Bedridden with long COVID and POTS, now much more functional on metoprolol
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- Not stated
- Last post
- Jun 2024
In their words
- Condition: Long COVID
I have pots and long covid.
In context ↗ - At worst: Severe
I was straight up bed ridden my nausea and dizziness was so bad.
In context ↗ - Now: Much better
I’ve noticed I’m much more “functional” ... I can actually complete tasks and no my limits.
In context ↗ - Began after: COVID
since developing long covid and POTS
In context ↗
Read from 7 of their posts and comments; links to the 7 this page draws on
Summary
The user developed long COVID and POTS and was bedridden with severe nausea and dizziness. They became much more functional after starting treatment including extended-release metoprolol, able to complete tasks, and later went for a walk after leaving the city for the countryside. Metformin made things worse. They still had POTS and long COVID, though metoprolol helped quite a bit.
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What they tried
What they credit
Their words about each treatment
- fludrocortisone · Helped
I’m on it and metoprolol ER and it helps significantly
In context ↗ - metoprolol ER · Helped
I am on metoprolol extended release. It helps quite a bit.
In context ↗ - Flonase · Not said
I’ve been using Flonase quite a bit and taking Tylenol
In context ↗ - metformin · Worse
I quit taking medformin made stuff worse idk why
In context ↗ - leaving the city for the country or woods · Helped
I definitely feel better leaving my city and going to the country or woods.
In context ↗
Approaches: POTS medication · Beta-blockers · Mould avoidance
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, in the order they describe; they don’t give enough times to place each step. Hover or tap a point. 3 steps say too little to place on the scale and are only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| onset | developed long COVID and POTSsince developing long covid and POTSIn context ↗ | Not stated | |
| — | bedridden with severe nausea and dizzinessI was straight up bed ridden my nausea and dizziness was so bad.In context ↗ | Severe | |
| 2023-12-30 | more functional on fludrocortisone and metoprololI’ve noticed I’m much more “functional” ... I can actually complete tasks and no my limits.In context ↗ | Mild | Fludrocortisone / Florinef |
| 2023-12-30 | COVID reinfection caused a long COVID/POTS flareI got reinfected too and tested positive 3 days ago. ... I’m just feeling a normal long covid/pots flare up type thing today.In context ↗ | Not stated | |
| 2024-05-02 | metformin made symptoms worseI quit taking medformin made stuff worse idk whyIn context ↗ | Not stated | |
| 2024-05-23 | felt better leaving city for country/woods and went for a walkI definitely feel better leaving my city and going to the country or woods. I even went for a walk today and it felt a good type of tired when I got home.In context ↗ | Mild | Relocation and environmental change |
| 2024-06-05 | still has POTS and long COVID; metoprolol helps quite a bitI have pots and long covid. I am on metoprolol extended release. It helps quite a bit.In context ↗ | Mild |
Adverse events
- Metformin“I quit taking medformin made stuff worse idk why” In context ↗ Made symptoms worse
- “I had RNY Gastric Bypass in 2016 and had struggled with issues since having it like dysphasia.” In context ↗ Other
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
I have pots and long covid.
In context ↗ - Gut problems
my nausea and dizziness was so bad
In context ↗ - Pain & fibromyalgia
body aches the first 2 days
In context ↗ - Temperature regulation
body temperature regulation is off
In context ↗
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