Long COVID
Severe → somewhat betterIll 2.5 years before improving or writing
Bedbound with long COVID, now somewhat better but still housebound, crediting time
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2.5 years
- Last post
- Nov 2025
In their words
- At worst: Severe
i was severe and bedridden, with psychiatric symptoms, brain fog extreme insomnia
In context ↗ - Now: Somewhat better
im 2+ years in but havent fully recovered however i am better.. still going hopefully one day
In context ↗ - Began after: COVID
In April 2023 i got covid for the second time
Read from 109 of their posts and comments; links to the 36 this page draws on
Summary
A man infected with COVID a second time in April 2023 developed vertigo and sinus problems, then became severely ill, bedbound and on disability after a fourth vaccine dose in November 2023. Lexapro left him sleeping 15 hours a day; antibiotics, isoprinosine and supplements did little, and he credited time. Two and a half years on he was about half recovered, still housebound with ear pressure, mucus and headaches.
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What they tried
Also tried
MDMA· Helped · wore offFlonase, saline rinse· Helpedlying in bed all day (radical rest)· No changeantibiotics (amoxicillin, clarithromycin)· No changeantibiotics (amoxicillin, clarithromycin)· No changeNAC· No changeTumeric· No changevitamins C· No changemultivitamin· No changenattokinase· No changebromelain· No changeomega 3 fish oil· No changevitamin D· No changevitamin B1,2,3,12· No changemagnesium· No changeselenium· No changeserrapeptase· No changemelotonin· No changecoq10· No changecats claw· No changeprobiotics· No changeantihistamine· No changelexopro· WorsePfizer 4th shot (booster)· Much worseeastern meds· Not saidmullein· Not saidisoprinosine· Not saidProfi Nasal Spray· Not said
Their words about each treatment
- lying in bed all day (radical rest) · No change
i have tried to lay in bed everyday and just eat and pee.. not sure it made much of a difference
In context ↗ - antibiotics (amoxicillin, clarithromycin) · No change
i took 2 types of antibiotics for 1 month ... the symptoms lasted longer than a couple of months then i tried antibiotics and they did nudda
- NAC · No change
not sure it has been helping me at all
In context ↗ - Tumeric · No change
Not sure any of it actually did anything though. May have been more of a placebo effect.
In context ↗ - vitamins C · No change
vitamin D,C, B1,2,3,12 ... and probiotics that have done nothing
In context ↗ - multivitamin · No change
i took random crap like NAC, Tumeric, vitamins C, multivitamin, nattokinase, bromelain, and omega 3 fish oil
In context ↗ - nattokinase · No change
Not sure if i felt better or not sometime days i think i felt worse but then some days better
In context ↗ - bromelain · No change
Bromelain,nattokinase,coq10, cats claw, and probiotics that have done nothing
In context ↗ - omega 3 fish oil · No change
I still take vitamin D, C and omega 3s
In context ↗ - magnesium · No change
magnesium, serrapeptase, melotonin, selenium ... and probiotics that have done nothing
In context ↗ - selenium · No change
serrapeptase, melotonin, selenium, omega 3 ... and probiotics that have done nothing
In context ↗ - probiotics · No change
cats claw, and probiotics that have done nothing
In context ↗ - eastern meds · Not said
iv tried eastern meds
In context ↗ - mullein · Not said
i have taken antiviral supported antivirals and immune boosters such as mullein, NAC, vitamin C, fish oil
In context ↗ - MDMA · Helped
i know this may sound wild but MDMA actually helps.. is it cause it suppresses my immune system cause of autoimmunity or not or just a temp relief because of serotonin release who knows
In context ↗ - antihistamine · No change
Antihistamines dont work for me.. its not that for me
In context ↗ - Pfizer 4th shot (booster) · Much worse
regret it 100% it made me absolutely worse.. The long covid thing was nothing compared to what happened after the booster.
In context ↗ - lexopro · Worse
I was on Lexopro for about 6 months and it made me way worse and i thought i was crazy
In context ↗ - isoprinosine · Not said
I think did something at least id like to think.. but definitely not cured.. and still feel like garbage.. dont think i will buy more
In context ↗ - Flonase, saline rinse · Helped
I use Flonase, saline rinse and it helps a bit but it non stop comes back
In context ↗ - Profi Nasal Spray · Not said
I use it when i go out and when family are sick, however i feel like shit all the time so iuno if it works or not.
