Long COVID with brain fog and dizziness, nearly back to normal after gentle activity
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 1 year
- Last post
- Jan 2024
In their words
- Condition: Long COVID
First time I got long COVID I didn't understand it and I was worried I might have some kind of terminal disease
In context ↗ - At worst: Mild
I'm not bedridden, I can go and do shopping and I can attend my classes
In context ↗ - Now: Near normal
I still have photophobia which is stress and sleep related ... I'm feeling much better
- Began after: COVID
had covid 3 times, but only 2 times I've been long hauling with symptoms much more different than the one time I wasn't
Read from 11 of their posts and comments; links to the 8 this page draws on
Summary
A 23-year-old man developed long COVID in November 2022, his second long-haul episode. At worst he had tachycardia, panic attacks, brain fog, dizziness and light sensitivity, but was never bedridden and kept attending classes. He credited gentle activity, mental activity, magnesium and more fruit; after about a year the physical symptoms had largely gone, leaving stress-linked photophobia and anxiety.
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What they tried
What they credit
Also tried
Their words about each treatment
- magnesium supplements · Helped
Magnesium was again a huge rescue
In context ↗ - diet changes (eating more fruit) · Helped
introducing some diet changes (eating more fruit)
In context ↗ - nap · Helped
Sometimes I get relief if I take a nap
In context ↗ - occasional vitamin supplement · Not said
a occasional vitamin supplement after eating
In context ↗ - being semi active (shorter walks, neck and eye exercises) · Helped a lot
the thing that helped me the most was being semi active (going for shorter walks and performing some neck and eye exercises)
In context ↗ - massaging my head · Helped
I feel better when I massage my head
In context ↗ - breathing exercises · Helped
I've noticed a lot of imporevemnt doing those
In context ↗ - probiotics · Helped
I bought some probiotics which I tried yesterday and I'm no longer in this need to go to the bathroom that urgently
In context ↗ - paracetamol · Helped
my headaches get also better with paracetamol
In context ↗ - keeping the jaw relaxed · Helped
Today I'm actively taking care that my jaw is relaxed and I didn't experience a tension headache today
In context ↗ - stretching of the big muscle groups · Helped
simple stretching of all of the big muscle groups makes the pain go away immedietly
In context ↗ - accepting the situation and stopping worrying · Helped
Once I stopped worrying so much, I started getting better sleep and sleeping well is what helped me get through those annoyingly lingering symptoms
In context ↗
Approaches: Exercise and activity · Mind-body practices · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. The chart starts 2 months after onset: the story doesn’t say how ill they were before that. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| early January 2023 | tachycardia, panic attacks, brain fog, dizziness, light sensitivity; not bedriddenI've been 8 weeks into my long haul and I've got to say I had everything: tachycardia, panic attacks/adrenaline dumps, constant feel of anxietyIn context ↗ | Mild | |
| 2023-01-10 | most symptoms gone; left with eye strain, headaches, diarrheaI'm lucky to start noticing almost exponential improvement in the last 7 daysIn context ↗ | Mild | Everyday exercise and activity |
| 2023-01-14 | crashed after a cold; long haul symptoms worse for a few daysThe diarrhea started after getting over an additional cold a week ago that kinda made my LH symptoms worse for a few days.In context ↗ | Mild | |
| October 2023 | physical symptoms largely gone; photophobia and dizziness remainthe physical part of this long hauling is very long gone I believeIn context ↗ | Mild | Everyday exercise and activity |
| 2024-01-07 | feeling much better; remaining stress-linked photophobia and anxietyIt's been a year after I went through literal mental and physical hell and I'm feeling much better.In context ↗ | Near normal |
Symptoms mentioned
Their words about their symptoms
- Brain fog
brain fog (couldn't remember certain words, mind was literally blank)
In context ↗ - POTS & dysautonomia
Now the dizziness/unsteady feeling.
In context ↗ - Sleep problems
I also can't sleep for longer than 6-7 hours
In context ↗ - Pain & fibromyalgia
My muscle pains are almost completely gone
In context ↗ - Headaches & migraine
these annoying tension headaches
In context ↗ - Gut problems
I developed diarrhea and tension type headaches
In context ↗ - Light & noise sensitivity
I still have photophobia which is stress and sleep related
In context ↗ - Heart symptoms & palpitations
Adrenaline dumps and heart palpitations happen maybe once a day and last for a few minutes
In context ↗ - Neuropathy & tingling
I also get numbness in my extremities and my arm muscles tend to get sore
In context ↗ - Anxiety & low mood
I developed anxiety after worrying too much
In context ↗ - Breathlessness
breathing has stabilized and no longer do I feel constantly out of breath
In context ↗ - Vision problems
my tired eyes have improved and I feel discomfort only when I overdo it by looking at my screen
In context ↗
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