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Long COVID Mild → near normalIll 1 year before improving or writing

Long COVID with daily fatigue, now nearly back to normal after a Pfizer dose

Condition
Long COVID
At worst
Mild (working or studying, with limits)
Ill before improving or writing
1 year
Last post
Jan 2022
In their words
  • Condition: Long COVIDI got sick at the very end of February and it wasn't totally resolved until probably late June early July. In context ↗
  • At worst: Mildunlike many my fatigue has also been fairly mild considering. Let's say mild to moderate and with a mild case of narcolepsy. In context ↗
  • Now: Near normalI'm better now. Had substantial improvement around month 4 to 5 but still some milder stuff for up to maybe close to a year In context ↗
  • Began after: COVIDI got sick at the very end of February
Read from 58 of their posts and comments; links to the 23 this page draws on

Request to remove this story

Summary

Maple 13735 fell ill with COVID-19 in late February 2020, worst in weeks two to three, with mild-to-moderate fatigue and a daily need to lie down. They improved gradually, though a probable reinfection in December 2020 brought mild POTS and sinus headaches. A first Pfizer dose in March 2021 cut headaches, eye pain and random fatigue by 75-90%; the second changed nothing. By January 2022 they were better, with milder symptoms for up to about a year.

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What they tried

Also tried

Zyrtec· Helpedinhalers and medicine· HelpedAdvil· Helpeddecaf coffee· Worseice packs· Not saidpainkillers· Not said
Their words about each treatment
  • bromelain · Helpedothers are saying bromelain which is a supplement is also helpful. I am using it and have found it somewhat helpful In context ↗
  • vitamin B12 · HelpedSome people have reported success with vitamin B12 also so that might be worth trying in your case. It was helpful but not incredibly so for me. In context ↗
  • fish oil · HelpedTime slowly integrating things that required a lot of thought and fish oil I think all helped. In context ↗
  • Zyrtec · HelpedOne thing that did help me quite a bit was taking Zyrtec. After taking that for probably a week and continuing to take it I've been able to handle these triggers much better. In context ↗
  • ice packs · Not saidNot a ton but I had this symptom relatively mild. Ice packs and painkillers basically In context ↗
  • inhalers and medicine · Helpedhave had exercise induced asthma ever since but it is controllable with inhalers and medicine In context ↗
  • flu shot · HelpedI had a bit of improvement after the flu shot In context ↗
  • decaf coffee · WorseI was no better with decaf than with regular. Arguably worse I tried it once and it was horrible In context ↗
  • Advil · HelpedI have had it on and off since March. It only stopped maybe one to two months ago completely. It was getting easier to treat with like Advil overtime. In context ↗
  • Pfizer vaccine · HelpedFirst dose pfizer reduced frequency of headaches eye pain and random fatigue by 75 to 90%. In context ↗

Approaches: Supplements · Vaccination

Their path

Very severeSevereModerateMildNear normalRecoveredonset6 mo12 mo18 mo

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
end of February 2020COVID-19 onsetI got sick at the very end of February and it wasn't totally resolved until probably late June early July. In context ↗Mild
weeks 2-3, March 2020worst point of the illnessWorst for me was week 2-3. Gradual improvement since then In context ↗Mild
late April 2020probable mild reinfection with new symptomsThere is some debate whether I got a mild reinfection in late April because I had a bunch of new symptoms roll in that were completely different and crazy. In context ↗Mild
August 2020basically better with a few lingering thingsI still have a few lingering things but I'm basically better In context ↗Near normal
December 2020probable reinfection with mild POTS and sinus headaches afterI did get a mildish case of pots for about a month after though as well as sinus headaches for several weeks but it's now gone In context ↗Mild
February 2021back to baseline with occasional symptomsAbout 11 months in and at baseline more or less with some oddities here and there mostly muscle aches, some coughing, and random fatigue which is not severe. In context ↗Near normal
March 2021first Pfizer dose cut headaches, eye pain and random fatigueFirst dose pfizer reduced frequency of headaches eye pain and random fatigue by 75 to 90%. In context ↗Near normalCOVID vaccination as treatment
January 2022better, milder symptoms lasted up to about a yearI'm better now. Had substantial improvement around month 4 to 5 but still some milder stuff for up to maybe close to a year In context ↗Near normal

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Brain fogFour months or so for me although I've had periodic issues with it since then usually for a short time. In context ↗
  • Headaches & migraineI have had it on and off since March. It only stopped maybe one to two months ago completely. In context ↗
  • Neuropathy & tinglingI've had the same stupid tingling in the back of my head and headaches In context ↗
  • POTS & dysautonomiadid have some lingering after the second one mostly mild pots In context ↗
  • Heart symptoms & palpitationsBreathing and heart stuff had already previously resolved before I took the vaccine. In context ↗
  • BreathlessnessProbably about 3 to 4 months for SOB to improve but I still get it once in a rare while In context ↗
  • Loss of smell or tasteloss of about 80% of my smell and 50% of my taste for a couple days In context ↗
  • Pain & fibromyalgiasome oddities here and there mostly muscle aches In context ↗
  • Flu-like symptomsLow grade fever returned, white snot, swollen lymph nodes, sore tonsils In context ↗
  • Vision problemsModerate eye pain and slightly blurry vision with it In context ↗
  • Mast cell (MCAS) & allergiesmy SOB at this point mostly has been triggered from things that I have allergic like reactions to In context ↗

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