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| April 2023 | second COVID infection, then vertigo and sinus/ear infectionIn April 2023 i got covid for the second time the acute phase lasted 2ish weeksIn context ↗ | Mild | |
| July 2023 | symptoms escalated after a party with MDMA3 months after my covid infection and the day after my mdma experience i started to get these seizure like symptomsIn context ↗ | Mild | |
| November 2023 | crashed after fourth COVID vaccine, about 80% bedboundto full on 80% bed bound after the vaccineIn context ↗ | Severe | |
| June 2024 | slept 15 hours a day on Lexapro and moved from severe to moderatei think i slept my way from severe into moderate.. im still not sure if this is even possible.. i feel a little betterIn context ↗ | Moderate | Escitalopram (Lexapro) |
| August 2024 | side effects and withdrawal while coming off LexaproIm recovering from Lexopro it messed with my mind, body and soul.. withdrawal is badIn context ↗ | Moderate | |
| October 2024 | slow gradual improvement over monthsi feel like i am a lot better than 6 months ago… but sometimes i feel like i cannot get back to 100% but we will see…In context ↗ | Moderate | |
| July 2025 | still housebound but rates himself about halfway backits bad now but id say im in 10% compared to how i was.. even though id rate my recovery at 50%In context ↗ | Moderate | |
| November 2025 | still ill, partial benefit from antiviralsAntivirals have worked but not completely so speak for yourself.In context ↗ | Moderate |
Adverse events
- Amoxicillin (Amoxil), Clarithromycin (Biaxin)“The light headedness was going away but i believe the antibiotics kept the dizziness around.” In context ↗ Side effects
- COVID vaccination as treatment“I got the covid 4th vaccine shot 3 weeks ago and felt a tiny bit better the first few days then i came crashing down all over again.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“and instead it promoted my long covid to full on me/cfs” In context ↗ Made symptoms worse
- COVID vaccination as treatment“regret it 100% it made me absolutely worse.. The long covid thing was nothing compared to what happened after the booster.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“i started to get extreme insomnia, burning sensations, cold and hot dysfunction, increased depression, and random psychiatric symptoms like DPDR” In context ↗ Mood or psychiatric effects
- Escitalopram (Lexapro)“i started to get really really drowsy and was sleeping and sleeping and sleeping almost 15 hours a day” In context ↗ Side effects
- Escitalopram (Lexapro)“lexopro didnt make my mucus disappear it just added massive headaches and Nasuea and made things 100x worse.” In context ↗ Side effects
- Escitalopram (Lexapro)“I was getting all kinds of akathisia or some shit my mind was messed up” In context ↗ Mood or psychiatric effects
- Escitalopram (Lexapro)“im currently trying to get off lexopro cause it made me basically crazy… and now im getting my ass kicked pretty hard” In context ↗ Withdrawal problems
- Nattokinase“with 30 minutes my ears started popping like crazy and i felt a bit dizzy” In context ↗ Side effects
- “I myself have sleep problems and sleep meds just makes it all worse.” In context ↗ Made symptoms worse
- Amoxicillin (Amoxil), Clarithromycin (Biaxin)“whenever i took antibiotics for infections i always felt like crap the first few days.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessFlu-like symptomsHeadaches & migraineHeart symptoms & palpitationsNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulation
Their words about their symptoms
- Brain fog
its so much better now but the emotional.. thinking.. visualization and processing is still damaged
In context ↗ - Sleep problems
heart rate going insane, nightmares, sleep problems
In context ↗ - POTS & dysautonomia
then it all comes back the ear pressure, the mucus, the heart pains, coughs, vertigo, headaches
In context ↗ - Heart symptoms & palpitations
the heart problems started.. and many other symptoms came
In context ↗ - Anxiety & low mood
I do have depression sometimes out of nowhere as the symptoms return
In context ↗ - Headaches & migraine
i dont have the void as much now just constant head pressure and headaches
In context ↗ - Flu-like symptoms
i feel like a bad flu that goes away and comes back
In context ↗ - Temperature regulation
temperature intolerance ,sweating, heart rate going insane
In context ↗ - Breathlessness
its hard to breathe at times
In context ↗ - Pain & fibromyalgia
burning skin, bone aches
In context ↗ - Neuropathy & tingling
i started to get extreme insomnia, burning sensations
In context ↗ - Post-exertional malaise
For me its mostly PEM i think.. but im not even sure
In context ↗