Bedbound with long COVID fatigue and brain fog, then 95% back to normal before relapsing
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 6 months
- Last post
- Dec 2020
In their words
- Condition: Long COVID
I’ve had long covid for about 6 months now
In context ↗ - At worst: Severe
Now I've been bed bound trying to rest for almost 2 months
In context ↗ - Now: Relapsed
I really thought I was done with it. Now this past week the brain fog and body aches have come back.
In context ↗ - Began after: COVID
tested positive June 20th had mild symptoms at the start
Read from 17 of their posts and comments; links to the 11 this page draws on
Summary
A Reddit user in California tested positive for COVID in June 2020 and, after a month back at a physical job, became bedbound with fatigue and brain fog for about two months. They rested, moved to a mountain, took vitamins and psilocybin mushrooms and used cannabis; by late November they reported 95% back to normal and able to work 40-hour weeks. In December brain fog and body aches returned amid stress, a move and a new job.
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What they tried
What they credit
Also tried
Their words about each treatment
- short burst steroid · Helped
He prescribed me a short burst steroid and a couple heavy duty nasal sprays for my sinuses. That helped me a ton honestly
In context ↗ - heavy duty nasal sprays · Helped
a couple heavy duty nasal sprays for my sinuses. That helped me a ton honestly, haven't had an issue with that symptom since I started taking those
In context ↗ - vitamin D · Not said
I also started taking my vitamins (D, C, zinc, garlic and quercitin) 2-3 times a day instead of one to help my immune system a little more.
In context ↗ - vitamin C · Helped
anti-inflammatory tea with turmeric, coq19, vitamin C, zinc, and alpha lipoic acid were the vitamins I was taking
In context ↗ - cannabis (edibles, vaping, smoking) · Helped
Been high as shit off edibles the past week and it’s helped me lay down and actually rest.
In context ↗ - radical rest · No change
I’ve been resting as much as I possibly can ... resting has not been helping me
In context ↗ - meditating · Not said
reading. meditating, watching tv, and cooking my meals
In context ↗ - psilocybin mushrooms · Helped
Psilocybin mushrooms in small doses. I would take a gram every 4 days, and it freed my mind of all the fears associated with this virus.
In context ↗ - pushing myself · Not said
I plan on working 1-2 hours then resting for an hour throughout the day, but I will be pushing myself
In context ↗ - living up on a mountain in California · Helped
I was fortunate enough to live up on a mountain in California the past month surrounded by nature and fresh mountain air.
In context ↗ - not looking at phone screens all day · Helped
not looking at phone screens all day and focusing on this illness
In context ↗ - talking to friends and family · Helped
make an effort to talk to friends and family. Reach out and connect with them
In context ↗
Approaches: Mould avoidance · Other drugs and medicines · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were |
|---|---|---|
| 2020-06-20 | COVID-19, mild initial symptomstested positive June 20th had mild symptoms at the start (fatigue, loss of taste, fever for 2 days, soar throat, and brain fog)In context ↗ | Mild |
| 2020-08-31 | three nearly symptom-free daysI've been able to cook all my meals, take my dog on a hikes, make jewelry againIn context ↗ | Mild |
| 2020-09-01 | crashed after doing too much on good dayswelp sadly the post exertion just hit me tonight, so exhausted I can barely moveIn context ↗ | Severe |
| 2020-09-17 | bedbound for almost two months after returning to physical labourNow I've been bed bound trying to rest for almost 2 months, nothings really helped i've sort of gotten worseIn context ↗ | Severe |
| 2020-10-15 | slowly improving while restingI guess I’m getting better, definitely have days where the brain fog is awful and fatigue is unbearableIn context ↗ | Moderate |
| 2020-10-18 | clear head the morning after high-dose psilocybinI woke up this morning feeling energized and had a clear head for the first time in what seems like monthsIn context ↗ | Moderate |
| 2020-11-28 | back to normal apart from occasional sluggishnessAfter 5 months I’m confident in saying I’m 95% back to normal.In context ↗ | Near normal |
| 2020-12-09 | brain fog and body aches returned after stressful life changesNow this past week the brain fog and body aches have come back.In context ↗ | Mild |
Adverse events
- “I can feel my body reacting to the weed in a negative way when I smoke it now (lungs feel soar, chest pain, random body aches)” In context ↗ Made symptoms worse
- “Weed used to help me a lot but now it makes my anxiety worse for some reason.” In context ↗ Mood or psychiatric effects
Symptoms mentioned
Their words about their symptoms
- Post-exertional malaise
welp sadly the post exertion just hit me tonight, so exhausted I can barely move
In context ↗ - Brain fog
Now this past week the brain fog and body aches have come back.
In context ↗ - Pain & fibromyalgia
weed has helped tremendously with the body aches and headaches
In context ↗ - Headaches & migraine
my symptoms have primarily been brain fog, headaches, body aches, and heavy fatigue
In context ↗ - Heart symptoms & palpitations
My heart would feel like it’s on overdrive
In context ↗ - Flu-like symptoms
very tight throat/ swollen lymph nodes
In context ↗ - Temperature regulation
fever for 2 days
In context ↗
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