Long COVID
Severe → recoveredIll 2 years before improving or writing
Hospitalised with long COVID, then bedridden, later recovered
- Condition
- Long COVID
- At worst
- Severe (mostly bedbound)
- Ill before improving or writing
- 2 years
- Last post
- Jan 2026
In their words
- Condition: Long COVID
I am writing this because I have been recovered. It's been three months and no LC symptoms have come back.
In context ↗ - At worst: Severe
I was bed ridden for two weeks. Then for six months waking up with a fever, every day. ... I hardly could walk. The pain was so bad I could not get up.
In context ↗ - Now: Recovered
I went from hospital bed bound to hiking for hours. Doing tai chi every day. Crosstraining twice a week and inbetween 8000-18000 steps a day.
In context ↗ - Began after: COVID
I (f, 43) was infected march '21.
Read from 80 of their posts and comments; links to the 36 this page draws on
Summary
COVID in March 2021 left her hospitalised, then nearly two years of brain fog, nerve twitches, limb pain, insomnia and thyroid failure. Vaccines and a booster left her bedridden with daily fevers and suicidal depression; flu, a June 2022 reinfection, carnivore diet, GABA, IVIG and trauma therapy followed. By March 2023 she worked 32 hours a week and called herself recovered, until an October 2023 reinfection brought back all her old symptoms.
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What they tried
What they credit
gaba· Helped a lotimmunoglobulins (IVIG, subcutaneous Ig)· Helped a lot · mainvit d (drops)· Helped a lotcarnivore diet· Helped a lot · main5htp· Helpedmelatonin· Helpedtrauma release therapy· Helpedpqq· Helpedquercetin· Helpedketo / anti-inflammatory diet· Helpedketo / anti-inflammatory diet· Helpedintermittent fasting· Helpedrest / following her own pace· Helped
Also tried
magnesium· Helpedsteroid injections· Helpedvitamine C· Helpedlow dose aspirine· Helpedbeet juice (fermented lactic acid)· Helpedb12 lozenges· Helpedcelecobix (anti-inflammatory drugs)· Helpedcompression socks / high pressure stockings· Helpedbreathing exercises / ocean breath· Helpedvagus nerve exercises· Helpedpantaprazol· Helpedmassage therapy· Helpedltryptophaan· No changeacupuncture· No changeother supplements· No changeantibiotics· Worse5 day fasts· WorsePfizer vaccine and booster· Much worsephysiotherapy / cardio routine· Much worselymphoma therapy (lymphoedema therapy)· Not saidvibrolegs· Not saidtai chi· Not said
Their words about each treatment
- magnesium · Helped
What helps for better sleeping > magnesium and 5htp
In context ↗ - gaba · Helped a lot
I still take gaba because I feel it helps tremendously with calming down my nervous system.
In context ↗ - ltryptophaan · No change
Magnesium, gaba, ltryptophaan and 5htp. This didn't help enough to sleep through the night.
In context ↗ - 5htp · Helped
My depression lifted after taking 5htp.
In context ↗ - melatonin · Helped
The melatonin stopped the night terrors.
In context ↗ - immunoglobulins (IVIG, subcutaneous Ig) · Helped a lot
I think that is the sole reason I recovered from the first two infections.
In context ↗ - steroid injections · Helped
now I got steroids and a inflammation killer combined. One side feels much better!
In context ↗ - vit d (drops) · Helped a lot
I could also notice a huge difference taking vit d.
In context ↗ - trauma release therapy · Helped
what also helped tremendously, which is not in the supplement department, was releasing the trauma of the COVID experience
In context ↗ - Pfizer vaccine and booster · Much worse
After my vaccine my long haul got way worse.
In context ↗ - antibiotics · Worse
After the ab my intestines had other bacterial overgrowth which lead to another infection which led to another ab and so on.
In context ↗ - pqq · Helped
I also take pqq and a high dose of vitamine C (3000mcg)
In context ↗ - vitamine C · Helped
a high dose of vitamine C (3000mcg)
In context ↗ - quercetin · Helped
Vit d and quercetin also works.
