Long COVID
Moderate → somewhat betterIll 6 years before improving or writingNeeds ongoing treatment
Long COVID with pain, neuropathy and brain fog, somewhat better with Bactrim and Adderall
- Condition
- Long COVID
- At worst
- Moderate (mostly housebound)
- Ill before improving or writing
- 6 years
- Last post
- Apr 2026
In their words
- Condition: Long COVID
I got long Covid in Feb 2020-so coming up on 4 years.
In context ↗ - At worst: Moderate
I had all kinds of really severe neurological issues in the summer of 2024 and I was unable to drive for about three months.
In context ↗ - Now: Somewhat better
The only things that have made this bearable are Adderall and Bactrim.
In context ↗ - Began after: COVID
My first exposure that I got long Covid, I was asymptomatic.
Read from 20 of their posts and comments; links to the 15 this page draws on
Summary
Long COVID began in February 2020, after an asymptomatic COVID infection in January 2020. Six years on, chest and nerve pain, neuropathy, insomnia, brain fog, depression and MCAS symptoms continued to flare with each COVID exposure. Bactrim and Adderall were credited with making life bearable, and Vive Minerals restored taste and smell in late 2023. They remained ill and disabled.
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What they tried
What they credit
Also tried
IV vitamin C and B· Helped a lot · wore offPaxlovid· Helped a lot · wore offVive Minerals· Helped a lotAlpha Lipoic acid· Helpedpowdered L- glutamine· HelpedSAM-e· Helpedgeneric Walmart brand of Allegra· Helpedpainful physical massage of neck and shoulder lumps· Helpedstaring straight ahead instead of glancing around while driving· Helpedantibiotics for Lyme· No changemag. Glycinate· No changeVit D3 with K2· No changeomega 3· No changeB1· Not saidB6· Not saidvitamin C· Not said
Their words about each treatment
- antibiotics for Lyme · No change
after trying years of antibiotics and all kinds of supplements
In context ↗ - Adderall · Helped a lot
The Adderall improves mood immensely. ... it gives me a positive mood, energy, a desire to do things when I would otherwise be in bed crying.
In context ↗ - Bactrim (sulfamethoxazole) · Helped a lot
The only thing that worked- and works AMAZING to kill the pain- is Bactrim- or sulfamethoxazole.
In context ↗ - IV vitamin C and B · Helped a lot
I did five weeks IV vitamin C therapy for Epstein bar virus ... A month later, they all came back
In context ↗ - Paxlovid · Helped a lot
It was freaking amazing. I had so many wonderful positive effects ! ... The bad news is that it is starting to come back now- at least some of the symptoms are.
In context ↗ - Alpha Lipoic acid · Helped
Alpha Lipoic acid gets RID of my peripheral neuropathy!!! I love it. I have to take 2 pills 3x a day- it starts coming back after the pills wear off in a few hours
In context ↗ - Vive Minerals · Helped a lot
Within a few days of taking it, I noticed my taste coming back. Within less than a week AAALLL my taste and smell was back!
In context ↗ - methylated B12 · Helped
I think mostly methylated B12 wa a big help - a form that dissolves under the tongue.
In context ↗ - B1 · Not said
And B1, some B6 pulsed on and off
In context ↗ - powdered L- glutamine · Helped
I did begin taking powdered L- glutamine a few months ago to heal my gut. It did not necessarily fix my mental health issues , but it has worked great in the past for gut issues
In context ↗ - SAM-e · Helped
But I did also begin taking SAM-e recently and I like it. It’s supposed to help with the mood/ happy neurotransmitters.
In context ↗ - vitamin C · Not said
Plus i take all the typical vitamin C
In context ↗ - mag. Glycinate · No change
I do take mag. Glycinate and Vit D3 with K2 and have long term. That did nothing for anxiety or depression.
In context ↗ - omega 3 · No change
The omega 3 did nothing for me either
In context ↗ - generic Walmart brand of Allegra · Helped
The take the generic Walmart brand of Allegra every day. That does help a lot with symptoms.
