitamin D · Helped
Vit D (due to dx’d deficienxy)
In context ↗ - prednisolone acetate eye drops · Helped
Prednisolone acetate drops helpEd reduce pain and itchiness
In context ↗ - time · Helped
For me it was just time.
In context ↗ - COVID vaccination as treatment · Worse
I was left with mild fatigue for three days. For a couple weeks after that I had mild renewed adrenaline surges, internal vibrations, gut trouble, and so on.
In context ↗
Approaches: POTS medication · Amino acids and carnitine · Diet · Other drugs and medicines · Pacing · Radical rest · Sex hormones · Stimulants · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| October 2021 | long COVID began after COVID infection; unable to walk, mostly sleepingI couldn’t walk at all for the first month of LHIn context ↗ | Severe | |
| 2022-02-01 | crashed hours after an hour of light gym exerciseI hit the gym for an hour and did very light exercises at low weight. ... my brain/crown of my head suddenly felt like they were being squeezed.In context ↗ | Moderate | |
| mid 2022 | steadily better after pacing and resting; could walk 2.5 miles by 11 monthsmy greatest improvements began around month 7-10In context ↗ | Mild | Pacing and the energy envelope |
| September 2022 | neuro symptoms flared in the second week after the bivalent boosterDefintiely not as well as I was pre-booster, but nowhere near as bad as post-infectionIn context ↗ | Mild | |
| 2022-09-29 | back to their long-COVID normal with less brain fog after booster flare settledFirst week saw symptoms flare up, but now I’m basically back to normal, and with less consistent brain fogIn context ↗ | Mild | |
| 2023-08-17 | tolerating stimulants again and doing short low-intensity exerciseI also tapered up on my meds too, starting with 2.5 migraines every few days to 20 mg a day. No crashes.In context ↗ | Mild | Amphetamine salts (Adderall) |
| 2024-04-24 | heightened depersonalisation on a mountain triprecently i took another trip to a different mountain, and found myself experiencing heightened states of depersonalizationIn context ↗ | Mild | |
| early 2025 | crashed from rollerblading daily at 80% recovered to barely walking at homeI went from rollerblading daily after recovering 80% of my health, to unable to walk around my apartment.In context ↗ | Severe | |
| 2025-11-13 | moderate daily energy increase with gotu kola tea; short walks possibleI have enough energy to take short walks nowIn context ↗ | Moderate | |
| 2026-04 | about 60% recovered, working full time with difficulty, still limited by neuro symptomsI went from severe LC to moderate.In context ↗ | Moderate |
Adverse events
- Famotidine (Pepcid)“I tried 20mg famotidine last night and overwhelmed. I felt very out of it and had increased throbbing and pain in my legs, knees, and chest.” In context ↗ Side effects
- Famotidine (Pepcid)“when I took it, it made me feel CRAZY. I had a crazy high heart rate, irrational thoughts, sweats, increased twitching all over my body and legs, inability to sleep, and more.” In context ↗ Side effects
- Magnesium“but sometimes magnesium makes my heart face and can cause other weird issues, so maybe not.” In context ↗ Heart rhythm problems
- COVID vaccination as treatment“When I got my third shot, I had a strange immediate reaction — I nearly fainted, had brain fog, felt like I was having extreme low blood sugar, and started sweating cold sweat, hard.” In context ↗ Low blood pressure or fainting
- COVID vaccination as treatment“I was left with mild fatigue for three days. For a couple weeks after that I had mild renewed adrenaline surges, internal vibrations, gut trouble, and so on.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“Second week I’ve experienced a light return of neuro symptoms, sleep disturbance, weird dreams, faint intermittent tinnitus, back pain, intermittent clogged ear feelings, some mild vestibular migraine symptoms, and a faint increase in brain fog.” In context ↗ Made symptoms worse
- AHCC and medicinal mushrooms (reishi, shiitake, maitake)“the third time it was like a firecracker in my forehead. It wasn’t *quite* painful, but it was really strange and totally foreign. Felt like little fires popping up under my skin.” In context ↗ Side effects
- Low-dose naltrexone“I get terrible stomach problems if I take LDN pill. ... otherwise my bowels become a hellmouth” Gut side effects
- Low-dose naltrexone“I’m only on 1.5 mg/day because titrating up causes side effects” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityLoss of smell or tasteMast cell (MCAS) & allergiesNeuropathy & tinglingPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulation
Their words about their symptoms
- Post-exertional malaise
I have MECFS/Neuro subtype with PEM, POTS
In context ↗ - Brain fog
My short term memory is fried.
In context ↗ - Mast cell (MCAS) & allergies
briefly had MCAS symptoms for 1-2 years that are resolved
In context ↗ - Sleep problems
My insomnia is new levels of bad.
In context ↗ - Pain & fibromyalgia
swollen/painful wrists and joints
In context ↗ - Headaches & migraine
I still have vestibular migraines.
In context ↗ - Light & noise sensitivity
blue light sensitivity
In context ↗ - Breathlessness
stop every two minutes so I could catch my breath
In context ↗ - Heart symptoms & palpitations
Exertion raises HR quickly and too high so I move v slowly these days.
In context ↗ - Neuropathy & tingling
the vibrating in my chest, legs, torso, and head, as well as nerve spasms
In context ↗ - Anxiety & low mood
The anxiety and panic is gone but my neuro symptoms and PEM remain.
In context ↗ - Temperature regulation
My toes and fingers and body went cold regularly in the beginning.
In context ↗ - Loss of smell or taste
I also get a formaldehyde/alcohol taste in my mouth after eating certain foods
In context ↗
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