Bedridden with ME/CFS for two months, now much better, credits diet
- Condition
- ME/CFS
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 10 months
- Last post
- Mar 2019
In their words
- Condition: ME/CFS
I see a natural practice doctor for my CFS and fibro
In context ↗ - At worst: Severe
I was severe when I started - bedridden for 2 months, and then housebound for many months longer
In context ↗ - Now: Much better
My journey is certainly not over yet, but I can’t believe how far I’ve come in 10 months.
In context ↗ - Began after: another virus
got struck down very suddenly after having flu
Read from 11 of their posts and comments; links to the 4 this page draws on
Summary
Cardinal 53233, 28, was bedridden for two months after a sudden flu onset, with pain, weakness, brain fog and light and noise sensitivity. A private natural-practice doctor put them on a sugar- and yeast-free diet with L-carnitine, D-ribose, CoQ10, magnesium and zinc; they credit the diet as crucial, and also had pacing, yoga therapy, counselling and energy healing. Ten months in they walked 20 minutes a day, tutored three hours a week and volunteered.
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What they tried
What they credit
Also tried
Their words about each treatment
- sugar and yeast free diet · Helped a lot
I don’t think I could have done it without the diet
In context ↗ - L Carnitine · Helped
taking L-Carnitine, D-Ribose and Co-Enzyme Q10 for my energy
In context ↗ - Magnesium · Helped
Magnesium ... Zinc ... Copper
In context ↗ - personalised herbal remedies · Helped
a few personalised herbal remedies for my specific symptoms
In context ↗ - strict bedrest · Helped
I was on strict bedrest (and was all I could do for the first few months)
In context ↗ - pacing · Helped
pacing being a vital part of recovery, in order to manage P.E.M
In context ↗ - yoga nidra, body scanning, mindfulness · Helped
learning to listen to my bodies needs through yoga nidra, body scans, mindfulness practise - which I do without fail 1-2 times a day
In context ↗ - 1:1 yoga therapy · Helped
I was extremely lucky to get 1:1 yoga therapy sessions at home, which have been instrumental to my physical recovery
In context ↗ - person centred counsellor · Helped
I’m sure this whole chapter helped my recovery, I felt lighter over time
In context ↗ - Energy healer, reiki master and spiritual counsellor · Helped
I felt stronger in myself than I had in a whole year
In context ↗ - TRE (trauma release exercise) · Helped
very recently I’ve started TRE (trauma release exercise) which I think has helped
In context ↗ - massage · Helped
massage - either myself or from husband, trained masseuse
In context ↗ - journal and affirmations · Helped
writing a regular journal, exploring past trauma that has affected me, counselling if possible
In context ↗
Approaches: CBT & mindset · Alternative therapies · Amino acids and carnitine · Diet · Mind-body practices · Pacing · Radical rest · Supplements · Trauma & somatic work
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step has no time and sits in story order between the steps around it. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| 2018 | Sudden collapse after fluOne day I could walk, and the next I couldn’t get up off the sofa.In context ↗ | Severe | |
| two months into illness | Bedridden, carried upstairs, crawling to the doorI was 2 months into my CFS and had just started to be able to leave my bedroom, by shuffling my bum down the stairs to the living room and being carried up at the end of the day.In context ↗ | Severe | |
| 6 months into the programme | Energy jumped; able to leave the house 5-10 minutes a day6 months I suddenly noticed a huge improvement in my energy, and I started to be able to leave the house for 5-10 minutes a day.In context ↗ | Moderate | Cutting out sugar (low-sugar diet) |
| during recovery | Crashed after overdoing it, bedridden for daysObviously some days I overdid it and got PEM, bedridden again for daysIn context ↗ | Severe | |
| 2019-03-19 | Walking 20 minutes a day, tutoring 3 hours a week, volunteering one afternoonI am able to walk about 20 mins a day without PEM (so long as I have a good 2 hour rest afterwards!), I am tutoring 3 hours a week and volunteering for one afternoon a week at a local charity shop.In context ↗ | Mild |
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
Obviously some days I overdid it and got PEM, bedridden again for days
In context ↗ - Pain & fibromyalgia
intense shooting pains in legs and arms, nerve ending type pains, joint pains
In context ↗ - Neuropathy & tingling
nerve ending type pains
In context ↗ - Light & noise sensitivity
light and noise sensitivity
In context ↗ - Muscle weakness
I couldn’t exercise because of my muscle weakness and my muscles were weak because I couldn’t exercise
In context ↗ - Gut problems
I had problems with IBS and found tomatoes and corn were a problem for a while
In context ↗
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