In context ↗ - Acyclovir · Helped
Also Acyclovir is an anti viral that helps with LC as well.
In context ↗ - painful physical massage of neck and shoulder lumps · Helped
I have painful lumps in my neck and shoulders that I’m constantly trying to rub out( it helps a LOT to physically massage them out). And nut a gentle massage - a painful one.
In context ↗ - staring straight ahead instead of glancing around while driving · Helped
Once I started just looking straight forward and not glancing around- it stopped.
In context ↗
Approaches: Antibiotics · Antivirals · Stimulants · Supplements
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| February 2020 | long COVID began after an asymptomatic COVID infectionthe long covid hit me in FebIn context ↗ | Moderate | |
| 2020 | five weeks of severe chest pain, thought they were going to dieI thought I was going to DIE for 5 weeks in 2020.In context ↗ | Moderate | |
| spring 2021 | five weeks of IV vitamin C and B for EBV; neuropathy gone and lost lymph fluidI lost 5 pounds of lymph fluid and my peripheral neuropathy was goneIn context ↗ | Moderate | IV vitamins and Myers cocktail |
| spring 2021 | all symptoms returned a month after the IV therapyBut it only lasted a month and it all came back.In context ↗ | Moderate | |
| December 2023 | full taste and smell returned after a tick bite and Vive MineralsWithin less than a week AAALLL my taste and smell was back!In context ↗ | Moderate | |
| summer 2024 | severe neurological issues and vertigo, could not drive for three monthsI had all kinds of really severe neurological issues in the summer of 2024 and I was unable to drive for about three months.In context ↗ | Moderate | |
| August 2024 | POTS attack after two yellow jacket stings, laid down for a weekI had a horrible POTS episode, couldn’t stand , had massive air hungerIn context ↗ | Moderate | |
| August 2024 | restarted Adderall and all symptoms liftedALL my symptoms are GONE. I felt so great, no weakness, no exhaustion.In context ↗ | Mild | Amphetamine salts (Adderall) |
| April 2026 | still having flares of neuropathy, dry eyes and mouth, chest pain and air hunger six years inthe super dry eyes and dry throat / mouth occurIn context ↗ | Moderate |
Adverse events
- Paxlovid / nirmatrelvir“The bad taste in your mouth is nasty, but it’s worth it.” In context ↗ Side effects
- Trimethoprim-sulfamethoxazole (Bactrim)“I only take it in the morning because it will give you terrible insomnia if taken twice a day.” In context ↗ Insomnia from treatment
- Other minerals and mixes, Magnesium“It made me very nauseous if i waited an hour or so after eating.” In context ↗ Gut side effects
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessGut problemsHair lossHeart symptoms & palpitationsLoss of smell or tasteMast cell (MCAS) & allergiesMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaSleep problemsVision problems
Their words about their symptoms
- Neuropathy & tingling
I get a flare, and the peripheral neuropathy happens again
In context ↗ - Pain & fibromyalgia
the joint pain, muscle pain and sudden bursitis in my left hand
In context ↗ - Brain fog
I have the depression, brain fog, OCD
In context ↗ - Anxiety & low mood
Since long Covid ( Feb 2020) I struggle with depression.
In context ↗ - Sleep problems
I have severe insomnia from long Covid
In context ↗ - Heart symptoms & palpitations
Every time I get Covid now, my chest pain flares.
In context ↗ - POTS & dysautonomia
I had a horrible POTS episode, couldn’t stand , had massive air hunger
In context ↗ - Mast cell (MCAS) & allergies
I have all the typical MCAS symptoms.
In context ↗ - Breathlessness
I would begin to get air hunger
In context ↗ - Hair loss
the anhedonia, bouts of anxiety, hair falling out
In context ↗ - Loss of smell or taste
after 4 years of on and off ( never good/ normal) taste and smell, I have it ALL back- like 100%
In context ↗ - Gut problems
Every system in my body, including my gut, is inflamed.
In context ↗ - Muscle weakness
my back would go weak , I get tachycardia
In context ↗ - Vision problems
feel like I have sand in my eyes because they’re so dry
In context ↗
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