Long COVID
Severe → much betterIll 4 years before improving or writing
Wheelchair-bound by long COVID, much better with diet and exercise
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 4 years
- Last post
- Aug 2026
In their words
- Condition: Long COVID
Still crappy from LC but no longer catching everything kids bring home.
In context ↗ - At worst: Severe
all kinds of odd stuff started eventually putting me in a wheelchair
In context ↗ - Now: Much better
most symptoms passed
In context ↗ - Began after: COVID
I had severe Covid in November 2021.
Read from 48 of their posts and comments; links to the 24 this page draws on
Summary
Severe COVID in November 2021 put them in hospital for nine days with double pneumonia, leaving lung scarring, breathlessness and oxygen dependence; later fatigue and dizzy spells proved to be severe anaemia, treated with iron. A mild September 2024 reinfection brought long COVID with insomnia, POTS, PEM and memory loss, leaving them wheelchair-bound. Diet, iron, exercise and breathing devices slowly helped; by 2026 they could walk outside again, though iron stayed low.
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What they tried
Also tried
PEP device, flutter valve and spirometer· Helped a lotFlonase· Helpedstationary bike, treadmill and weights· Helpedsteroids· Helpedguaifenesin (Mucinex)· Helpedred / near infrared light therapy (Hooga 300)· Helpedresting when the body says to· Helpedmatcha and chamomile tea with manuka honey· Helpedmatcha and chamomile tea with manuka honey· Helpedmatcha and chamomile tea with manuka honey· HelpedLagevrio· HelpedZyrtec, Claritin, loratadine· No changeZyrtec, Claritin, loratadine· No changeantibiotics· No changemeds for gut· No changeibuprofen· Worsesupplemental oxygen· Not saidmagnesium glycinate· Not saidCoQ10 Quinol ubiquinol· Not saidtocotrienol (high delta)· Not saidvitamin D3· Not saidSingulair (montelukast)· Not said
Their words about each treatment
- iron supplements · Helped a lot
sent to a hematologist who prescribed 90 mg of elemental iron
In context ↗ - Zyrtec, Claritin, loratadine · No change
Doc had me take Zyrtec and use Flonase twice a day. Didn’t seem to do anything.
In context ↗ - Flonase · Helped
For me the Flonase helped but not much.
In context ↗ - supplemental oxygen · Not said
am still on a liter of oxygen
In context ↗ - magnesium glycinate · Not said
400 mg magnesium glyconate
In context ↗ - CoQ10 Quinol ubiquinol · Not said
20O mg CoQ10 Quinol ubiquinol
In context ↗ - tocotrienol (high delta) · Not said
100 mg tocotrienol high delta
In context ↗ - whole-foods organic diet · Helped
That helped recovery from the associated anemia along with iron supplements.
In context ↗ - stationary bike, treadmill and weights · Helped
riding my stationary bike daily, treadmill daily, weights every other day
In context ↗ - steroids · Helped
Same here, left over inflammation from Covid doc said. Steroids helped me.
In context ↗ - guaifenesin (Mucinex) · Helped
Doc has me taking guifenisen morning and night along with Flonase. It’s been two years and definitely improved.
In context ↗ - red / near infrared light therapy (Hooga 300) · Helped
Photobiomodulation since August, no more bleeding, no more face pain, etc.
In context ↗ - antibiotics · No change
Doc put me on antibiotics several time, Flonase, and Claritin. Didn’t help much.
In context ↗ - resting when the body says to · Helped
I still get tired if I try to push myself so rest when my body tells me to.
In context ↗ - ibuprofen · Worse
I think I caused this. I was taking ibuprofen for inflammation post covid.
In context ↗ - meds for gut · No change
Tried meds to no avail.
In context ↗ - matcha and chamomile tea with manuka honey · Helped
started drinking matcha tea with a tsp manuka honey 20+ in the morning and Camamile tea with a teaspoon in the evening
In context ↗ - Singulair (montelukast) · Not said
Doc has added singular as of yesterday so we’ll see I guess.
In context ↗ - Lagevrio · Helped
PCP prescribed Lagevria so never got any symptoms.
