Long COVID
Moderate → much betterIll 6 months before improving or writingNeeds ongoing treatment
Long COVID with heart racing and fatigue, much better after beta blockers and gabapentin
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 6 months
- Last post
- Sep 2025
In their words
- Condition: Long COVID
a previous covid infection before getting covid and ultimately long covid at Christmas (2021)
In context ↗ - At worst: Moderate
The symptoms have been debilitating and random.
In context ↗ - Now: Much better
That didn't cure everything, but it's 1000x better than before.
In context ↗ - Began after: COVID
getting covid and ultimately long covid at Christmas (2021)
In context ↗
Read from 54 of their posts and comments; links to the 27 this page draws on
Summary
After a COVID infection at Christmas 2021, they developed long COVID with heart racing, chest pains, vertigo, fatigue, eye problems and random body pains. Beta blockers eased the heart symptoms and chest pain, and gabapentin from a neurologist ended most recurring pain; hydroxyzine was also prescribed. Gallbladder removal, nasal surgery and sleep apnoea followed. Still on beta blockers with fatigue, insomnia and pains, they call it 1000x better.
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What they tried
What they credit
Also tried
medical cannabis (weed)· HelpedPhysical therapy· Helpedsteroids (budesonide, Flonase)· Helped · wore offazelastine nasal spray· Helped · wore offBipap· Helpedsaline sprays and nasogel sprays· Helpedamitriptyline· WorseCPAP· Worseamoxicillin· Worsevitamin d· Not saidbuspirone· Not saidMetoprolol (Lopressor, Toprol)· Not saidCarvedilol (Coreg)· Not saidCOVID vaccination as treatment· Not said
Their words about each treatment
- Beta blockers · Helped a lot
Beta blockers for chest pain and racing heart.
In context ↗ - medical cannabis (weed) · Helped
Weed for all sorts of body pain, dizziness, insomnia, and restlessness.
In context ↗ - amitriptyline · Worse
My sleep doctor put me on that medication (pre-long covid) and it made me sleep 12+ hours per day.
In context ↗ - Physical therapy · Helped
Physical therapy (definitely avoiding aerobic exercises as this exacerbates many of my symptoms) also helps with the body pains.
In context ↗ - realizing my physical limitations · Helped
And most importantly realizing my physical limitations. If I overdo it, it's misery.
In context ↗ - Promethazine · Helped
Promethazine. Minimizes symptoms and helps me to sleep.
In context ↗ - Gabapentin · Helped a lot
The gabapentin really was the game changer for me. Ended most of the scary recurring pain symptoms.
In context ↗ - hydroxyzine · Helped
prescribed medications that are really helping (gabapentin and hydroxyzine)
In context ↗ - vitamin d · Not said
primary care doctor recommended vitamin d daily before all of the awful happened. It's been normal ever since.
In context ↗ - steroids (budesonide, Flonase) · Helped
I was using steroids (budesonide some of the time, Flonase when not on budesonide)
In context ↗ - azelastine nasal spray · Helped
I was using steroids (budesonide some of the time, Flonase when not on budesonide) and azelastine nasal spray daily for the last year.
In context ↗ - turbinate reduction surgery · Helped
Finally caved for turbinate reduction surgery.
In context ↗ - buspirone · Not said
Gabapentin and buspirone.
In context ↗ - CPAP · Worse
CPAP was a fail for me.
In context ↗ - Bipap · Helped
Bipap works better for my breathing since it's not constant pressure
In context ↗ - saline sprays and nasogel sprays · Helped
it is manageable with saline sprays and nasogel sprays
In context ↗ - amoxicillin · Worse
I've had even common things like amoxicillin make me horribly ill.
In context ↗ - Metoprolol (Lopressor, Toprol) · Not said
it zapped my will to live. Made it hard to care about things, super weak, and really impatient.
In context ↗ - Carvedilol (Coreg) · Not said
I have tried the extended release carvedillol and cannot tolerate it. Makes me so jittery and I get panic attacks.
