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Long COVID Mild → somewhat betterIll 5 years before improving or writingNeeds ongoing treatment

Long COVID: barely able to walk to toilet, now partly better with supplements and rest

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
5 years
Last post
Jan 2026
In their words
  • Condition: Long COVIDI am now 5 years into this long COVID In context ↗
  • At worst: MildI have to work, so I need all my energy to seem normal to my coworkers, not drag the team down, and possibly not be fired. In context ↗
  • Now: Somewhat betterI feel like I am getting better, but so slowly, it doesn't seem to matter. In context ↗
  • Began after: COVIDContracted Covid-19 - March 2020
Read from 15 of their posts and comments; links to the 12 this page draws on

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Summary

A woman of 52 when COVID-19 hit in March 2020, she was so ill she could barely walk to the toilet or keep food down. She returned to work from home in June 2020 but has remained ill five years on, with fatigue, muscle pain, migraines, insomnia, breathlessness and vision problems. Magnesium, iron, B12, vitamin D and other supplements, rest and later nortriptyline, Lyrica and Cymbalta give partial relief; she still works.

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What they tried

Their words about each treatment
  • albuterol in a nebuliser form · Not saidmy doctor prescribed albuterol in a nebuliser form In context ↗
  • antibiotics, z-pack · Not saidmy doctor prescribed albuterol in a nebuliser form, antibiotics, steroids, z-pack In context ↗
  • steroids · HelpedI originally got prescribed a steroid which cleared up the very vicious coughing In context ↗
  • Claritin · Not saidI used lots of Claritin, Nyquil and Thera-Flu In context ↗
  • E-mergency · Not saidBoxes and boxes of E-mergency, finished half a Kirkland sized tub of acetaminophen In context ↗
  • acetaminophen · Not saidacetaminophen for the pain, aspirin 1 a day In context ↗
  • Magnesium · HelpedMagnesium and espresso coffee for my migraines In context ↗
  • espresso coffee · HelpedCaffeine: I make a good strong espresso each morning which I drink before my water. In context ↗
  • L-Tryptosine · HelpedMagnesium, L-Tryptosine, Liquid Valarian, HempZZZ, the generic form of singular (nightly), melatonin at high doses (9–12mg) for the insomnia In context ↗
  • Liquid Valarian · HelpedL-Tryptosine, Liquid Valarian, HempZZZ, the generic form of singular (nightly) In context ↗
  • HempZZZ · HelpedLiquid Valarian, HempZZZ, the generic form of singular (nightly) In context ↗
  • Singulair (montelukast) · HelpedNow I have a proair inhaler, Singulair (montelukast), nightly. In context ↗
  • melatonin · Helpedmelatonin at high doses (9–12mg) for the insomnia In context ↗
  • water · HelpedLots of water during the day on an hourly basis In context ↗
  • Ionised magnesium oil · HelpedIonised magnesium oil to rub on my body for pain In context ↗
  • CBD and THC · HelpedCBD and THC for pain - get a medical marijuana card if available where you are. In context ↗
  • pear juice · HelpedLots of pear juice as citrus seems to make the coughing and to breathe worse In context ↗
  • Broad-spectrum daily probiotics · HelpedBroad-spectrum daily probiotics In context ↗
  • pulse oximeter · Not saidI walk around with a pulse oximeter to monitor my heart In context ↗
  • a flonase type of nasal spray · Not saidI have two types of inhalers and a flonase type of nasal spray. In context ↗
  • B12 liquid · HelpedB12 liquid for energy from the fatigue In context ↗
  • Ginseng · HelpedGinseng for energy from the fatigue In context ↗
  • Cold Compress · HelpedCold Compress: wrap your head in cool/cold/frozen packs In context ↗
  • daily stationary cycling · WorseI tried daily stationary cycling, but I don’t have the energy. In context ↗
  • iron · HelpedIncreasing my iron, Vit-D and B12 In context ↗
  • oil of oregano · Helpedoil of oregano - 200mg/2xday In context ↗
  • vitamin A, C and E · Helpedhigh doses of vitamin A - 1500mcg/day, C - 5000+/ 2xday, D - 5000IU/day, and E 400 IU/day In context ↗
  • alcohol · WorseYeah, I tried too. Not a good idea. I was down and out for a few days, worse than I usually feel. In context ↗
  • rest and naps · Not saidrest and recover and naps everyday In context ↗
  • nortriptyline · HelpedI have even tried nortriptyline early in the illness and vomited every time I took it. In context ↗
  • Lyrica · HelpedNow it is part of managing my pain along with Lyrica, Singulair, Cymbalta, and 1/2 a dozen other meds. In context ↗

Their path

What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.

WhenWhat happened
March 2020COVID-19 onset, thought to be bronchitisI could barely walk to the toilet or keep any sustenance in my body. In context ↗
mid-June 2020back to work from home, napping every few hourswas able to sit in front of a computer and go back to work in mid-June 2020 In context ↗
March 2022felt she was slowly getting betterI feel like I am getting better, but so slowly, it doesn't seem to matter. In context ↗
March 2022crashed three days after a two-day work offsiteI could barely get up on Saturday and Sunday. In context ↗
January 2026five years into long COVID, still managing with many medicationsI am now 5 years into this long COVID, and the number of trials of drugs I have been through is significant. In context ↗

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseI pay dearly 48hrs after I do grocery shopping or clean the house. In context ↗
  • Brain fogdifficulty concentrating for long periods of time on any one thing—no focus In context ↗
  • POTS & dysautonomiaBalance issues, I would just lose my balance with no preamble In context ↗
  • Sleep problemsThe inability to sleep at all. I catch two to three hours a night In context ↗
  • Pain & fibromyalgiamuscle pain in the big muscle groups so that I can't walk or move properly In context ↗
  • Headaches & migraineMigraines and headaches of varying degrees In context ↗
  • Gut problemsNausea, slightly less now with no vomiting In context ↗
  • Breathlessnessshortness of breath still—on exertion In context ↗
  • Heart symptoms & palpitationsSudden heart palpitations when moving from a position of rest to motion In context ↗
  • Neuropathy & tinglingTingling and numbness in shoulder to fingers In context ↗
  • Anxiety & low moodStress / anxiety related fatigue In context ↗
  • Flu-like symptomsI had fevers coughing and sneezing, wheezing when breathing In context ↗
  • Tinnitussometimes diabolical combinations, like migraines and tinnitus In context ↗
  • Temperature regulationI'm cold all the time In context ↗
  • Vision problemsEyesight problems—I now have several different glasses I use during the day and I still can't see properly In context ↗

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