In context ↗ - PEP device, flutter valve and spirometer · Helped a lot
They gave me a PEP device, a flutter valve, and a spirometer.
In context ↗
Approaches: Diet · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| November 2021 | severe COVID, 9 days in hospital with double pneumonia, high-flow oxygenI had severe Covid in November 2021. Hospitalized for 9 days double pneumonia.In context ↗ | Severe | |
| summer 2022 | recovered almost fully, holiday with grandchildrenRecovered almost fully, just left a little weak. By the summer of ‘22 I actually took my grandchildren to the OBX.In context ↗ | Near normal | |
| 2023 | dizzy spells; new GP found severe anaemiaeventually experienced dizzy spells to the point I had to lean against a wall to go 15 feet to the bathroomIn context ↗ | Moderate | |
| 2024-2025 | anaemia treated with iron; fatigue and dizziness easedFatigue has improved greatly and no more dizziness.In context ↗ | Mild | Iron infusion / ferritin repletion |
| December 2024 | long COVID crash after reinfection: nightmares, insomnia, body aches, fever, total weakness; later wheelchair-bound and retired from workThen the truck him me after thanksgiving. Not covid but horrid nightmares, insomnia, body aches, fever off and on, and total body weakness to the point I could barely walk 15 feet.In context ↗ | Severe | |
| August 2025 | diet change, anaemia resolved, walking 2000 steps and cycling 30 minutes twice dailyI can walk now 2000 steps or more a day, incorporated semi recumbent bike daily, started at 15 minutes can now do 30 twice a day.In context ↗ | Moderate | Iron infusion / ferritin repletion |
| January 2026 | most symptoms passed with eating well and restingHowever it’s labeled most symptoms passed. No crazy meds, no crazy supplements, just back to common sense eating and resting.In context ↗ | Mild | |
| spring 2026 | hospitalised for flu B with pneumonia; old mucus found on CTI was recently hospitalized for flu b with pneumonia.In context ↗ | Severe | |
| July 2026 | respiratory therapy devices cleared stuck mucus; lungs clear and walking outside againLungs feel so clear now and I can take very deep breaths.In context ↗ | Mild | |
| August 2026 | anaemia resolved but iron still low; rebuilding muscleI’m not longer anemic but still have low ironIn context ↗ | Mild | Iron infusion / ferritin repletion |
Adverse events
- Ibuprofen (Advil, Nurofen, Motrin)“Uggg I’ve had horrible gut / stomach issues. ... I think I caused this. I was taking ibuprofen for inflammation post covid. I’d never taken it before.” Gut side effects
- Iron infusion / ferritin repletion“I had a reaction to the first two iron supplements, hematologist said it was the additives not the iron. Finally found one I didn’t reacts to, Fusion soft chews.” In context ↗ Side effects
- “At first I coughed up so much it made me vomit. Now I use these 3 times a day and not much comes up.” In context ↗ Other
Symptoms mentioned
Brain fogBreathlessnessGut problemsHair lossHeart symptoms & palpitationsMuscle weaknessPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsTemperature regulation
Their words about their symptoms
- Post-exertional malaise
I still get tired if I try to push myself so rest when my body tells me to.
In context ↗ - Brain fog
I had days I couldn’t remember simply things including names, or forget what I was saying in the middle of talking.
In context ↗ - POTS & dysautonomia
Next phase seemed to be total, endless fatigue, followed by POTS and PEM.
In context ↗ - Sleep problems
Sleep issues with horrid nightmares, waking up with outrageously high heart rate soaking wet.
In context ↗ - Pain & fibromyalgia
horrid nightmares, insomnia, body aches, fever off and on
In context ↗ - Gut problems
I’ve had horrible gut / stomach issues.
In context ↗ - Breathlessness
barely able to walk more than about 20 feet before I just couldn’t breath
In context ↗ - Heart symptoms & palpitations
waking up with outrageously high heart rate soaking wet
In context ↗ - Muscle weakness
I went from 125 to 93, lost all muscle.
In context ↗ - Temperature regulation
fever off and on
In context ↗ - Hair loss
Mine fell out pretty extensively beginning a few months after severe Covid.
In context ↗
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