Long COVID with pneumonia, now nearly back to normal with time and hyperbaric oxygen
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 8 months
- Last post
- Nov 2021
In their words
- Condition: Long COVID
I have the gold long covid package with POTS, PEM, sleep issues, neuro issues (fog, memory, etc), covid toes, tinnitus, etc.
In context ↗ - At worst: Mild
I am at 3 months too and still have POTS like tachycardia, oxygen issues, more strenuous exercise intolerance, some tiredness at times.
In context ↗ - Now: Near normal
Mine resolved nearly 100% with time and HBOT.
In context ↗ - Began after: COVID
Infected March 2021.
In context ↗
Read from 28 of their posts and comments; links to the 17 this page draws on
Summary
In March 2021 they caught COVID-19 and in April developed pneumonia with low oxygen when walking, POTS-like tachycardia, brain fog, tinnitus, PEM and sleep problems. They felt much better by three months and later reported nearly 100% resolution with time and hyperbaric oxygen, after also trying atorvastatin and acyclovir. By eight months they could work and walk 60 minutes daily, about 10,000 steps, though they were not back to intense exercise and anything more caused crashes.
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What they tried
What they credit
Also tried
Their words about each treatment
- prednisone · Helped
Take prednisone - cleared mine up completely in 2 weeks
In context ↗ - ivabradine · Worse
I was given ivabradine and propranolol as well and those MASSIVELY increased my fatigue.
In context ↗ - increasing activity · Helped
I also have noticed that increasing my activity despite the fatigue issue is HELPING, not making me worse.
In context ↗ - Lipitor (atorvastatin) · Helped
I started Lipitor and Acyclovir on the same day. One of them is seriously improving things for me.
In context ↗ - melatonin · Helped
3-6mg extended melatonin (6 seems better despite Mayo saying 1-2mg is ideal for sleep)
In context ↗ - magnesium (Calm brand) · Not said
1-2 tsp magnesium (Calm brand, a couple times a week)
In context ↗ - Zantac · Not said
Atorvastatin 20mg and Zantac 10mg
In context ↗ - Katz protocol (high dose niacin and melatonin) · Helped
I like to think it is helping
In context ↗ - taurine · Not said
Taurine definitely lowers RHR. Honestly not sure to what effect though.
In context ↗ - fluconazole · Helped
I took it for 7 days due to angular cheilitis- it helped
In context ↗ - O2 (supplemental oxygen) · Not said
I’m still on O2 intermittently 7 months out
In context ↗ - GACLIV · Not said
I’m taking GACLIV daily which sounds awfully similar.
In context ↗ - HBOT · Helped a lot
Mine resolved nearly 100% with time and HBOT. Get into a chamber now would be my advice.
In context ↗ - time · Helped
Mine resolved nearly 100% with time and HBOT.
In context ↗
Approaches: Hyperbaric & oxygen · Antivirals · Physiotherapy and rehab · Statins · Supplements
Their path
What they say at each step doesn’t fit the worst point or outcome above on the severity scale, so the steps are listed as they describe them. Dates are when they posted.
| When | What happened | After |
|---|---|---|
| March 2021 | COVID-19 infectionInfected March 2021.In context ↗ | |
| April 2021 | COVID pneumonia with low oxygen on walkingI had terrible pneumonia from COVID in April 2021. Blood in sputum, coughing for ages after.In context ↗ | |
| June 2021 | much better by three monthsI felt horrific 5 weeks out but so much better 3 months in.In context ↗ | |
| July 2021 | started Lipitor and acyclovir, one of which seemed to helpI started Lipitor and Acyclovir on the same day. One of them is seriously improving things for me.In context ↗ | |
| November 2021 | working and walking 10,000 steps a day with occasional bad daysI’m around 10k steps a day most days composed of a morning and afternoon walk of 40ish minutes each.In context ↗ | |
| November 2021 | nearly 100% resolved, but intense exercise still causes PEMMine resolved nearly 100% with time and HBOT.In context ↗ | Hyperbaric oxygen (HBOT) |
Adverse events
- Ivabradine“I was given ivabradine and propranolol as well and those MASSIVELY increased my fatigue.” In context ↗ Made symptoms worse
- Propranolol (Inderal)“I was given ivabradine and propranolol as well and those MASSIVELY increased my fatigue.” In context ↗ Made symptoms worse
- Ivabradine“Ivabradine just made me groggy and lowered my supine HR.” In context ↗ Side effects
- Fluconazole (Diflucan)“I took it for 7 days due to angular cheilitis- it helped (although threw me into thrombocytopenia for the week after I was on it).” In context ↗ Blood count problems
Symptoms mentioned
Their words about their symptoms
- POTS & dysautonomia
Also have the post covid pots
In context ↗ - Brain fog
Brain fog, blood pooling, exercise intolerance, malaise.
In context ↗ - Post-exertional malaise
I cant exercise because of PEM
In context ↗ - Sleep problems
I have the gold long covid package with POTS, PEM, sleep issues
In context ↗ - Tinnitus
covid toes, tinnitus, etc.
In context ↗ - Heart symptoms & palpitations
still have POTS like tachycardia
In context ↗ - Breathlessness
I’m still on O2 intermittently 7 months out
In context ↗ - Neuropathy & tingling
I had this for around six months before it resolved.
In context ↗
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