In context ↗ - COVID vaccination as treatment · Not said
Weird symptoms that freaked me out (vertigo, shortness of breath, skin feeling like it was burning, and other fun side effects)
In context ↗
Approaches: H1 antihistamines · Beta-blockers · Other drugs and medicines · Pacing · Surgery & structural
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| December 2021 | long COVID after a COVID infection at Christmasgetting covid and ultimately long covid at Christmas (2021)In context ↗ | Moderate | |
| June 2022 | beta blockers eased heart racing and chest pain; almost back to normalsix months of misery followed by fatigue in month 7. But I'm almost back to normal now.In context ↗ | Near normal | Beta-blockers (unspecified) |
| September 2022 | turn for the worse with heart racing back, three ER visitsI started taking a turn for the worse and ended up in the ER 3 times in September.In context ↗ | Moderate | |
| November 2022 | neurologist prescribed gabapentin and hydroxyzine; pain symptoms easedThe gabapentin really was the game changer for me. Ended most of the scary recurring pain symptoms.In context ↗ | Mild | |
| May 2023 | narrower symptom list but still on beta blockers with fatigue, insomnia and painsThe list is narrower than it has been. 12 month mark I started to improve. But I still have to be on beta blockers for high blood pressure and racing heart. Also have fatigue, insomnia, and crazy random pains.In context ↗ | Mild |
Adverse events
- Cannabis (THC, marijuana)“that exacerbates the eye pain and redness if I have more than very small amounts” In context ↗ Made symptoms worse
- Amitriptyline (Elavil)“it made me sleep 12+ hours per day ... I have never been so tired in my life.” In context ↗ Side effects
- Beta-blockers (unspecified)“the beta blockers make me groggy” In context ↗ Side effects
- Metoprolol (Lopressor, Toprol)“it zapped my will to live. Made it hard to care about things, super weak, and really impatient.” In context ↗ Mood or psychiatric effects
- Cannabis (THC, marijuana)“Horrible for my heart racing.” In context ↗ Made symptoms worse
- Carvedilol (Coreg)“I have tried the extended release carvedillol and cannot tolerate it. Makes me so jittery and I get panic attacks.” In context ↗ Side effects
- CPAP and sleep apnoea treatment“The constant pressure made it feel like I just couldn't breathe and I'd tear it off every night in my sleep.” In context ↗ Made symptoms worse
- Amoxicillin (Amoxil)“common things like amoxicillin make me horribly ill” In context ↗ Side effects
- COVID vaccination as treatment“Weird symptoms that freaked me out (vertigo, shortness of breath, skin feeling like it was burning, and other fun side effects)” In context ↗ Side effects
- Gabapentin (Neurontin)“it made me too sleepy during the day” In context ↗ Side effects
- Sinus, jaw and tonsil surgery“The last week was hell.” In context ↗ Other
- Sinus, jaw and tonsil surgery“When it gets super dry, I feel like I'm suffocating. It can cause light headedness and panic attacks.” In context ↗ Side effects
Symptoms mentioned
Brain fogBreathlessnessHeadaches & migraineHeart symptoms & palpitationsPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problemsVision problems
Their words about their symptoms
- Post-exertional malaise
If I overdo it, it's misery.
In context ↗ - Brain fog
I'm now on month 7 and have extreme issues focusing and fatigue issues still
In context ↗ - POTS & dysautonomia
my long covid symptoms have been mostly heart racing, chest pains, eye problems, vertigo, fatigue, and random body pains for me.
In context ↗ - Sleep problems
I wouldn't sleep at all if not for medical cannabis.
In context ↗ - Pain & fibromyalgia
everything hurts. Hands, neck, back, butt.
In context ↗ - Headaches & migraine
random body pains (chest, neck, head, legs, hands)
In context ↗ - Vision problems
Eyes are always dry and red. And have floaters.
In context ↗ - Breathlessness
Also helped with shortness of breath once my heart rate calmed down.
In context ↗ - Heart symptoms & palpitations
my long covid symptoms have been mostly heart racing, chest pains
In context ↗
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