Long COVID with nerve pain and brain fog, now nearly normal after vestibular therapy
- Condition
- Long COVID
- At worst
- Mild (working or studying, with limits)
- Ill before improving or writing
- 3 years
- Last post
- Jun 2023
In their words
- Condition: Long COVID
still experiencing some long haul symptoms (mostly nerve issues and dizziness at this point)
In context ↗ - At worst: Mild
Symptoms gradually dissipated over 8-10 weeks and I felt about 85% normal by mid-August.
In context ↗ - Now: Near normal
So much better! I would say 90% improved. I have some lingering vestibular nerve damage that can flare up with triggers (like being sick or low on sleep)
In context ↗ - Began after: COVID
I had suspected COVID in May, two weeks of all the "mild" symptoms along with my husband and toddler.
Read from 22 of their posts and comments; links to the 12 this page draws on
Summary
After suspected COVID in May 2020, Plover 79162 developed intense post-viral neuritis with nerve pain, dizziness, headaches, breathlessness and brain fog about two weeks after recovering. Symptoms eased to about 85% by August, but a flu shot and toddler bugs triggered relapses in 2020, with symptoms returning in late 2022. Vestibular therapy and magnesium helped; pregnancy may have helped. By June 2023 she was about 90% improved, exercising six days a week with occasional nerve flares.
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What they tried
What they credit
Also tried
Their words about each treatment
- flu shot · Worse
Within 12 hours of the flu shot, my nerve tingling, dizziness, headaches returned at about 50% of what it was at the peak this summer.
In context ↗ - nortriptyline · Worse
I did a round of nortriptyline with little success.
In context ↗ - magnesium supplement · Helped
Magnesium helped me.
In context ↗ - glasses · Helped
wearing my glasses (used to only need for reading/computer work) seems to help
In context ↗ - vestibular physical therapy · Helped
I have seen an improvement in dizziness, brain fog and migraines that were a result of the damage.
In context ↗ - post-viral asthma inhalers · Not said
I was able to come off of my post-viral asthma inhalers
In context ↗ - time · Helped
Haven't found anything other than time that helps
In context ↗
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. 1 step says too little to place on the scale and is only in the table. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| May 2020 | suspected COVID infection, two weeks of mild symptomsI had suspected COVID in May, two weeks of all the "mild" symptomsIn context ↗ | Mild |
| June 2020 | post-viral neuritis with burning/tingling, dizziness, headaches, brain fog and anxietyAbout 2 weeks after recovering, I was hit with intense "post-viral neuritis"In context ↗ | Not stated |
| mid-August 2020 | symptoms dissipated over 8-10 weeksSymptoms gradually dissipated over 8-10 weeks and I felt about 85% normal by mid-August.In context ↗ | Mild |
| early October 2020 | relapse after flu shotWithin 12 hours of the flu shot, my nerve tingling, dizziness, headaches returned at about 50% of what it was at the peak this summer.In context ↗ | Mild |
| late October 2020 | symptoms slowly dissipating againThe symptoms have slowly been dissipating again.In context ↗ | Mild |
| December 2020 | third relapse triggered by a bug from her toddlerI'm in the midst of a third relapse triggered by getting some bug from my toddler.In context ↗ | Mild |
| February 2021 | vestibular therapy improved dizziness, brain fog and migrainesI have seen an improvement in dizziness, brain fog and migraines that were a result of the damage. I would say I'm at about 85%In context ↗ | Mild |
| March 2021 | pregnancy, slight decrease in long haul symptomsI have noticed a slight decrease in long haul symptoms since getting pregnantIn context ↗ | Mild |
| November 2021 | return of vestibular issues, dizziness, eye symptoms and nerve pain 2.5 months after having a babya return of the vestibular issues/dizziness/perceived eye stuff/nerve pain this past November about 2.5 months after having a babyIn context ↗ | Mild |
| June 2022 | plateaued at about 90%, day-to-day generally fineI would say I've plateaued at about 90% ... My day-to-day is generally fine.In context ↗ | Near normal |
| June 2023 | about 90% improved, exercising six days a week, occasional vestibular and nerve flaresI would say 90% improved. I have some lingering vestibular nerve damage that can flare up with triggers ... I'm exercising 6 days a week with no issue.In context ↗ | Near normal |
Adverse events
- Flu vaccine“Within 12 hours of the flu shot, my nerve tingling, dizziness, headaches returned at about 50% of what it was at the peak this summer.” In context ↗ Autoimmune or inflammatory flare
- Nortriptyline (Pamelor)“the nortriptyline rx, which made me feel 🥴 even though I only took it for 8 days” In context ↗ Side effects
Symptoms mentioned
Their words about their symptoms
- Neuropathy & tingling
burning/tingling moving around extremities
In context ↗ - Brain fog
brain fog and bad anxiety
In context ↗ - Headaches & migraine
stabbing headaches
In context ↗ - Breathlessness
Still some random SOB
In context ↗ - POTS & dysautonomia
vertigo (intense for 2-3 days then turned into less intense dizziness
In context ↗ - Heart symptoms & palpitations
the resting heart rate stuff has evened out for sure
In context ↗ - Muscle weakness
perceived muscle weakness and aches
In context ↗ - Vision problems
eye weirdness is still one of my primary complaints
In context ↗ - Tinnitus
I don't have tinnitus any more
In context ↗ - Light & noise sensitivity
twitching, hyperesthesia and vertigo
In context ↗
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