Bedbound with long COVID, improved on supplements and diet, then relapsed after vaping
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 18 months
- Last post
- May 2024
In their words
- Condition: Long COVID
Two weeks after my 2nd jab I started developing symptoms, I got progressively worse for around 14 months.
In context ↗ - At worst: Moderate
At my worst it would flare all my lymph nodes up and make me bed bound after trying to work out.
In context ↗ - Now: Relapsed
I was supposed to write a long post about what cured me, I didn't because I relapsed - because I started vaping again.
In context ↗ - Began after: a vaccination
Two weeks after my 2nd jab I started developing symptoms
In context ↗
Read from 106 of their posts and comments; links to the 33 this page draws on
Summary
A male crossfitter who developed symptoms two weeks after his second vaccine dose, with palpitations, POTS, chest and back pain, brain fog, a rash and PEM that at his worst left him bedbound after workouts. After about 18 months a stack of nattokinase, L-glutamine, thiamine and magnesium, later a low-carb carnivore diet, brought him to 90-95%. He called himself 100% healed in April 2024, then relapsed after he started vaping again and later said it wasn't long COVID but vaping.
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What they tried
What they credit
Also tried
Their words about each treatment
- anti histamines / histamine blocking supps · Helped
Using anti histamine and histamine blocking supps daily atm
In context ↗ - magnesium · Helped
I've found amazing success with magnesium, vitamin B1, and glutamine - also adding nattokinase too
In context ↗ - thiamine (vitamin B1) · Helped a lot
I really think the game changer has been nattokinase, l glutamine and thiamine
In context ↗ - L glutamine · Helped a lot
L glutamine powder x 6g and magnesium iso (in an liquid suspension) First thing in the morning, results in a few days
In context ↗ - nattokinase · Helped a lot
Biggest things for me were adding nattokinase to my stack- upped me from 50% to 80%
In context ↗ - vitamin D · Helped
I followed the protocol of taking magnesium, thiamine, l glutamine, d1 and probiotics with enyzmes.
In context ↗ - probiotics · Helped
Yes sorry meant to add - daily biokult and digestive eyze probiotics
In context ↗ - DAO enzymes · Helped
Probiotics and enzymes (DAO)
In context ↗ - Testosterone replacement therapy (TRT) · Helped a lot
I ran a cycle of test e, and was fine all the way thru - no long Covid for 16 weeks
In context ↗ - aromasin · Helped
I use easily available aromisin and feel in immediate relief
In context ↗ - carnivore and low carb diet · Helped a lot
Low carb and nattokinase were absolutely key, as was L glutamine
In context ↗ - eliminating histamine reactions · Helped
Eliminating histamine reactions
In context ↗ - taurine · Helped
Too much can produce glutamate which can raise histamine levels and casue neuropathy, combat this with taurine
In context ↗ - boron · Helped
Fuck! This is why I feel good on boron!
In context ↗ - multi vit · Helped
Still take Nattokinase and a solid multi vitmain.
In context ↗ - narangin/naranginen · Helped a lot
The game changer now has been narangin/naranginen found in grapefruit!
In context ↗ - lactoferrin · Helped
Try nattokinase, narangin and lactoferrin it's worked wonders
In context ↗ - aspirin · No change
No aspirin didn't find it helped
In context ↗ - acyclovir · Worse
I'm doing this now, day three felt amazing, but now having a relapse. Chest feels much clearer tho, but making me feel faint and depressed, panicky
In context ↗ - extreme cardio / BJJ / CrossFit · Helped a lot
Massive relief from cardio above 110bpm for at least half an hour
In context ↗ - omeprazole · Helped
Omeprazole and l glutamine fixed this.
In context ↗ - tudca · Helped
Re the liver - tudca, zinc, glutathione and selenium
In context ↗ - astragalus · Helped
I also had issues with viral persistence which I addressed with astragalus, valtrex low dose and nattokinase
In context ↗
Approaches: H1 antihistamines · Proton pump inhibitors · Amino acids and carnitine · Anticoagulants · Antihistamines & MCAS · Antivirals · Diet · Exercise and activity · Sex hormones · Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| onset | symptoms began two weeks after second COVID jabTwo weeks after my 2nd jab I started developing symptomsIn context ↗ | |
| 12 mo | bedbound after attempting workouts, lymph nodes flaringAt my worst it would flare all my lymph nodes up and make me bed bound after trying to work out.In context ↗ | |
| 2022-11-07 | supplement stack gave instant change; about 80% betterThese changed my life instantly.In context ↗ | Nattokinase |
| 2022-11-27 | relapse after red wine, kebab and exerciseUnsure whether it's due to reinfection or the experimentIn context ↗ | |
| 2022-12-06 | carnivore diet plus stack; felt almost brand new and back to pre-COVIDI woke up this morning feeling almost brand new.In context ↗ | |
| 2023-01-02 | nattokinase then naringin took him to 90-95%The game changer now has been narangin/naranginen found in grapefruit!In context ↗ | |
| 2023-03-01 | relapse while trialling acyclovirday three felt amazing, but now having a relapseIn context ↗ | |
| 2023-06-18 | announced complete recovery after hormonal, gut and antiviral workI'm completely cured, and I'm going to share what I believe helped me tomorrowIn context ↗ | Testosterone |
| 2023-12-10 | reinfection after nearly a year of feeling normalSame mate after nearly a year of being pretty much normalIn context ↗ | |
| 2024-04-10 | 100% healed, playing rugby weekly and back in the gym1 year later 100% healedIn context ↗ | |
| 2024-05-22 | relapsed after starting vaping againI didn't because I relapsed - because I started vaping again.In context ↗ |
Adverse events
- Testosterone“I'm a male on TRT and have found my symptoms are increased when Estrogen is raised due to conversion of excess testosterone.” In context ↗ Made symptoms worse
- Nattokinase“I felt shit at first but now I'm feeling better, 2 weeks in” In context ↗ Made symptoms worse
- Acyclovir“I'm doing this now, day three felt amazing, but now having a relapse. Chest feels much clearer tho, but making me feel faint and depressed, panicky” In context ↗ Made symptoms worse
- Acyclovir“making me feel faint and depressed, panicky” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Pem came on after six months and lasted about 18 months.
In context ↗ - POTS & dysautonomia
alongside pots, raised BP
In context ↗ - Mast cell (MCAS) & allergies
allergic to gluten, alcohol and histamine.
In context ↗ - Pain & fibromyalgia
back and chest pain
In context ↗ - Headaches & migraine
The headaches and vision gets better
In context ↗ - Gut problems
severe acid reflux alongside pots, raised BP, stomach upset
In context ↗ - Breathlessness
no pain, no sob, no malais
In context ↗ - Heart symptoms & palpitations
Then I developed heart palpitations
In context ↗ - Neuropathy & tingling
neuropathy, internal vibrations
In context ↗ - Tinnitus
Yes like a buzzing in my ears
In context ↗ - Hair loss
Thin hair and facial hair
In context ↗ - Flu-like symptoms
it would flare all my lymph nodes up
In context ↗ - Anxiety & low mood
making me feel faint and depressed, panicky
In context ↗
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