Long COVID
Moderate → much betterIll 3.5 years before improving or writingNeeds ongoing treatment
Long COVID left work and study impossible; much better with time and lansoprazole
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 3.5 years
- Last post
- May 2025
In their words
- Condition: Long COVID
This was until mid-January when my long covid nightmare began.
In context ↗ - At worst: Moderate
I'm at the point where I can't work, or go to school.
In context ↗ - Now: Much better
Since then i’ve been feeling good enough to work which is a huge step for me. Still tired all the time, achey legs, dizziness, and hair loss.
In context ↗ - Began after: COVID
I first got covid-19 in late December of last year, with a sore throat only lasting a week.
Read from 39 of their posts and comments; links to the 21 this page draws on
Summary
Jake fell ill with Omicron COVID in December 2021 and developed long COVID in mid-January 2022, with constant nausea, panic attacks, brain fog and leg weakness that at worst left him unable to work or study. Lansoprazole, ginger and smaller meals eased the nausea, and time brought slow improvement, while supplements and diets made no difference and Lexapro only slightly reduced his anxiety. Three years on, anxiety, aching legs, stomach trouble, poor sleep and fatigue remained.
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What they tried
What they credit
Also tried
anti-fungal· Helped a lotlight diet avoiding greasy/fast food· Helpedadvil· HelpedPepcid· Helpedginger candies· Helpedmeditation video / rain sounds· HelpedLexapro· HelpedZyrtec· HelpedReplesta· No changeprobiotics· No changelow-histamine and anti-inflammatory diets· No changeCo-enzyme Q10· No changeB12· No changemagnesium· No changeeczema cream· No changeL-Theanine· No changeNAC· No changeAcetyl-L-Carnitine· No changeSertraline· WorseTums· Not saidMulti-Vitamins· Not saidgoing to the gym· Not said
Their words about each treatment
- Replesta · No change
Even with the boosted vitamin D, nausea began to come in waves throughout the day, and new symptoms began to arise.
In context ↗ - probiotics · No change
today is my first day of taking probiotics, and changing my diet
In context ↗ - light diet avoiding greasy/fast food · Helped
I have changed my diet, and adjusted to a more light diet, avoiding greasy/fast food, which has made the nausea a tiny bit better.
In context ↗ - advil · Helped
usually gets better after taking advil
In context ↗ - Lansoprazole · Helped
I just started taking an anti-acid medication along with probiotics, and my nausea has gotten significantly better.
In context ↗ - Pepcid · Helped
compared to Pepcid, and Tums, it seems to work the best
In context ↗ - ginger candies · Helped
I've also noticed that ginger candies seem to really help with my nausea as well.
In context ↗ - Multi-Vitamins · Not said
I am taking supplements such as Vitamin D, Probiotics, and Multi-Vitamins.
In context ↗ - going to the gym · Not said
I've started going to the gym, which has obviously not been easy with everything happening in my body
In context ↗ - low-histamine and anti-inflammatory diets · No change
I've tried both low-histamine and anti-inflammatory diets, with none making a huge difference.
In context ↗ - meditation video / rain sounds · Helped
I use relaxing rain sounds or I'll put on a meditation video before I go to bed and it usually helps me calm down.
In context ↗ - Co-enzyme Q10 · No change
I've been taking all three for the past month along with magnesium, and a daily probiotic, and I can confidently say that *nothing* has changed.
In context ↗ - B12 · No change
he found I was low in vitamins D3 and B12
In context ↗ - Sertraline · Worse
Sertraline gave me horrible side effects
In context ↗ - Lexapro · Helped
I'm currently on 10 mg of Lexapro, and while I've noticed a slight decrease in my anxiety, it hasn't really been a game changer for me.
In context ↗ - anti-fungal · Helped a lot
I took an anti-fungal and after about a week my GI issues were completely resolved.
In context ↗ - eczema cream · No change
I used it for longer than I needed to and it didn't even improve a little bit.
In context ↗ - L-Theanine · No change
I haven't noticed any difference with those either so I'm not going to continue taking those aside from the Vitamin D.
In context ↗ - Zyrtec · Helped
Pepcid and Zyrtec is what made a noticeable difference for me.