In context ↗ - low dose aspirine · Helped
I had a huge improvement with the brain fog by taking the beet juice (fermented lactic acid) and taking the low dose aspirine.
In context ↗ - beet juice (fermented lactic acid) · Helped
The beet juice or the fermented lactic acid is also working.
In context ↗ - b12 lozenges · Helped
What helps for better cognitive function > vit d drops and b12 lozenges.
In context ↗ - keto / anti-inflammatory diet · Helped
What does help is eating less than 20 gram of carbs a day.
In context ↗ - physiotherapy / cardio routine · Much worse
Was send to physiotherapy and started a cardio routine, three times a week. First it seemed to help, but then it made my symptoms worse. Way worse.
In context ↗ - carnivore diet · Helped a lot
Eating carnivore. It's helping tremendously.
In context ↗ - intermittent fasting · Helped
So I intermittent fast. This works.
In context ↗ - 5 day fasts · Worse
Long time fasts, like 5 days, will get me relapsed.
In context ↗ - celecobix (anti-inflammatory drugs) · Helped
My doc provided me with celecobix (which is a pain killer and inflammation suppressor). It helped.
In context ↗ - rest / following her own pace · Helped
taking rest, loads of it
In context ↗ - acupuncture · No change
Acupuncture didn't do shit for my long haul, I've tried ....
In context ↗ - lymphoma therapy (lymphoedema therapy) · Not said
I'm wearing stockings and lymphoma therapy.
In context ↗ - compression socks / high pressure stockings · Helped
What is also helping me against the pain in my legs (if you have this) is the compression socks.
In context ↗ - breathing exercises / ocean breath · Helped
Breathing! Lots and lots of deep breaths.
In context ↗ - vagus nerve exercises · Helped
Also vagus nerve exercises.
In context ↗ - pantaprazol · Helped
pantaprazol (for acid reflux)
In context ↗ - massage therapy · Helped
And getting lots of massages. To get back into touch with my body.
In context ↗ - other supplements · No change
all the money I spend on all the other supplements
In context ↗ - vibrolegs · Not said
I also bought vibrolegs because I found out the shaking helped against the pain.
In context ↗ - tai chi · Not said
Doing tai chi every day.
In context ↗
Approaches: Amino acids and carnitine · Diet · Pacing · Supplements · Trauma & somatic work
Their path
How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.
Show as a table
| When | What happened | Where they were | After |
|---|---|---|---|
| March 2021 | COVID infection, week in hospital then a month of rehabilitationHospitalised for a week and recovery for a month and then send home.In context ↗ | Severe | |
| mid 2021 | slowly recovering, could walk and do things againbut I could walk and do stuff again.In context ↗ | Mild | |
| December 2021 | second vaccine dose; extremely ill, bedridden two weeksThen in December the second vax. And I got extremely ill.In context ↗ | Severe | |
| 5 January 2022 | Pfizer booster: one clear day, then set back monthsI went to shits afterwards put me 8 months back.In context ↗ | Severe | |
| early 2022 | bedridden with daily fevers, leg pain and suicidal depressionThe pain was so bad I couldn't lift myself up anymore.In context ↗ | Severe | |
| April 2022 | flu activated her immune system; balance and skin improvedSome symptoms were getting less, I had a better balance.In context ↗ | Moderate | |
| June 2022 | second COVID infection; brain 'flipped on'And then my brain kind of flipped on. And slowly my body is recovering.In context ↗ | Moderate | |
| August 2022 | 65% better; walks and biking againI'm 17 months in. 65% better.In context ↗ | Mild | IVIG / subcutaneous Ig |
| October 2022 | 90% healed, back to part-time work and half-hour dog walksBut I can have walks with my dog for half an hour and not be dead.In context ↗ | Mild | |
| 6 November 2022 | crashed after a nine-hour car tripwe decided to do a huge trip of nine hour driving. We arrived yesterday evening and today I'm back with all the old symptoms.In context ↗ | Moderate | |
