Long COVID with POTS, sciatica and near-inability to stand, much better after B12
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- Nov 2025
In their words
- Condition: Long COVID
I was one of the first cases of Long COVID symptoms before the shut downs even started and suffered greatly for almost 2 years.
In context ↗ - At worst: Severe
At one point, I only weighed 85 pounds and could barely stand on my own. I was in constant pain and slept all day due to exhaustion. ... I could barely get up to do simple tasks like eat or brush my teeth.
- Now: Much better
most of my symptoms subsided around year 3, but I still suffer with POTS, sciatica, heat sensitivity, fatigue, and short-term memory problems.
In context ↗ - Began after: COVID
doctors are pretty certain it was COVID
Read from 14 of their posts and comments; links to the 11 this page draws on
Summary
They fell ill in December 2019 with a probable COVID infection that lasted two months, leaving POTS, sciatica and fatigue. A mouldy house in April 2021 brought vomiting blood, 85-pound weight and near-inability to stand. A year of monthly B12 injections gave major relief and most symptoms subsided by year three, but POTS, sciatica, brain fog, heat sensitivity, fatigue and hair loss persisted, with depression.
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What they tried
What they credit
Also tried
Their words about each treatment
- inhaler (asthma medication) · Not said
if I wasn’t taking my inhaler every 4 hours, I probably would have died
In context ↗ - Liquid IV · Helped
Liquid IV is my elixir
In context ↗ - naturopath · Helped
She was the one who put the pieces together and figured out it could be a mold issue and ordered the tests
In context ↗ - deguгting the house (mold remediation) · Helped
After degutting the house to remove the trigger (mold)
In context ↗ - Vitamin B12 injections · Helped a lot
I took a year-long course of monthly injections to replenish the nutrients I had lost since my B12 levels were dangerously low. That provided tremendous relief.
In context ↗ - N95 masking · Helped
masking has drastically improved my physical health to the point where I no longer need asthma treatments
In context ↗ - physical therapy stretches · Helped
I do physical therapy stretches that have helped me be able to function.
In context ↗
Approaches: Mould avoidance · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| December 2019 | probable COVID infection at a wedding; high fever, coughing bloody phlegmI became seriously ill in December 2019 with an infection that persisted for 2 whole months!In context ↗ | Severe | |
| April 2021 | mould exposure triggered mycotoxicosis; vomiting blood, down to 85 poundsI was vomiting blood. I couldn’t keep food down and lost so much weight, I could barely stand up on my own.In context ↗ | Severe | |
| 2022 | improvement after a year of monthly B12 injectionsI started improving after a year of injections to replenish the nutrients I lost, but still have a lot of fatigue.In context ↗ | Moderate | Vitamin B12 |
| July 2025 | debilitaing depression, lost more weight, hair falling outI’ve sunken into a depression that on some days is so debilitating, I lack energy to do basic self-careIn context ↗ | Mild | |
| November 2025 | most symptoms subsided by year three; residual POTS, sciatica, fatigue, memory problemsmost of my symptoms subsided around year 3, but I still suffer with POTS, sciatica, heat sensitivity, fatigue, and short-term memory problems.In context ↗ | Mild |
Adverse events
- “I was finally able to get off medications that I’ve been on since I was a baby that have horrible mental health side effects.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
PEM (gravity pulling me down to the floor)
In context ↗ - Brain fog
but my brain fog still impacts me
In context ↗ - POTS & dysautonomia
I still unfortunately deal with POTS and sciatica flare ups
In context ↗ - Mast cell (MCAS) & allergies
I have anaphylaxis
In context ↗ - Sleep problems
I was in constant pain and slept all day due to exhaustion.
In context ↗ - Pain & fibromyalgia
I deal with almost daily pain in that area, accompanied by painful stabbing sensations that radiate throughout my legs.
In context ↗ - Headaches & migraine
Throat and ears were on fire, head was pounding
In context ↗ - Gut problems
I couldn’t keep food down
In context ↗ - Breathlessness
It was so bad I could barely breathe.
In context ↗ - Heart symptoms & palpitations
I experienced heart palpitations and tremors.
In context ↗ - Muscle weakness
I could barely stand up on my own
In context ↗ - Neuropathy & tingling
Excruciating stabbing sensations in my leg and agonizing electrical shocks throughout my body
In context ↗ - Anxiety & low mood
I’ve sunken into a depression that on some days is so debilitating
In context ↗ - Flu-like symptoms
Had to leave early after developing a high fever.
In context ↗ - Loss of smell or taste
smell of metallic/rusty/stale air
In context ↗ - Temperature regulation
I still suffer with POTS, sciatica, heat sensitivity, fatigue, and short-term memory problems.
In context ↗ - Hair loss
my face is sunken, and I’m losing hair.
In context ↗
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