In context ↗ - time · Helped
Time seems to be the only factor i’ve noticed has improved my symptoms.
In context ↗
Approaches: Proton pump inhibitors
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| mid-January 2022 | long COVID began with night-time nausea and body tremors, then a panic attackThis was until mid-January when my long covid nightmare began.In context ↗ | Mild |
| February 2022 | constant nausea, panic attacks, brain fog, breathlessness; kept delivery job but had to leave earlyI couldn't get through a full day without experiencing at least one of these symptoms.In context ↗ | Moderate |
| June 2022 | nausea less severe and less frequent; able to work out about 30 minutesI have seen slight improvement from the first two months.In context ↗ | Mild |
| June 2022 | relapse of non-stop nausea and strong fatigueI seem to be having a relapse with my symptoms, because my nausea this week has been non-stop, and my fatigue has been strong this past week.In context ↗ | Mild |
| July 2022 | worst symptoms all better but vision problems bothering him mostI still deal with all of them, but they’ve all gotten a lot better.In context ↗ | Mild |
| December 2022 | supplements changed nothing; unable to work or go to schoolI'm at the point where I can't work, or go to school.In context ↗ | Moderate |
| January 2023 | significantly better past the year mark, not back to 100%I just passed the year mark and I've gotten significantly better.In context ↗ | Mild |
| July 2023 | antifungal for candida overgrowth made stomach more stableShe treated me for an over growth of candida and my stomach has been a bit more stable since then.In context ↗ | Mild |
| November 2023 | well enough to work again, though still tired, achey and dizzySince then i’ve been feeling good enough to work which is a huge step for me.In context ↗ | Mild |
| March 2025 | still symptomatic every day; gave up chasing a diagnosisI'm honestly at a point in my life where I've given up chasing an answer. It sucks, because I still feel it everyday, but I try to find ways to distract myself.In context ↗ | Mild |
Adverse events
- Sertraline (Zoloft)“Sertraline gave me horrible side effects, and i’ve been hesitant to start another SSRI since then.” In context ↗ Side effects
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsHair lossHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulationTinnitusVision problems
Their words about their symptoms
- Post-exertional malaise
Post-Exertional Malaise
In context ↗ - Brain fog
Brain fog - Have trouble reading at a normal pace, worsened memory, and frequently lose train of thought.
In context ↗ - POTS & dysautonomia
Since then I still deal with dizziness, restless leg syndrome, and fatigue.
In context ↗ - Sleep problems
Sleep Issues - Trouble falling asleep, wake up startled in the middle of the night with my heart racing, or I wake up at irregular times like 4-6 AM.
In context ↗ - Pain & fibromyalgia
Leg pain - Some days my legs will feel hot and weak, making it difficult for me to stand, while others my legs are in extreme pain, which make it painful to stand or walk.
In context ↗ - Headaches & migraine
Migraines - Throbbing behind eyes, or on the back of my head, usually gets better after taking advil.
In context ↗ - Gut problems
My main symptoms I'm still dealing with are anxiety, weakness/aching in my legs, stomach issues, trouble sleeping, and fatigue.
In context ↗ - Light & noise sensitivity
Light and noise sensitivity - Constantly confuse cars for having high beams on, and regular lights strain my eyes.
In context ↗ - Breathlessness
Difficulty breathing - I always find myself running out of breath after talking, or singing.
In context ↗ - Heart symptoms & palpitations
waking up with adrenaline in the middle of the night with my heart racing thinking it's a heart attack
In context ↗ - Muscle weakness
leg weakness and twitching are my worst two symptoms at the moment.
In context ↗ - Neuropathy & tingling
I just so happened to develop Peroneal Nerve damage in my right foot too at 20 years old.
In context ↗ - Anxiety & low mood
Constant Anxiety - Mind races, frequently think about unrealistic scenarios.
In context ↗ - Temperature regulation
Occasionally on the road, my body will feel too hot, and when I roll down the windows, it becomes too cold, almost as if my body is struggling to find a comfortable temperature.
In context ↗ - Vision problems
Vision - Blurry vision, best way to describe it is feeling like things around you move slower than the speed you look around.
In context ↗ - Hair loss
Still tired all the time, achey legs, dizziness, and hair loss.
In context ↗
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