| 3 December 2022 | crashed after a twelve-hour road tripWent on an 12 hour road trip. Next day all freaking symptoms were back.In context ↗ | Moderate | |
| February 2023 | two months in a very good spot, working 24 hours a weekI'm now for two months in a very good spot.In context ↗ | Mild | |
| March 2023 | recovered; three months with no LC symptoms, working 32 hours a weekI am writing this because I have been recovered. It's been three months and no LC symptoms have come back.In context ↗ | Recovered | |
| October 2023 | reinfected; all the old LC symptoms returnedI already noticed all the old LC symptoms.In context ↗ | Moderate | |
| December 2023 | back on her feet after the October reinfectionNow my whole household got COVID, but guess who is not having any symptoms?In context ↗ | Recovered | |
| 23 January 2026 | hiking for hours, daily tai chi, crosstraining, 8000-18000 steps a dayI went from hospital bed bound to hiking for hours.In context ↗ | Recovered |
Adverse events
- COVID vaccination as treatment“After the other two vaccines I got worse, blood clots and so on.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“I got blood clots after the vaccins” In context ↗ Other
- COVID vaccination as treatment“Booster set me back two months” In context ↗ Made symptoms worse
- COVID vaccination as treatment“PEM was gone, came back. Heart palpitations came back. Saturation went down.” In context ↗ Made symptoms worse
- COVID vaccination as treatment“I went to shits afterwards put me 8 months back.” In context ↗ Made symptoms worse
- GABA supplement (PharmaGABA)“I also upped my gaba intake yesterday to see of this would help. Its making me horrible emotional.” In context ↗ Mood or psychiatric effects
- Antibiotics (unspecified)“After the ab my intestines had other bacterial overgrowth which lead to another infection which led to another ab and so on.” In context ↗ Gut side effects
- Extended water fasting (3+ days)“Long time fasts, like 5 days, will get me relapsed.” In context ↗ Made symptoms worse
- Physical therapy / physiotherapy“First it seemed to help, but then it made my symptoms worse. Way worse. It excelled into not being able to get out of bed.” In context ↗ Made symptoms worse
- Physical therapy / physiotherapy“Within three months I was bed ridden having crazy nerves doing dance competitions in my legs.” In context ↗ Made symptoms worse
Symptoms mentioned
Anxiety & low moodBrain fogBreathlessnessFlu-like symptomsGut problemsHeadaches & migraineHeart symptoms & palpitationsLight & noise sensitivityLoss of smell or tasteMuscle weaknessNeuropathy & tinglingPOTS & dysautonomiaPain & fibromyalgiaPost-exertional malaiseSleep problems
Their words about their symptoms
- Brain fog
Brain was not functioning, could not find the right words even though I tried saying the right thing
In context ↗ - Sleep problems
I also had a lot of sleeping trouble after covid.
In context ↗ - Headaches & migraine
THE headache of all headaches
In context ↗ - Pain & fibromyalgia
terrible pain in my limbs and joints
In context ↗ - Neuropathy & tingling
nerve twitching (my limbs would suddenly shake out of nowhere)
In context ↗ - Anxiety & low mood
the first time in my life I felt anxiety
In context ↗ - Heart symptoms & palpitations
Heart palpitations came back.
In context ↗ - POTS & dysautonomia
Also my POTS disappeared after three months.
In context ↗ - Post-exertional malaise
I've done my first 4000 steps tiny hike on Thursday. I've been dead two days.
In context ↗ - Flu-like symptoms
for six months waking up with a fever, every day
In context ↗ - Light & noise sensitivity
The only thing that can set me back is sensory overload
In context ↗ - Gut problems
acid reflux and digestion problems
In context ↗ - Muscle weakness
I could not stand up after I sat down.
In context ↗ - Loss of smell or taste
no taste, all bland
In context ↗ - Breathlessness
no air to breath, just feeling very tight
In context ↗
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