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Long COVID Severe → much betterIll 5 years before improving or writingNeeds ongoing treatment

Hospitalised with long COVID and barely able to move, much better with vitamin D and diet

Condition
Long COVID
At worst
Severe (mostly bedbound)
Ill before improving or writing
5 years
Last post
Jan 2026
In their words
  • Condition: Long COVIDMe too long covid from the vaccine Pfizer In context ↗
  • At worst: Severewhen I could hardly move, I was in so much pain and had severe inflammation throughout, hospitalized with pericarditis In context ↗
  • Now: Much betterI have some ways to go, but also that I have come a long long way towards healing ... I am much better today than in 2021 In context ↗
  • Began after: a vaccinationIt started with joint and muscle pain so bad I couldn’t lift my legs day two after the vaccine.
Read from 10 of their posts and comments; links to the 9 this page draws on

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Summary

Maple 50957 developed long COVID after a Pfizer vaccination in 2021, with severe pain, pericarditis, asthma, eczema and multisystem inflammation; they were hospitalised and could hardly move. Over five years they improved slowly with vitamin D, an anti-inflammatory diet, supplements and TCM, and tried herbs, though RSV set them back and they later had an adrenal crisis. By 2026 they were much better than in 2021 but still needed supplements and steroids for asthma.

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What they tried

Their words about each treatment
  • copper · Helpedthe other thing that I use as an exterminator of virals is copper ... It weakens the virus and makes outbreaks much shorter In context ↗
  • vitamin d · Helped a lotI raised mine to more than 100 and all my ailments have gone away In context ↗
  • TCM · HelpedI have found some supplements and TCM have helped, plus gentle exercise In context ↗
  • rescue inhaler · Not saidI use a rescue inhaler six times a day and steroids are useless. In context ↗
  • inhaled corticosteroids · Helpedinhaled corticosteroids helped only a little and my skin started to thin and break In context ↗
  • Coq10 · HelpedCoq10 seems to help. In context ↗
  • vitamin c · Helpedfeed the adrenals vitamin c and pantothenic acid ... High dose, I’m starting to improve In context ↗
  • panthethine · Helpedstarted using panthethine the more potent and advanced therapy for adrenals with vitamin c. High dose, I’m starting to improve In context ↗
  • anti inflammatory diet · Helpedwith constant anti inflammatory diet and supplements, my situation has indeed vastly improved In context ↗

Approaches: Alternative therapies · Diet · Exercise and activity · Supplements

Their path

Very severeSevereModerateMildNear normalRecoveredonset12 mo2 y3 y4 y5 y

How ill they were on the ME/CFS severity scale, estimated from what they describe at each point, with time counted from when the illness began. Hover or tap a point. Dates are when they posted. What the levels mean.

Show as a table
WhenWhat happenedWhere they wereAfter
2021Pfizer vaccination; severe pain, pericarditis, asthma, eczema and multisystem inflammationwhen I could hardly move, I was in so much pain and had severe inflammation throughout, hospitalized with pericarditis, severe asthma, eczema In context ↗Severe
2025-02-04Starting to feel better with supportive supplements and self-careI’m starting to feel better, knowing what I can and can’t do, and being kind to myself. In context ↗Moderate
2025-04-18RSV infection set them back; still breathing issues and inflammationjust got RSV and set me back again In context ↗Moderate
2025-08-24Raised vitamin D above 100; all ailments and herpes resolvingI raised mine to more than 100 and all my ailments have gone away In context ↗Near normalVitamin D and sun exposure
2025-09-23Still symptomatic; anti-inflammatories only helping a bitI’m on a bunch of antiinflammatories that are helping a bit. In context ↗Moderate
2025-12-26Adrenal crisis with ultralow blood pressure and severe asthmaMy adrenal crisis manifested as ultralow blood pressure and severe asthma In context ↗Moderate
2026-01-02Much better than 2021 but still a long way to go; ongoing supplements and occasional steroidsI am much better today than in 2021. In context ↗Mild

Adverse events

Symptoms mentioned

Their words about their symptoms
  • Post-exertional malaiseflaring up with exertion and any small loss of sleep In context ↗
  • Brain fogI can’t think of words while I’m talking. In context ↗
  • Mast cell (MCAS) & allergiesIt has something to do with mast cell activation In context ↗
  • Pain & fibromyalgiajoint and muscle pain so bad I couldn’t lift my legs In context ↗
  • Gut problemsI developed food sensitivities and gut issues, bloating In context ↗
  • Breathlessnessoccasionally using inhaled corticosteroids for severe eosinophillic asthma In context ↗
  • Heart symptoms & palpitationshospitalized with chest pains which were diagnosed as pericarditis In context ↗
  • Neuropathy & tinglingmedallion sized pains firing at random times in my legs and torso In context ↗
  • Sleep problemsAt night it has been so bad I’m afraid to drift off to sleep for fear of asphyxiation. In context ↗

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